05/08/2026
Amy's dad lived with prostate cancer for six years. As his health got worse, he could do less and less. Eventually, he had to stop working altogether. What followed was a struggle to get the financial support he needed and deserved. Amy’s shared what that time was like 👇
“My dad was Neil. He was one of a kind. Mum and dad managed, but Dad had to draw his pension, and there was enormous pressure on him to keep working while he had cancer. He was fitting bathrooms and putting more stress on his body as a self-employed plumbing and gas engineer.
"He shouldn't have been going out to work five or six days a week just to earn an income while worrying about everything else. When I think about it now, it was so much.
“Then it finally hit him that there was no way he could carry on working.
“He had originally applied for PIP because as he was self-employed and due to the decline in his health he wasn't having the same amount of money coming in because if he was having chemotherapy and treatment, he wasn't at work. He applied once on his own and was declined.
“Due to his health and proud attitude, he wasn’t going to go through an appeals process.
“So, he didn't receive any money until about six weeks before he died, when we believe someone at the hospital must’ve submitted an SR1 form.
“I think there should be a better system in place for people with terminal or life-limiting illnesses, or those going through harsh treatments. If you're having treatment, you often can't work. There should be a better safety net.”
The support Neil needed came too late.đź’”
In fact, thousands of terminally ill people are missing out on benefits they're entitled to because of complicated processes and a lack of information about the support available.
Nobody should spend their final days worrying about money and making ends meet.
That’s why we’re calling on the government to make sure more terminally ill people can quickly access benefits through the Special Rules, and to give healthcare professionals the training and resources they need to make conversations about financial support part of the care they provide. 💛