Seany Boys Journey

Seany Boys Journey Help get our Seany boy to America for stem cell treatment, his life expectancy is only to his teens so we need to get him there before it is too late!!!

26/08/2026

Sean listening to me on the ipad last night by his lovely carers then using his voice to talk, how lovely 🥰

My boy enjoying time with his PAs yesterday being spoilt by them as always, he done lots of sensory time, went into his ...
26/08/2026

My boy enjoying time with his PAs yesterday being spoilt by them as always, he done lots of sensory time, went into his pool & a trip to the Alan Shearer Centre ❤️

Today he is having a trip out to Alnwick Gardens 🥰 his days arnt always straight forward with him being uncomfortable and not weeing at times but hes in safe hands with them and aswell as keeping on top of any discomfort hes still managing to have nice days💙

Once im home Friday can anyone help me make Seans page private and so only certain people can see our posts and reels? Iv tried changing lots of settings but not very good at technology and don't think its changed anything 🤦‍♀️

25/08/2026

Please do me a favour everyone and go onto Seans video from 6 days ago and look at the comments, saying let him go, it's cruel, everyone on the train is laughing at him etc etc. Saying you could put him in a room all day and he wouldn't know the difference.

Seans dad has just noticed and is going wild, I'm sat in a caravan in tears reading them.

We know this is just keyboard warriors but it's sooo upsetting.

People who have rang, i will ring yous later on, I'm not up to talking at the minute.

We try our best with Sean, one day he won't be here and we will not have regrets that we did not do enough cause we do the best we can.

Please look and see how nasty some people can actually be.

Half of them probably have kids themselves!

Wow just noticed this video of Sean on the train in Blackpool has nearly 300 coments and just look at them.Horrible b***...
25/08/2026

Wow just noticed this video of Sean on the train in Blackpool has nearly 300 coments and just look at them.

Horrible b*****ds 😡

Feel like not sharing anything anymore as this has really upset me 😭 these are not his followers as we have nothing but support but this has been shared on some awful page where people have been nothing but nasty about my boy 💔

Im going to delete the video of him on the train soon as i cannot bare to see the awful comments. Its been shared 54 times so oviously by some nasty people on some awful groups.

Anyone know hot to make our page private?

Sat at Craig Tara on my own with Jackson in sofplay and Kaitlyn doing painting with her dad and im having to fight back tears.

Sean is having the best time at home with his carers which i will post photos of later on 🥰

But thanks for ruining my day you a******es (I never swear but cant help it right now)

hopefully you awful people are never put in positions like ours as i wonder how you would treat your child!!!!

23/08/2026

Someone send help 😫

Back for one day to unpack, wash and pack for tomorrow and just realised Kaitlyn has used all of Seans shampoo and hand wash on this 😳

Meanwhile our house is upside down with suitcases in the middle of the room and things everywhere like a bomb has hit, the washer on, things on the line and 3 more washes to do 🤯

Roll on September when they all go back to school and college 🤣

On our way home now, we are very lucky to have somewhere like Bendrigg so close to home 🏡 We are only 1 hours 50 minutes...
23/08/2026

On our way home now, we are very lucky to have somewhere like Bendrigg so close to home 🏡

We are only 1 hours 50 minutes away from Newcastle to Bendrigg but most of other families there this time were 5 & 7 hours away 😅

Over the years we have had people message us saying they they wished they had the courage to go to places like this with some people being single parents, some people scared to go away from home due to their kids needs etc

So I was wondering if anyone out there would like to plan to go next summer with us? ✨️

Me, Sean & Kaitlyn are going to go next July!
25th July - 30th July and would love it if some other families wanted to come along with us.
Dad may come too but will see closer to the time for him.

Im happy to help anyone and support them, even if anyone is a single parent im happy to share conjoined rooms to help them 🥰

The cost of these 5 nights is £870 pp this includes all meals, accommodation & activities from 9am - 8pm ✨️

What we learnt this time is that there is also a subsidised cost of £399pp too to help people that cannot afford the full cost

Because this is charity funded they like to help as many people as possible so people that can afford the full cost this then helps them to offer a reduced price to people that may be struggling more that cannot afford the full cost 🥰

There are alot of families that have trust funds like Sean and we are in a position to pay the full price and will continue to do so to help other people that can only pay the reduced rate.

If anyone would like to come along with us please let us know, you pay 20% when booking then full balance 8 weeks before you arrive.

Anyone interested please give me a message and I can look into it with the staff there.

They are amazing and will do everything to meet your childs needs and give them the best time there 🥰❤️

Well done lucky me winning both bonus balls with number 3 🥳Come at a nice time 🙌
22/08/2026

Well done lucky me winning both bonus balls with number 3 🥳

Come at a nice time 🙌

22/08/2026

Our favourite part of the day, fire, marshmallows and lovely people, chatting till it got dark whilst all the kids played in the park.

Going to miss all these people 🥹

Breakfast tomorrow then home 😢

22/08/2026

My boy doing the zip line 🥰

22/08/2026

Enjoying the swing one more time 🥰

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