Seany Boys Journey

Seany Boys Journey Help get our Seany boy to America for stem cell treatment, his life expectancy is only to his teens so we need to get him there before it is too late!!!

My boy watching the match in hospital ❤️🤍 Sorry we have been quiet we have been so busy with lots on and Sean has been v...
17/06/2026

My boy watching the match in hospital ❤️🤍

Sorry we have been quiet we have been so busy with lots on and Sean has been very up and down with sleepyness and lots of seizures.

The last 48 hours hes not been himself, had 4 episodes of going unresponsive. He had one Monday morning, one last night, one this morning then another one tonight, we done his CRP earlier in the hope it was high which it is, we hoped he had an infection so its an answer to why he is having these increase in episodes as the worry is there is always a possibility of his brain getting worse 😢

He has an infection somewhere but we dont know where, he had another episode at teatime of going unresponsive for 80 minutes and the doctor who witnessed it does think they are brain stem seizures.

She says every one is worrying with him being such a high risk of SUDEP (sudden unexplained death in Epilepsy) where he will just go to sleep and not wake up.

I get scared every time these happen, luckily he has woke up after each one. He has had bloods done to check lots of different things including his pancrease and his prostate. The doctors came back not long ago to do more bloods for blood cultures 🙏

The original plan was to start him on oral co amoxiclav but the doctors have changed this tonight and are starting him on IV ceftriaxone to treat severe bacterial infections to be on the safe side.

Im so appreciative for this, the doctor tonight was brilliant and being very cautious.
Sometimes when they cannot find a cause we hear the dreaded words "probably viral" but the doctor tonight says we dont have a cause yet but she wanted him covered from every angle to be on the safe side ❤️

Hes mainly been sleepy, his CRP is 75 so not massively high (should be below 5) but the brain stem seizures is what's worrying with beinb closer together.
He used to have them every few weeks now its been 4 in 48 hours and they have lasted a few hours each one.

Hes in the best place and on the lovely neuro ward so hes in good hands 🙌

Hopefully a few days of IV antibiotics and hes back to his happy self again 🥰

Well done Sam Regan & Sam Beavers who share this number winning £250 & Catrin Robinson winning £100 with number 44 🥳
13/06/2026

Well done Sam Regan & Sam Beavers who share this number winning £250 & Catrin Robinson winning £100 with number 44 🥳

Saturdays bonus balls£250 Bonus ball 💰💰💰1 Sam & Sam's mam✅️2 Lauren3 Sonia✅️4 Sam B✅️5 lilli✅️✅️6 Angie✅️7 Heather✅️8 Se...
13/06/2026

Saturdays bonus balls

£250 Bonus ball 💰💰💰

1 Sam & Sam's mam✅️
2 Lauren
3 Sonia✅️
4 Sam B✅️
5 lilli✅️✅️
6 Angie✅️
7 Heather✅️
8 Seanyboy✅️
9 Gemma L✅️
10 Dean
11 Seany boy✅️
12 Catrin✅️✅️
13 Seany boy✅️
14 Mandy ✅️
15 Steven Fisher ✅️
16 Angie✅️
17 Maddy✅️✅️✅️✅️
18pauline✅️✅️✅️✅️✅️✅️✅️✅️✅️✅️✅️✅️✅️x13
19 vera✅️✅️✅️
20 Dean
21pauline✅️✅️✅️✅️✅️✅️✅️✅️✅️✅️✅️✅️x13
22 Angie✅️
23 big sean✅️
24 Heather✅️
25 jill✅️
26 Emma Ste N Em Fisher ✅️
27 Seany boy✅️
28 Seany boy✅️
29 Mandy✅️
30 Dean
31 sharon️️️ ️️✅️✅️ £1 credit
32 jill✅️
33 Seany boy✅️
34 big Sean✅️✅️
35 Seany boy✅️
36 Emma fisher✅️
37 Dean
38 Tracey✅️
39 sarah✅️✅️
40 Dean
41 susan✅️
42 Jill✅️
43 Seany boy✅️
44 Sam & Sam✅️
45 Naomi✅️
46 vera✅️✅️✅️
47 Tina
48 Seany boy✅️
49 susan✅️
50 Dean
51 victoria✅️✅️✅️
52 Steven fisher✅️
53 dean
54 Ste N Em Fisher ✅️
55 Mandy ✅️
56 Dawn H✅️✅️✅️
57 big Sean✅️
58 louise brown
59 Sonia✅️

