21/08/2026
Bob’s Brainwaves
Rtn. Ron Myland introduced Christine Such and Patrick King to Rasen Rotarians at a recent lunch meeting. Christine and Pat visited us two years ago and were now ready to update Rotarians on their very worthwhile charity, Bob’s Brainwaves. Chris recently lost her husband from complications arising from his dementia which he suffered from for many years. Pat King was briefly a member of Rasen Rotary until his bank employer moved him to Skegness where he joined Rotary there.
Christine gave an update to the Bob’s Brainwave Charity which produces a kit, i.e. a folder containing a mass of information sheets which will support carers of people with memory loss and Dementia. Christine and Bob developed the information packs based on their own experience, over 15 years. They quickly realised that there was no helpful information generally available to help people starting out on their dementia journey. No information on what is available and how to obtain it, what travel schemes are around and where to contact them, what special benefits are available and how to claim for them. Christine and Bob had to find out for themselves and the realisation that everyone else in their situation would be faced with the same issues led to the introduction of the information pack – a simple central place with all the relevant information that could be needed. The information pack has grown significantly as requests from users and carers have continued to come in. For instance the pack now contains a simple booklet on how to avoid scams. Another leaflet describes how to get a dental appointment in a care home. This resulted from the difficulty Chris had in arranging a dental appointment for husband Bob. She then needed to get an urgent prescription from the GP for antibiotics for Bob – she was able to expediate this by mentioning that if she didn’t get the antibiotics that day, she would be contacting Peter Levy (local BBC Newsreader) who was a friend of Bob’s, through their interest in football. The antibiotics were duly provided! As a result, the information pack now has a Community Dentist Referral form that works and there is a similar form for Bowel and Urinary referrals. The list of Memory Cafes has expanded and that has been updated. Useful for those dementia sufferers who are mobile and able to get about, but the story is different immobile sufferers and are often left isolated. Chris got together a list of volunteers and organisations providing travel, local busses and community busses etc. She added a list from Public Health with all the voluntary car schemes and all contact details etc and all the local Lincolnshire bus services. So now the pack contains an A4 double sided sheet with all the transport options available for this region – it has proved to be very popular with users. Similarly, the pack contains a list and map of Public Toilet locations. Since talking to us two years ago the charity has expanded to provide packs all over Lincolnshire. Each council district has different requirements and contact addresses, so it is important to get the right pack for your area.
Another particularly successful addition to the pack is the Signage Widgets. Christine found with Bob, as his dementia progressed, his short-term memory dropped considerably – simple things like opening the front door but then forgetting to close it but by creating and applying simple ‘post it’ notes these would remind him to do things. Developing this thought, she found a manufacturer that would make all sorts of small signs – the Signage Widgets, each with a specific short message and a simple picture. These signs can then be placed wherever the person needs reminding what to do. These now available and are free to download from the website and then print off and use – these would be in addition to the manufactured versions which are also available.
As previously said, the packs are produced specifically for the local authority area that the user resides in – so for West Lindsey the pack will be available from the Memory Clinic in North Hykeham or they can be obtained from a local Memory Café. It is also possible to request one through the website. It is also necessary that the user has a diagnosis of dementia because many of the forms in the pack only work if the user has been diagnosed. Many of the forms result in benefits being made to the user, and these are only available to diagnosed individuals. The subsequent success of these packs is a testament to the foresight of Christine in realising and identifying this missing part of the NHS/Dementia pathway. The success of the project can be seen by the way other regions have requested access and the packs for their local communities. The packs, however, contain information specific to the local community, the West Lindsey pack will be of little use to someone in a completely different area – the council contacts will be different, forms etc will be different, local traffic volunteer schemes will be different etc. There is a limit to how much time Christine and her team can devote to these increasing demands so now they have developed a ‘Tool Kit’ which can be given to areas wishing to introduce something similar. These Tool Kits give the information that is required for the area together with the items such as the Signage Widgets which are of a more general nature and will be relevant for most local areas.
Christine finished her presentation and asked if there were any questions: Rtn. David Mason confirmed that he had firsthand experience of the value of the Bob’s Brainwave packs and the valuable information they contain. He used much of the guidance therein. The information in the packs will have to be updated to reflect the forthcoming Council Boundary changes but this should not cause too much difficulty as the packs are regularly updated anyway to keep them up to date. Christine had noticed as she had expanded her work into Northeast Lincolnshire was that in NE Lincs there was funding for specialist Admiral Dementia nurses and there were 6 of these. In West Lindsey there are none.
Pat, in his treasurer role, answered that most of their funding comes from donations and Rotary is a very good source for them. As the work has expanded and Bob’s Brainwaves Charity has become better known then donation income has increased. They have also had a couple of Government grants – one from Boston Borough Council and another more recently from East Lindsey Council. Christine has been asked to visit Parliament and is hoping to get to talk to Ministers responsible for Health and Alzheimer’s and try and get some central government funding. Therefore, their hope is that they can convince central government of the value of the project and how it should really be available to the whole country.
Market Rasen Rotary then presented Bob’s Brainwaves charity with £500, resulting from their recent Quiz night; – an information pack currently costs £8.65 including VAT to produce.
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