The Inflammatory Breast Cancer Network UK

The Inflammatory Breast Cancer Network UK The Inflammatory Breast Cancer Network UK is a registered charity in England & Wales (1177635) and Scotland (SO052303). Don't know what IBC is?

Inflammatory Breast Cancer (IBC) is a rare form of breast cancer with a poorer prognosis that is not typically discovered by mammogram and often occurs prior to standard breast cancer screening age recommendations. Don't feel bad, most people are very uneducated about IBC. Our goal is to bring this "orphaned disease" into the limelight and encourage education and funding of research for this 200 y

ear old form of breast cancer. We need to be educated on this cancer type if we are going to save lives! This is a quick check list of symptoms of IBC which include:

• Breast swelling, where one breast is suddenly larger than the other
• Breast that feels warm to touch and may look infected
• Itching or shooting pain
• A dimpling of the breast skin that looks like an orange peel (peau d’orange)
• Thickening of the skin
• Flattened or discolored ni**le
• Swelling in underarm or only on one side of neck
• Might feel lump, however lumps are not common in IBC. [email protected]" rel="ugc" target="_blank">https://[email protected]

Hey, it’s your monthly breast health check-in! 🧡Just a quick reminder with to pause, check in with your body, and keep...
01/06/2026

Hey, it’s your monthly breast health check-in! 🧡

Just a quick reminder with to pause, check in with your body, and keep your health on track.

Dimpling or 'orange peel' (peau d'orange) is a main sign of IBC, but don’t forget about the other signs too!

If you notice any changes that don’t feel right, make sure to get it checked by your GP.

Knowing what’s normal for your body really matters! 🧡

Holly and George are running to raise money for The Inflammatory Breast Cancer Network - this is a cause close to my hea...
29/05/2026

Holly and George are running to raise money for The Inflammatory Breast Cancer Network - this is a cause close to my heart as has recently affected a member of my family.

Inflammatory Breast Cancer (IBC) is a rare and aggressive form of breast cancer that is not typically discovered by mammogram and often occurs prior to standard screening age recommendations for breast cancer. In the UK it makes up only around 2% of all breast cancers. It can affect both men and women.

Thank you so much for your support x. You can support them by donating today or follow them on the course tomorrow

https://www.justgiving.com/page/holly-townhill-2

Olive’s story reminds us why community matters. Diagnosed with Stage 3 inflammatory breast cancer in 2020, she navigated...
28/05/2026

Olive’s story reminds us why community matters. Diagnosed with Stage 3 inflammatory breast cancer in 2020, she navigated chemo, mastectomy and the emotional weight of an IBC diagnosis — but she didn’t do it alone.

The IBC Network UK helped her feel hopeful, confident and clear‑headed at a time when everything felt overwhelming. Today, Olive is NED and encouraging others to speak up and seek support.

Her words to anyone facing IBC:
“Stay realistic but hopeful, build a support network, and raise your voice.”

If you’d like to support our charity or share your own IBC story, we’d love to hear from you.
🔗 https://ow.ly/ukOQ50YSoSm

June and July are set to be busy months for IBC events.If you are living with IBC and would like to attend one of our in...
19/05/2026

June and July are set to be busy months for IBC events.
If you are living with IBC and would like to attend one of our in-person meet-ups, please visit the IBC Network UK website to apply. Places are limited. https://www.ibcnetworkuk.org/meetups
Representatives from the charity will also be attending the Association of Breast Surgery Conference 2026 in Glasgow on 8–9 June. The conference brings together multidisciplinary teams from across the globe for two days of expert-led education, collaboration, and innovation in breast surgery and care.

Happy International Nurses Day Today is a special opportunity to recognise the compassion, skill, and dedication you bri...
12/05/2026

Happy International Nurses Day

Today is a special opportunity to recognise the compassion, skill, and dedication you bring to your work every single day caring for patients with breast cancer. The care you provide goes far beyond treatment — it brings comfort, dignity, and hope to those who need it most.

