Hope 4 ME & Fibro Northern Ireland - Announcements Page

17/06/2026

Thanks to Millennium Court in Portadown for continuing to host our M.E., Fibromyalgia and Long Covid awareness exhibition right up to the end of June.

14/06/2026

Please read about this social media campaign on Monday 15th June by . Help raise awareness and support by saving and sharing the leaflet below. 👇

📱You can save and share this leaflet on MON 15th to bring awareness to the open letter signed by 58 orgs & 1200 individuals about the communities legitimate concerns about the framing of Long Covid at the

13/06/2026

Due to our speaker for the Zoom June monthly meeting cancelling at late notice, the meeting has now been rescheduled for Tuesday 30th June from 7.00pm to 8.00pm.

We are delighted to have secured Terry Kelly, Benefits Adviser for Disability Action, to facilitate this meeting with an opportunity for questions on benefit applications at the end of the session.

Zoom link can be found on the Member Only FB page and has been sent out by email.

06/06/2026

“People with ME have sadly had to endure far too much disbelief and delay.”

Clip of Dr Hans Kluge, WHO Regional Director for Europe, opening the Invest in ME 2026 International ME Conference .

Thank you to Invest in ME for 20 years of conferences and all the hard work done by volunteers.”
Thank you Broken Battery

02/06/2026

📢 FREE CPD module on ME and Long Covid now updated!

Updated in April 2026 to reflect evolving biomedical understanding of ME, this highly-rated CPD-accredited module was created by Dr Nina Muirhead.

Nina says:
“One of the most common mistakes clinicians make is underestimating ME/CFS. Evidence shows there is a huge impact on the quality of life of patients and their family members. Patients have been ignored and stigmatised and those who are most severely impacted are least able to access the healthcare that they need. Scientific understanding of post-viral disease and associated symptoms and syndromes is revolutionising how patients should be treated.”

The module contains 10 clinical cases and is designed for GPs and healthcare professionals to improve their understanding of:

👉 The main diagnostic features of ME
👉 Identifying post-exertional malaise (PEM) as a key feature of ME
👉 Recognising the importance of early, accurate diagnosis
👉 Identifying conditions related to ME, such as POTs and long Covid
👉 Evaluating the needs of individuals when creating symptom management plans

With funding from the Scottish Government, we work with Nina, the ME Association and MEAction Scotland to widely promote this essential resource.

Share the the module with your GP or healthcare professional, and help improve knowledge and understanding of ME 👇
https://www.studyprn.com/p/chronic-fatigue-syndrome

Our free Learn about ME podcasts and webinars complement the module, with insight and advice from professionals and patients. Our 13th podcast is coming soon!

https://www.actionforme.org.uk/resource/professional-development-for-me/

02/06/2026

Thank you Broken Battery for capturing today’s BBC Morning Live awareness and correcting some facts on
Change is coming, albeit slowly and too late for too many.

“BBC Morning Live addresses complaints after Dr Oscar Duke said that Chronic Fatigue Syndrome was “probably the best way to describe” the illness.

Feedback from viewers outlines how it trivialises the illness, is just one symptom, and it does not reflect the reality of .

Link to the full segment and new BBC information page in the comments.”

02/06/2026

Thank you Millennium Court, continuing to raise awareness and information on our services long after May 💙

02/06/2026

Action for ME have secured a House of Lords debate on the treatment of, and research into severe M.E.

A House of Lords debate on the treatment of, and research into, severe ME will take place on Thursday 18 June 2026.

We are delighted to have worked closely with Baroness Scott of Needham Market to help secure this important debate, which will bring much needed attention to the experiences and needs of people with severe ME.

Ahead of the debate, Action for ME will be developing and sharing a briefing for attendees, setting out key issues and recommendations. We will also be attending the debate and continuing to work with parliamentarians to ensure people with ME are heard.

This is an important opportunity to raise awareness of the urgent need for better care, support and research for people with severe ME.

Read more: https://www.actionforme.org.uk/house-of-lords-debate-severe-me/

27/05/2026

ME Research Breakthrough magazine now available online.

The Spring 2026 issue of Breakthrough magazine is now available online, with news of the ME research you are helping to fund: bit.ly/4act0hR

This issue includes newly funded projects exploring autoimmunity in ME/CFS, the use of cell electrophysiology to develop a diagnostic test, and the search for blood-based biomarkers; findings from Prof. Elisa Oltra on the role of HERVs in ME/CFS; Prof. Bhupesh Prusty’s study on how viral infections may influence the development of ME/CFS updated estimates of the UK prevalence of ME/CFS, and much more.

If you want to help support more vital research like this, please consider making a donation: bit.ly/49o2bXJ

24/05/2026

Tuesday 26th May - Action for ME webinar.

🧬Reminder to join our Sequence ME & Long Covid Webinar

Following last week's announcement of funding (£4.75 million) from the UK government, join us to find out more about what Sequence ME & Long Covid aims to do, what this funding means for the study, and what happens next. There will also be a Q&A session with Action for ME CEO Sonya Chowdhury and Professor Chris Ponting from the University of Edinburgh.

📅 26 May, 14:30 - 15:30pm GMT
📍 Register here: https://us02web.zoom.us/webinar/register/WN_N98uaEqUQOK1wwh_Mt0evA

🎥 The webinar will be recorded and we will share the recording afterwards.