Heart Valve Voice

12/06/2026

A big thank you to @‌StuartAndrew for hosting us today in Moulton.

We’ve spoken to lots of people about heart valve disease and that it is often missed until people become seriously unwell.

Symptoms such as breathlessness, fatigue, dizziness and reduced ability to exercise are frequently dismissed as part of getting older, but recognising them early can make a real difference.

Awareness saves lives, and it’s important that people know when to seek advice and support.

You can also visit our SLOW video on Youtube for more details about symptoms: https://www.youtube.com/watch?v=EdUao3pxwSk

11/06/2026

11 Birthday Events - Number 8

Cycling has been featuring heavily recently in HVV, and last year was where it all started. Phill, now our Partnership and Operations Director was originally a patient, and last year as a fundraiser and to celebrate his successful recovery he made a 55 mile bike ride with his surgeon Mr Ishtiag Ahmed from London to Brighton!

Visit https://heartvalvevoice.com/our-eight-birthday-achievement/ to read all about it.

From Surgery to the Saddle When Phill Read was diagnosed with mitral valve disease, he faced a challenging road ahead. Before undergoing mitral valve repair surgery, he made a promise to his cardiac surgeon, Mr Ishtiaq Ahmed. Once he had recovered, they would take on the iconic 55-mile London to Bri...

10/06/2026

A huge THANK YOU to all the people who have used Give as You Live for their online shopping. You have raised a massive £500 for us without it costing you a penny!

If you don’t already know about it https://www.giveasyoulive.com/ is a wonderful way of raising money for a charity of your choice when you do your shopping online, and it doesn’t cost you a thing!

Visit their website now to join this fantastic scheme, and before you know it we will have another £500!

Give as you Live Online enables you to raise money for your favourite charity from your everyday shopping online.

08/06/2026

Bill never had classic heart disease symptoms but after a heart murmur was discovered by chance it escalated into open heart surgery.

You would hope that that would be enough but that was only the start of Bill’s heart disease journey.

Read his full story here: https://heartvalvevoice.com/bill-pratts-aortic-valve-and-mitral-valve-open-heart-surgery-story/

04/06/2026

We are delighted to share that we have now raised £3,456 towards the Brenda Walker Challenge.

If every pound raised was represented by a £1 coin laid flat edge-to-edge, we would have created a line stretching more than 80 metres – that’s almost the length of a football pitch or 16 double-decker buses parked end to end.

If you would like to take part in this wonderful memorial of Brenda, who was committed to raising awareness of heart valve disease, then please visit: https://heartvalvevoice.com/the-brenda-walker-challenge/

03/06/2026

Today is World Bicycle day, so to mark this special day, why not join our newly launched Heart Valve Voice Cycling Club

This is a very inclusive, free club that welcomes cyclists of all ability and ambition. It doesn’t matter if it’s a bigger challenge or a weekly ride to the shops. every mile will count.

The club is about encouraging its members to keep riding, promote how cycling support healthy hearts, and raise more awareness of heart valve disease and the importance of early diagnosis.

If you want to get on board, you can join the club via Strava on this link:

https://strava.app.link/hV6MP6dnE3b

We will be launching new fund raising events over the coming months and we are taking on the London to Brighton bike ride on the 13th September.

See you on the road soon!

01/06/2026

Heart Valve Voice has arrived at the British Cardiovascular Society Conference in Manchester.

With top-rated content, direct access to key decision-makers, and strong delegate attendance this is an important place for HVV to be. It attracts over 2,400 cardiovascular healthcare professionals and HVV is there to ensure that patient voices remain central to discussions.

If you’re attending, we’d love to connect and discuss how we can work together to improve care for patients.

To learn more about the event click here: https://heartvalvevoice.com/british-cardiovascular-society-conference/

28/05/2026

What an amazing awareness-raising blazing ride of glory that was! A fantastic thank you to our two two-wheeled heroes Wil and Phill.

They had sunshine, they had rain, and they reached Paris to be met by a staunch group of heart-disease survivors.

This is what we do, we bridge that space between the patient and clinician so the patient voice is HEARD and however long and hard the journey is we get there.

Read Wil’s thoughts about the ride here: https://heartvalvevoice.com/paris-ride-we-made-it/

After 250 miles from Brighton to Paris, I can honestly say this has been one of the most rewarding and emotional things I’ve ever done. What made the finish line so special wasn’t simply reaching Paris, it was seeing the patients waiting for us at the end. Patients who have experienced heart val...

27/05/2026

If you have a heart condition it’s really important to know whether you can drive or not, and the DVLA has recently released new guidelines surrounding aortic stenosis, and it’s pretty good news!

Go and check out more details on our website: https://heartvalvevoice.com/dvla-fitness-to-drive/

New Guidance for Heart Valve Disease The DVLA has recently published updated guidance on assessing fitness to drive, introducing important changes for patients living with heart valve disease and the healthcare professionals who support them. Key Update: Aortic Stenosis and Driving One of the most s...

26/05/2026

Not everyone can still do ballet at 84, but Maggie can! Aortic stenosis wasn't going to stop her when there were plies to do!

Read her story here: https://heartvalvevoice.com/maggie-tortoishells-tavi-story/