From taking extra time to explain a breast cancer diagnosis, to offering thoughtful words during the most vulnerable moments, and providing a supportive guiding hand throughout treatment, your kindness and reassurance make an immeasurable difference.

Thank you for your tireless commitment, your compassion in difficult moments, and the difference you make in so many lives. You are truly appreciated, today and always.

With heartfelt gratitude,
The IBC Network UK on behalf of IBC patients

Save the date: Saturday 23rd May 2026.A World Music event to be held in memory of Carol West and also to raise funds for...
06/05/2026

Save the date: Saturday 23rd May 2026.

A World Music event to be held in memory of Carol West and also to raise funds for The Inflammatory Breast Cancer Network UK. A West Legacy friendly celebration of rhythm and culture. Join us on Saturday 23rd May at the Phoenix Arts Centre in Borden, Hampshire to honour the life and passion of Carol West, a beloved world music tutor. Carol passed away 12 months ago and is sorely missed by all who knew her.

Spend the day drumming, tapping and creating in six incredible workshops: feel the heat of Samba and West African Drumming, groove to Steel Pans, discover the power of Taiko, experience the tranquility of Gamelan, and explore sound with Music Technology.

A fun, hands-on journey for all ages and skill levels. Perfect for the whole family and musical beginners - NO EXPERIENCE NECESSARY! Come and make some noise and keep Carol’s legacy beating on.

Ticket information available to buy now. https://ow.ly/hqPU50YVMUM

Proceeds of ticket sales to be donated to the IBC Network.

Please come along on the 23rd May to help make this event fantastic, or donate to the IBC Network via my Just Giving page attached, or simply share this post.
https://ow.ly/P36w50YVMUP

01/05/2026

Hey 👋 it’s your monthly breast health check‑in.

Make sure you check your breasts regularly and know what is normal for you.

This May, we’re shining a light on mental health and celebrating the incredible nurses who support people affected by inflammatory breast cancer.
Living with or after cancer can take a toll on your emotional wellbeing — and it’s completely valid to feel overwhelmed, anxious or low at times. Checking in with your mental health is just as important as checking your breasts. So this month, take a moment to:
🧡 Check in with your mental health
🍊Reach out if you’re struggling
🧡Thank a nurse who’s made a difference
🍊 Keep getting to know your normal

Our Bristol in‑person meet‑up, hosted by Penny Brohn, is now less than 2 weeks away.If you’d like to attend, please regi...
30/04/2026

Our Bristol in‑person meet‑up, hosted by Penny Brohn, is now less than 2 weeks away.
If you’d like to attend, please register your interest and apply for a place using the link below.

Places are limited, so early applications are encouraged.

📅 Tuesday 12 May 2026

🕐 13:00–17:30

Apply for Bristol comment 'Meet up' below— or view applications for any of our other meet‑ups — here:

🔗 https://ow.ly/PR6V50YSmye

https://www.ibcnetworkuk.org/patient-support

Ready to take on an unforgettable challenge?Swim Serpentine returns to the world‑famous Serpentine in London’s Hyde Park...
30/04/2026

Ready to take on an unforgettable challenge?
Swim Serpentine returns to the world‑famous Serpentine in London’s Hyde Park — and The IBC Network UK has two‑mile charity places available.
Whether you’re an experienced open‑water swimmer or looking for a new adventure, this event is the perfect mix of atmosphere, achievement and pure joy. And for many, it’s also the first step towards the London Classics.

📅 Saturday 19 September 2026
📍 Start Line: Hyde Park

Join us, make memories, and help raise vital awareness of inflammatory breast cancer.
For more information visit https://www.londonmarathonevents.co.uk/swim-serpentine/swim or to secure a charity place, please contact our fundraising team:
📧 [email protected]

Address

The IBC Network UK , 11 Whitborn End
Malvern
WR142XB

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Website

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