LIVErNORTH

06/10/2026

Join us in person!

02/10/2026

Two surveys providing valuable information for the NHS. Please take part and share if you can.
Poster below, links on the poster in order...
Quality of Life/Symptoms after Transplant Survey:
https://sites.google.com/view/qol-at-pilot/home
Quality of Life after Transplant Survey:
https://newcastlehealth.eu.qualtrics.com/jfe/form/SV_1zYXJ6mXCyHQNp4
Symptoms after Transplant Survey:
https://newcastlehealth.eu.qualtrics.com/jfe/form/SV_elmyjg4bjkyOtEO
Healthcare Experiences After Transplant Survey - Express your interest:
https://forms.cloud.microsoft/pages/responsepage.aspx?id=yRJQnBa2wkSpF2aBT74-h-aVMkdxvx5LnqZdkleV7t5UMlhEMFg5QjVENjhNVFY2WVUzMTFYWk1KQSQlQCN0PWcu&route=shorturl
For more information (email):
[email protected]
Website:
https://odt.btru.nihr.ac.uk/research/theme-6/

27/09/2026

https://www.facebook.com/photo/?fbid=1619182800219650&set=a.227536692717608&__cft__[0]=AZjsoP6pPuhbOdNV2TUFpfZNWOTd9JC9sGKvAmE6R_s-zmibCjvEBDHIF_fCnSEyJdhiGl3r1ne9B_3Y9uNlEOJKHZrdwNH7Xnc0BDrVNWuNsTvLX4e09y8_Vdt4y8AQ8IOcuH4fWJVdejy_txDwYIYdgqxHVdfgXyKxh1HB_4nQ3CrqoKZ12SSPk9I2MCj0yYS0XXGZB2edLw&__tn__=EH-R

20 minutes today, could pave the way to future PSC treatments.

Finding effective treatments for PSC is a long-term goal, but the actions we take today pave the way for future breakthroughs.

As part of our commitment to research through initiatives like , gathering detailed patient evidence is essential. This International PSC Treatment Evidence Survey is collecting critical data that will help shape trial designs, clinical guidelines, and research priorities for years to come.

Dedicating 20 minutes to complete this survey today contributes directly to a better future for everyone affected by PSC, including future generations.

Please share your experience here:
https://pscsupport.org.uk/international-psc-treatment-evidence-survey/

23/09/2026

https://www.facebook.com/share/r/1DCkSPxUUt/

14/09/2026

The Autumn 2026 issue of LIVErNEWS is now available to read online via this link:

13/09/2026

Great support...thank you so much...hope you enjoy the run

08/09/2026

Living with PSC can often feel isolating, but there is so much vital research happening right now to help our community.
If you’ve been looking into clinical trial opportunities, you might want to ask your consultant about the Asp-PSC Clinical Trial. It’s currently one of the largest clinical trial for PSC, and with 46 hospitals across the UK taking part, participating is more accessible than ever.
Taking part in research is a personal choice, but if you're curious about what's involved or want to see if your local hospital is on the list, you can read all the details on our website: https://pscsupport.org.uk/find-psc-research-studies/asp-psc/
Next time you're at the clinic, don't be afraid to !
Have any of you already spoken to your medical team about this trial? Let us know in the comments below! 👇
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08/09/2026

Really important subject - get all of the inside info from this top expert who has personal experience!

02/09/2026

Another really important subject - email [email protected] for the link to join.

27/08/2026

Talk in the Autumn scheduled - join us online by emailing [email protected]