£100 Bonus ball 💰💰💰

1 Amanda ✅️✅️✅️✅️
2 Tammy✅️✅️
3 Sonia✅️
4 Kayla ✅️✅️✅️
5 Mandy Burrows ✅️
6 Terris kids✅️
7 Vera✅️✅️✅️
8 Sam B✅️
9 Danielle✅️
10 Heather✅️
11 Dean
12 Steven fisher✅️
13 Sam b✅️
14 Sharon ️️️️️️✅️✅️ £1 credit
15 Sam b✅️
16 Dean
17 Maddy✅️✅️✅️✅️
18 Dean
19 Catrin✅️✅️
20 Lauren
21 seany boy✅️
22 Lilli✅️✅️
23 Big Sean✅️
24 Manda✅️£2 credit
25 Jill✅️
26 Seany boy✅️
27 Seany boy✅️
28 Seany boy✅️
29 Sarah✅️✅️
30 Seany boy✅️
31 Seany boy✅️
32 Jill✅️
33 Danielle✅️
34 Big sean✅️
35 Seany boy✅️
36 Steven Fisher✅️
37 Seany boy✅️
38 Seany boy✅️
39 Sarah✅️✅️
40 Catrin✅️✅️
41 Tracey✅️
42 Graham
43 Vera✅️✅️✅️
44 Catrin✅️✅️✅️
45 Rachel✅️
46 Sam B✅️
47 Ann✅️
48 Seany✅️
49 Manda Newfb✅️✅️️£2 credit
50 Lauren
51 Catrin✅️✅️✅️
52 Dawn Haddon✅️✅️✅️✅️
53 Graham✅️
54 Sam B✅️
55 Nikki York ✅️✅️✅️✅️
56 Catrin✅️✅️
57 Big Sean✅️
58 Steven Fisher ✅️
59 Sonia✅️

Important information about a change in the National lottery‼️Please read❗️Since Wednesday 10th June the national lotter...
13/06/2026

Important information about a change in the National lottery‼️

Please read❗️

Since Wednesday 10th June the national lottery now does 2 draws so people who put the lottery on has double the chance of winning which is brilliant 🤞

There is round one which is 6 numbers and the bonus ball then straight after round 2 which is another 6 numbers and another bonus ball.

Regarding bonus balls, we only collect in £350, £250 to pay out for one bonus ball and £100 to pay out for our other bonus ball so we cannot pay out for round 1 and round 2.

I will not be splitting these so one bonus ball is round one and one round 2 with doing 2 as alot of people take the same numbers on both to win both and this would make it unfair.

This is the same for most who do bonus balls so moving forward we will only be paying for round 1. For anyone that watches the bonus ball round 2 will not count for us!

I have attached a photo from Wednesdays results to give you an idea how it will look when I post the results but please remember only round 1 we are playing 🙌

If anyone would like to watch the lottery live, you can watch it live on youtube at 8pm, just Google watch lottery live and it will come up 💰🤞

My boy slept brilliant last night, didnt wake once which is rare 😅At 7.15am when I went into his room his heart rate was...
08/06/2026

My boy slept brilliant last night, didnt wake once which is rare 😅

At 7.15am when I went into his room his heart rate was 58 which is lower than normal and he wouldnt wake straight away which worried me but after 10 minutes he stretched and woke up....phew 😰

Hes had an ok day, been to the Alan Shearer Centre today with his TA and tonight we went to Saltwell park but he wasnt happy making lots of moaning/groaning noises 😢

Something is bothering him and we cannot pinpoint what as there is a few possible causes.

He settled more once he was out his chair, the sooner the better for his ultrasound on Thursday so we can check the swelling down below.

Hopefully he sleeps well tonight 🥰

Hopefully our boy sleeps tonight, last night he was awake alot of the night crying. Anbasol & paracetamol didnt touch th...
06/06/2026

Hopefully our boy sleeps tonight, last night he was awake alot of the night crying. Anbasol & paracetamol didnt touch the sides so he needed oramorth 😔

He was up and down most of the night, today hes cried out a few times too then went in a deep sleep for a few hours earlier.

He does have his back tooth coming through and breaking the surface of his gum and he also has swelling on his groin possible hernia. Hes been referred for an urgent ultrasound to get this checked which is next week.

Sean very rarely wakes crying during the night now, we did do his CRP to make sure nothing was jumping out infection wise where he needed seen tonight but that was fine so im taking it hes in pain with something rather than having an infection somewhere which is causing the pain.

Its awful seeing him in pain after hes been brilliant for so long....2 Month hes been comfortable after being in pain for at least 18 Month till we found his Prostitis and treated it.

