Jenson's Journey

21/08/2026

Jenson loves his Well Cool Clothing items which make medical appointments and hospital stays so much easier.

The clever fastenings of poppers / Velcro to open up access to arms and chest area discreetly, enables Jenson to have his Port-a-Cath accessed and for other medical procedures/observations to be taken, without having to remove his whole top.

Lightweight & soft fabrics with jazzy fabrics and designs certainly make them Well Cool.

Our expanding Daywear collection is officially in production!🧡 This is our 2nd sample run following customer feedback.

Building on our nightwear range, our new T-shirts and Recovery Trousers are designed to support comfort, independence and recovery in hospital and at home.
Pictured here in our Recovery clothing, this range offers discreet access for mastectomy, stoma and wound care and are designed to make dressing and moving around during recovery a little easier.

With more healthcare now being delivered in the community and at home, we're continuing to develop patient wear that can support people throughout their care journey.

Because good patient wear should support care while protecting dignity. 🧡

20/08/2026

Since Jenson’s diagnosis, we’ve often been petrified by the future due to uncertainty of his condition,and often reflect upon the past:

- questioned why Jenson has Duchenne

- worried about the future difficulties Jenson will face

- how our days are taken up with either medical admin, issues and appointments and how it always seems to be a fight to obtain what Jenson needs.

With the often overwhelming moments of having a child with Duchenne, it’s so easy to lose sight on the blessings we receive.

It’s making sure we pause, enjoy the special moments and be grateful for what we do have.

Yes Duchenne is an incredibly difficult diagnosis to deal with, but there is joy, special moments and we need to celebrate each day despite uncertainty and difficulties.

It’s finding joy in the moments that matter most. Not wasting time worrying about the past or the future, but enabling ourselves to pause, reflect and enjoy what comes our way each day.

Tonight whilst on holiday in France, we are grateful for the suggestion of watching the night sky with Jenson. Witnessing the natural beauty of the night sky in its glory of sparkling stars, the excitement of seeing some stars shoot across the sky and how peaceful and beautiful that moment becomes.

It’s incredibly refreshing to refocus and enjoy our natural surroundings and beauty. Escapism of the chaos and noise that life brings and witnessing the natural beauty of the stars together.

Times like this help us to refocus and unwind and it’s great we can experience these special moments together.

17/08/2026

Our Superhero Series Superb Saturday!

17/08/2026

Superhero Series Triathlon at Dorney Lake, Windsor was a blast yesterday, celebrating an incredible 10th anniversary of the only UK mass participation disabled sporting event.

We’re forever thankful to our friends introducing us to Superhero Series years ago.

Having a Duchenne Muscular Dystrophy diagnosis was explained in an extremely negative way, with the consultant explaining how Jenson will struggle as time goes on due to his muscles progressively weakening. We remember clearly being told he won’t be able to do much and life would be limiting.

KaPOW BOOM how wrong those conversations were as Jenson has now completed many Superhero Series Tri’s, 10k around the lake and even cycled 5k several times using a specialised trike from GBG Bikes.

Yesterday Jenson was team captain and took part in the celebrity wave. He also was in his element starting one of the waves with an airhorn! 🙉

Met so many friends and Jenson had lots of cheers and encouragement as always from the super sidekicks.

Benji 🐕 had a super wagging tail day socialising with the other super woofs 🐶 🐕

Can’t wait for next year and perhaps you want to join us for this uplifting and buzzing event!

Thanks to all the volunteers and super team - we had a MARVELlous time as always.

12/08/2026

Thanks to Helen & Douglas House for a memorable amazing party last weekend.

This incredible photo taken by the team is absolutely fabulous, capturing an amazing memorable moment that we will treasure forever Brillbury Alpacas 🦙

11/08/2026

Never a dull moment!

Jenson hasn’t taken his life size Lewis Hamilton cardboard cutout on any trips recently!

The pharmacy team often say it would be good if he could visit - so ….. Daddy helped Jenson carry Lewis to the pharmacy (like you do!) 😂