Molly Watt Trust - Registered Charity Number 1154853

19/09/2026

Just a mum living with usher syndrome walking through Windsor with her boy!

Alt text molly wearing green checkered dungarees, white t shirt beneath. Cutest little boy, ginger curls, snazzy denim waistcoat and red and white chequered trousers.
Molly is holding hands with her little boy and using her white cane with red stripes indicating she is deafblind.

Molly Watt Trust - Registered Charity Number 1154853

03/09/2026

We all need a reason to smile:
Molly home with Frank, poor poppet had chicken pox so what does she do?
Throw back to speech therapy with a little lesson teaching the alphabet in BSL - so cute Molly Watt living with Ushers Syndrome

28/08/2026

Could you give up some of your time to take part in this survey?you would be helping the Usher community.
At UCL and Moorfields, we are conducting a new survey to gain a better understanding of health, lifestyle and attitudes of people living with Usher syndrome. It is hoped that the results of the survey will help to improve healthcare services provided to people with Usher syndrome.

The survey is open to anyone aged over 18 years with a diagnosis of Usher syndrome. Taking part involves completing an online survey which takes approximately 30-40 minutes.

Participation is voluntary and all responses are confidential and anonymous.

We would greatly appreciate your help with this study. Please forward this survey to any other members of your family or friends who are affected by Usher syndrome.

If you have any questions please contact Dr Paulina Ocieczek on [email protected].

You can find more information and access the survey using this link:

The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.

20/08/2026

Wishing our Molly a wonderful Birthday filled with joy.
Here’s to your next chapter 🎂

14/07/2026

Are your hearing aids auracast compatible?
The ones we provide are!

Brighton station has become the pioneer in using cutting-edge Bluetooth technology to broadcast station announcements.

14/07/2026

We would like to thank all those who continue to support our work.
For those who’ve followed us long term you’ll know we have been working on a project called “Access to Hearing”.
It is our belief that all living with Usher Syndrome, that wear hearing aids should have access to the very best in hearing aid technology.
As a small charity we work hard sourcing these hearing aids, however that’s just the beginning. It is equally important that fitting and after care is the very best for those fitted, we also fund this.
At this precise time we have 6 pairs of hearing aids and a very long list of people in need.
Our frustration is getting 6 people fitted with this life enhancing technology this year.
Fundraising is ongoing to change the lives of 6 people living with usher syndrome / deafblindness, if you can support this cause in any way please contact us directly [email protected]
Thanks in advance

Molly Watt living with Ushers Syndrome

13/07/2026

12/07/2026

They did good!!! So proud of Dad and Chris, one of a few bike rides they’ve both smashed for our little charity. Well done both, and thank you as always for choosing us to support. 🥰💜

First clip description:
Andy and Chris fly through the finish line on their bikes in Blackpool. Molly and Jane cheer loudly as they pass.

Pic description; Andy (left) and Chris (right) stand wearing their well deserved medals and smile. Both dad and Chris wear tops with Molly watt Trust logo, Dad’s tshirt at the front says “Watty”

Last clip description:
Dad and Chris get showered down with a hand held hose, both sound and look visibly refreshed!

12/07/2026

Our “Lycra lads” are over halfway, they left on their bikes from Salford around 8am and will be finishing in Blackpool in (hopefully) a few hours time!! Keep it up boys, you’re both mad but awesome and we appreciate you!!!

Any support for all the hard work these two alone are currently doing for us to continue supporting deaf blind people get the best support and tools please head here, thanks in advance:

https://www.goodhub.com/go/molly-watt-trust-207791?fbclid=IwZnRzaATATkdwZG9mA2ZkaWQWUKYvYHx7hANb62ZTD8A2I-9wIa3J22V4dG4DYWVtAjExAHNydGMGYXBwX2lkCjY2Mjg1NjgzNzkAAR7r7MyhMZ0sMa5qmfRFl9PzcH09ueC0wDJVzVHQEWAaYgdSOyuGg9YXnzutiA_aem_g7LUlBSEqA7vi5pi2fBOoA

05/07/2026

Discover the vibrant Usher Syndrome community on our interactive map. Connect with resilience, support, and shared experiences. Join us at Molly Watt Trust.