This was Sean today so flat and this was him just a few days ago so well and alert. Hes been brilliant and so vocal, communicating lots 👀🥰

Hopefully what ever pain he has passes quick and tonight and tomorrow is a better day for him 💙

Well done Dean James Gillibrand winning £350 on both bonus balls with number 50 🥳
06/06/2026

Well done Dean James Gillibrand winning £350 on both bonus balls with number 50 🥳

Saturdays bonus balls£250 Bonus ball 💰💰💰1 Sam & Sam's mam✅️2 Lauren3 Sonia✅️4 Sam B✅️5 lilli✅️✅️✅️6 Angie✅️7 Heather✅️8 ...
06/06/2026

Saturdays bonus balls

£250 Bonus ball 💰💰💰

1 Sam & Sam's mam✅️
2 Lauren
3 Sonia✅️
4 Sam B✅️
5 lilli✅️✅️✅️
6 Angie✅️
7 Heather✅️
8 Seanyboy✅️
9 Gemma L✅️
10 Dean
11 Seany boy✅️
12 Catrin✅️✅️✅️
13 Seany boy✅️
14 Mandy ✅️
15 Steven Fisher ✅️
16 Angie✅️
17 Maddy✅️
18pauline✅️✅️✅️✅️✅️✅️✅️✅️✅️✅️✅️✅️✅️x14
19 vera
20 Dean
21pauline✅️✅️✅️✅️✅️✅️✅️✅️✅️✅️✅️✅️x14
22 Angie✅️
23 big sean✅️
24 Heather✅️
25 jill✅️
26 Emma Ste N Em Fisher ✅️
27 Seany boy✅️
28 Seany boy✅️
29 Mandy✅️
30 Dean
31 sharon️️️ ️️£4 credit
32 jill
33 Seany boy✅️
34 big Sean✅️✅️
35 Seany boy✅️
36 Emma fisher✅️
37 Dean
38 Tracey✅️
39 sarah✅️✅️✅️
40 Dean
41 susan✅️✅️
42 Jill✅️
43 Seany boy✅️
44 Sam & Sam✅️
45 Naomi
46 vera
47 Tina ✅️
48 Seany boy✅️
49 susan✅️✅️
50 Dean
51 victoria✅️✅️
52 Steven fisher✅️
53 dean
54 Ste N Em Fisher ✅️
55 Mandy ✅️
56 Dawn H✅️✅️✅️✅️
57 big Sean✅️
58 louise brown
59 Sonia✅️

£100 Bonus ball 💰💰💰

1 Amanda ✅️✅️✅️✅️✅️
2 Tammy✅️✅️✅️
3 Sonia✅️
4 Kayla ✅️✅️✅️✅️
5 Mandy Burrows ✅️
6 Terris kids✅️
7 Vera
8 Sam B✅️
9 Danielle✅️
10 Heather✅️
11 Dean
12 Steven fisher✅️
13 Sam b✅️
14 Sharon ️️️️️️£4 credit
15 Sam b✅️
16 Dean
17 Maddy✅️
18 Dean
19 Catrin✅️✅️✅️
20 Lauren
21 seany boy✅️
22 Lilli✅️✅️✅️
23 Big Sean✅️
24 Manda✅️✅️️️️️£2 credit
25 Jill✅️
26 Seany boy✅️
27 Seany boy✅️
28 Seany boy✅️
29 Sarah✅️✅️✅️
30 Seany boy✅️
31 Seany boy✅️
32 Jill✅️
33 Danielle✅️
34 Big sean✅️
35 Seany boy✅️
36 Steven Fisher✅️
37 Seany boy✅️
38 Seany boy✅️
39 Sarah✅️✅️✅️
40 Catrin✅️✅️✅️
41 Tracey✅️
42 Graham✅️
43 Vera
44 Catrin✅️✅️✅️
45 Rachel✅️
46 Sam B✅️
47 Ann✅️
48 Seany✅️
49 Manda Newfb✅️✅️️£2 credit
50 Lauren
51 Catrin✅️✅️✅️
52 Dawn Haddon✅️✅️✅️✅️
53 Graham✅️
54 Sam B✅️
55 Nikki York ✅️
56 Catrin✅️✅️✅️
57 Big Sean✅️
58 Steven Fisher ✅️
59 Sonia✅️

02/06/2026

Normally Sean is starting to go to sleep by 9pm after his Diazepam & Melatonin at 8pm but this was him at 8.50pm tonight, no sign of sleep and just so happy and alert 🥰

Safe to say hes now fast a peepies having g lovely sleep dreams 😴

Our boy has had such a lovely day 💙He has been in his hydro pool this morning with me and Laura his TA where he was so a...
02/06/2026

Our boy has had such a lovely day 💙

He has been in his hydro pool this morning with me and Laura his TA where he was so alert and responsive. Right now he has been the most responsive he has been in a long time 🥰

I love seeing him like this, keep up the hard work my boy 💪

This morning he slept till 5am so he had a good sleep too. Everything is going in the right direction, he still has abit swelling on his groin which we are waiting for a response from the urology team on what they want to do but because hes well in himself we arnt too concerned.

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Newcastle Upon Tyne

Telephone

+447887655721

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