06/06/2026
Part 5 - ALL FM ποΈπ
Heyyy! Kelly again π
This one is a bit raw, so bear with me while I try to explain it. I've put my heart on my sleeve sharing what I go through personally and how it affects our day-to-day life. I hate talking about myself, but if it helps even one person feel a little less alone, then it's worth it.
First, I have to give a huge shout out to my amazing husband, Jimmy. Without him, I'd likely still be stuck in that same place feeling sorry for myself. I still have tough days, but I don't stay there like I used to.
So, Functional Neurological Disorder (FND). What is it? In simple terms, it affects how my brain sends and receives signals to the rest of my body, so things don't always work as they should, and no two days are the same. One day, I can be absolutely fine, and the next, my body can shut down and leave me paralysed. I lose my vision, struggle with cognitive and communication difficulties, and my emotions can be all over the place.
It's something we've had to learn to understand and adapt to as a family. That's why we're so grateful for the patience and kindness people show when plans change, or we have to cancel and rearrange sessions at short notice.
For me, one of the biggest things that has helped has been ECEG itself. Being outdoors, getting my hands in the soil, and connecting with people has helped my physical and mental health more than I can put into words. It has given me purpose, a reason to keep pushing forward, and a community that reminds me I'm not facing this alone.
So if you're like me, feeling lost at times, disconnected, or just need a chat, come and find us. That's what community is all about. No judgement, no pressure, just support. π
If you've made it this far, thanks for listening to me waffle on β€οΈβοΈ