10/10/2026
TOUCHY SUBJECT....but if people dont mind talking about it, what's people's thoughts on resusitation with a disabled child/adult
I know everyones opinions will be different due to different needs etc, mainly would like to hear from people in these situations who have disgussed it 😔
In Seans EHCP we asked for 5 minutes resusitation, peads doctor at the time disagreed and says "if it was their child they wouldnt want someone jumping up and down on their chest"
Unless you live this life you could not even imagine what you would do, to be able to say that....which is my opinion!
I told this person if anyone of my healthy kids stopped breathing I would help them, so why would we not help Sean "because hes disabled" so now its in his plan and they would have to resusitate him if he ever needed it.
I base this on Sean being fine and suddenly stopping breathing as his seizures are his biggest risk or like when his blood pressure dropped dangerously low a few weeks back rather than being ill and deteriorating.
We only want 5 minutes as we wouldnt want to risk further brain damage or him being permanently ventilated etc but we would want to know we tried.
We always says if Sean had a seizure and stopped breathing, we could do resusitation and bring him back very quickly and he could carry on living a good life and making more memories.
On the other hand we says it would be something disgussed at the time if it wasnt sudden as if Sean was ever suffering and deteriorating we would never keep him here for us and always do what was best for him.
Like in 2022 when the doctors says they thought he was in bowel failure and that there was an 80% chance we were taking him home on palliative care with weeks to live. This was something we had to accept but luckily he never ended up being in bowel failure.
Now Sean is in adults they have mentioned they want to change a few things in his EHCP, they mainly mentioned disgussing antibiotics but im not sure if this will be brought up too if we go over it all.
The decision would hopefully always be with us but its heartbreaking when you have people who disagree.
Like I says this might not even be mentioned as 5 minutes is reasonable but just seeing have other people had these conversations who would like to share them with me?
I totally understand if no one wants to disguss these things, I normally get upset disgussing this but now im not as im hopefull with everything.
Iv told Sean we want to plan Florida for 4 weeks in 2028 and planning his 21st in 3 year so hes fully aware hes not going anywhere for a long time 🙏