We aim to raise awareness of the condition within the medical community and improve patient advocacy. DC Action is a charitable organisation focused on improving the understanding and treatment of Dyskeratosis Congenita (DC) in the UK. We aim to raise awareness of the condition within the medical community, and for patients and their families. Our activities focus on three core areas:
Advocacy
O
ur advocacy work focuses on research and expert care and treatments. Education
Through education, we aim to raise awareness of Dyskeratosis Congenita and telomere repair defects and their management amongst medical professionals, patients and the public. Support
We provide support, coordination and advice for people affected by Dyskeratosis Congenita and telomere repair defects. We would like to hear from patients, their families, and their medical advisors about their experiences, and connect people in the UK who have this disorder in order to build awareness of the condition outside of the community. To contribute and support our cause, please contact us at [email protected].
