Smile with Shiv

19/04/2026

Honoured and touched that a new research training fellowship opportunity in Duchenne Muscular Dystrophy has been announced in loving memory of our beloved Shiv.

Shiv’s legacy will always live on.

We are confident this fellowship will bring light to those living with Duchenne and their families.

We thank Duchenne UK, Action Medical Research , Joining Jack and all those who have and continue to support Smile with Shiv.



Sejal Thakrar Manoj Thakrar

In loving memory of Shiv Thakrar and his family charity, Smile with Shiv, we are delighted to announce a new Research Training Fellowship (RTF) opportunity in partnership with Action Medical Research.

21/04/2023

IN MEMORY OF OUR DEAR SHIV.
ONE MINUTE CLAP AT LIVERPOOL v NOTTINGHAM FOREST GAME
SATURDAY 22nd APRIL

Asking all Liverpool (and Nottingham Forest fans), if you are at the game tomorrow (or even at home), please join in and clap for one minute at 12 minutes in to the game so our beautiful son Shiv can hear us all in heaven (where he will be watching as well).
Please spread the word far and wide and thank you to all who have already and for your support.

We love you son, we miss you ###



Thank you to Liverpool Echo News for the upcoming article which will be featured later today / tomorrow morning.

Liverpool FC Nottingham Forest F.C. Spirit of Shankly - Liverpool Supporters Union Spion Kop 1906 Duchenne UK LFC Red Indians Owen McVeigh Foundation Muscular Dystrophy UK Action Duchenne Joining Jack

04/03/2023

On route to Duchenne UK’s patient information day in London.

Looking forward to a day of research update’s.

Thanking the team at Duchenne UK for organising today.



Manoj Thakrar Sejal Thakrar

18/12/2022

DUK Webinar - Preparing for emergencies with DMD, 19th December, 6pm.

Please join the webinar, so valuable, particularly at this time of the year.

This webinar is aimed at parents and caregivers and will help you to understand what to do when a child or young person with Duchenne muscular dystrophy falls ill, has an accident or an emergency, including how to manage steroid stress doses.

14/08/2022

100% fatal, no cure, no effective treatment for all!

Smile with Shiv….

1) raises awareness of Duchenne Muscular Dystrophy

2) raises funds for those working to save Shiv’s life and thousands of others living with Duchenne

3) works with the Duchenne community to ensure we have access to potential treatments as early as possible.

Thank you for Smiling with Shiv and supporting us, we can not do this without you, we need you 🙏🏽

Smile with Shiv is a Family & Friends Fund supporting Duchenne UK

29/07/2022

Super proud of Shiv for completing part 2 of the BIND study to understand more on brain involvement and dystrophinopathies.

He did a fantastic job in completing all the tests and was an absolute star during the MRI.

Thank you for giving Shiv the opportunity to contribute in this very important study.



Manoj Thakrar Sejal Thakrar

30/05/2022

Thank you to New Vision Opticians Rayners Lane for putting on yet another fabulous event to .

Thank you all those who attended and those who supported the event.

We are ever so grateful for the continued support we receive from you all. New Vision will continue to fundraise until the end of the month so if you like to purchase a raffle ticket to win 2 nights away at any Hilton or Double Tree hotels please get in touch with the team or us - £5 for 5 raffles.

Thanks so much 🙏🏽

Sejal Thakrar Manoj Thakrar

23/05/2022

We are super excited to announce that New Vision Opticians Rayners Lane will supporting Smile with Shiv at their annual Eyewear Open Day

🗓Sunday 29th May

🕚11am-5pm

Showcasing Exclusive Eyewear in store 😎

Champagne & Canapés🥂

Look forward to seeing you on the day 😊



Manoj Thakrar Sejal Thakrar

21/05/2022

Thank you to LFC Red Indians for their very kind donation of £250 for Smile with Shiv and Duchenne UK in helping our mission to

Manoj Thakrar Sejal Thakrar

15/03/2022

As a rare disease, many medical practitioners won’t be aware of Duchenne muscular dystrophy patients’ specific needs in an accident or emergency, and this can lead to mistreatment.

That's why Duchenne UK have developed the Duchenne UK In Case of Emergency App.

The app allows you to keep a profile of your child's medical needs and emergency contacts, which can be quickly sent to medical staff in the event that they need emergency treatment.

It has been developed as part of the DMD Care UK project, which aims to transform the standards of DMD care across the UK. Duchenne UK are ambitious about its potential to save lives and strongly encourage every DMD parent/caregiver and patient to download it and fill in their/their child's profile.

Download the app on the App Store ( https://apps.apple.com/gb/app/duchenne-uk/id1534324623) or Google Play store ( https://play.google.com/store/apps/details?id=com.duchenneuk.duchenne_app&gl=GB )