Fight For Alfie

Fight For Alfie is dedicated to raising awareness and funding research to find a cure for Duchenne.

Established in 2016, Fight for Alfie formed as a result of Alfie's diagnosis. Colleen and Jamie, Alfie's parents, felt they needed to do all they could to save their child's life. The initial objectives of the charity was to raise awareness of Duchenne Muscular Dystrophy and fundraise the required funds for treatment for Alfie, to give him the fighting chance to survive this disease. We achieved this through organised events to fundraise and educate the public about Duchenne.

Duchenne Muscular Dystrophy (DMD) affects about 300,000 boys worldwide.

DMD is a form of muscular dystrophy that is caused by a mutation of the dystrophin gene—located on the X chromosome—which codes for the protein dystrophin. The absence of dystrophin in the body causes muscles to deteriorate and break down. DMD is the most frequently occurring and one of the most rapidly progressive childhood neuromuscular disorders. Due to the way DMD is inherited, boys are primarily affected. Through the years, the charity developed and gained a greater presence within the community. We opened our arms to help and support other families going through the same; and hence developed the key objective to promote and protect the physical and mental health of sufferers of Duchenne Muscular Dystrophy through the provision of financial assistance, support, education and practical advice

Charity number 107869

For more information, please check out our website - www.fightforalfie.co.uk

04/10/2026

A beautiful tribute for such a lovely girl, thinking of all her family at this heartbreaking time 💔🥰 your all in our thoughts, Sleep tight with the angels Danielle, and keep looking over your boys and family from above 🥰🤍

25/09/2026

💚 THAT’S A WRAP FOR ALFIE! 💚

Next treatments not until January 2027 💪💚

Over the past two days, our little warrior has faced lots of injections directly into his muscles, and as always, he has shown just how unbelievably brave and strong he is, He has absolutely smashed it. Not once has he let it stop him from being the amazing, determined boy that he is 💚

His heart is doing amazing, and we got the results from his lung tests yesterday and they are EXCELLENT! 🎉 His legs are still running, and every single day Alfie continues to show Duchenne exactly who is boss 💚

We honestly couldn't be prouder of you, Alfie Pentony. You face things that no child should ever have to face, yet you continue to meet every challenge with courage, determination and that incredible Alfie spirit, You keep fighting, keep smiling and keep proving just how strong you are 💚

A massive thank you to the incredible team in America who look after Alfie throughout his treatment and go above and beyond for him always, We are forever grateful for everything you do for our boy 💚

And of course, a huge thank you to his Mile Monsters Inc. Robert Osley Saunooke, who always shows up when Alfie needs him and is right there beside him. Your support means more than you know. 💚

Keep being the inspiration you are, Alfie, Keep fiighting, Keep running, Keep showing Duchenne who’s boss 🥊💪💚

KEEP KICKING DUCHENNE'S BUTT YOUR OUR HERO 💚🥊

17/09/2026

Could not have said it better, absolutely 💔 what our boys and family go through, people need to educate themselves on how cruel this disease actually is 😢😢💔

13/09/2026

Massive happy happy birthday shout out to Riot Wyatt You are Alfie's hero, you have the biggest heart in this world and Alfie loves having his Monsters in his corner. Thanks for all you do for Alfie he is one lucky boy that's for sure, and he loves you so much🥰 🎉🎊🎂🍀🇮🇪

06/09/2026

Last night, Alfie finally got to see his favourite Irish boxer, Katie Taylor THE QUEEN OF THE EMERALD AISLE 👑 🇮🇪 fight live, and what a night it was. 💚🤍🧡

From the moment she made that incredible ring walk to the final bell, it was truly something else. To be there in Croke Park, surrounded by that unbelievable atmosphere, is something Alfie will treasure for the rest of his life. I honestly don’t think he’ll ever experience anything quite like it again 💚🤍🧡

It was an amazing, emotional and incredibly special night, not just for Alfie, but for our whole country. We feel so lucky and grateful that he got to witness such a historic moment and make memories that he’ll never, ever forget.
Katie, you were absolutely amazing. Thank you for giving Alfie and so many others a night they will carry in their hearts forever.
💚🤍🧡

The best night one he will never, ever forget 🇮🇪👑

02/09/2026

💚💚💚💚💚PLEASE SHARE

Hey folks need your help . We have two tickets for westlife in the 3 arena on Thursday 24th September but due to alfie going for treatment in America we are unable to go 🙏 we would love to get the tickets swapped or even sold if possible 😀
Please share and contact myself Colleen Markey Pentony or Fight For Alfie

Many thanks 🫶💫💚💚💚💚

08/07/2026

This boyo really does know how to keep us on our toes... and shave years off our lives! 🤦‍♀️

After coming home from an amazing holiday, he thought he'd round things off with a sleepover with all his pals, What could possibly go wrong? Well... plenty 🙈

The wrestling, messing about, and general chaos got a bit out of hand, and Alfie managed to launch himself off the sofa bed, cracking the back of his head on the wardrobe 😥

One very dramatic trip to A&E, a split head, and a few staples to hold him back together 🤕💪

Safe to say he's absolutely fine now, but this child clearly missed the memo that holidays are supposed to be the exciting part, Never a dull moment with Alfie 💚

07/07/2026

Fight For Alfie wants to give a massive thank you to Ann and Gerald Mcguigan and all their customers at MCGUIGANS BAR NEWRY for doing there 50/50 draw and raising £300 to help go towards Alfie's much needed treatments in America, thank you all so much for all your continued support 💚

30/06/2026

Duchenne aint stopping this kid living his best life 💚

Keep being you Alfie Pentony 💚

10/06/2026

Be one very happy boy in this house when he wakes this morning 🥊🥊

Address

Newry
BT358EZ

Telephone

+447512512619

Website

https://www.gofundme.com/f/help-us-keep-alfie-walking-for-longer?lang=en_US&utm_campaign=man_ss_icons&utm_medium=custome

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