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Maisie's Mission To Live

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Maisie's Mission To Live

A family fundraising for life-changing surgery that's not available on the NHS or in the UK

08/07/2026

Hi everyone

Maisie is still very early into recovery as you know she has a lower neck issue so we have to try and keep a eye on it…….if anything worsens we would have to get that sorted back in Spain which will also mean us having to fundraise again unfortunately. She sees slight improvement in some symptoms. But she is having very bad issues with her stomach she had this before surgery so hoping to get this sorted.

Thanks all

16/06/2026

Update. We will now be closing our fundraiser thank you so much! If in the future Maisie needs the lower neck sorted we will unfortunately have to fundraise again! As it’s not something the nhs or uk docs can treat.

Thanks for all your support words won’t ever be enough❤️

Hi everyone,

During our stay in Barcelona, we found out that Maisie has an issue affecting one of the vertebrae in her lower neck (C3-C4) 😒that will need to be addressed at some point in the future. At the moment, we don’t know how urgently this issue will need treatment, and we will be monitoring alongside her recovery. Hopefully this issue won’t need to be addressed for a good while!!

We are hopeful that the upcoming surgery will relieve some of Maisie’s most debilitating symptoms and help her regain function and quality of life. However, we will also need to remain mindful of the lower neck issue and may need to fundraise again in the future to ensure it can be treated before it becomes more severe.

Unfortunately, we did not have the funds available to address the lower neck issue at the same time as the first surgery.

Thank you all for your continued support, kindness, and generosity. It means so much to us and to Maisie. ❤️

14/06/2026

Maisie had her dressing changed today ❤️

Maisie had to fight for her healthcare no one in the uk understands the condtion. She was left to seek help elsewhere and never gave up! Her jugular vein was compressed too which was never even spotted back in the uk. I think it’s so awful that life saving care isn’t available back in the uk

Maisie was struggling to walk think properly having issues with digestion and so much more

Maisie may need another surgery in future for her lower neck level eventually but we are soo grateful Maisie kept fighting and got here

Thanks to all

Forever grateful 🫂

11/06/2026

The pope was in the same city telling mass the same day Maisie was having surgery

What a blessing🙏🏻

10/06/2026

BIG UPDATE:

Maisie had her surgery yesterday thanks to you lovely people. 🙏🏻❤️

08/06/2026

Hi everyone,

During our stay in Barcelona, we found out that Maisie has an issue affecting one of the vertebrae in her lower neck (C3-C4) 😒that will need to be addressed at some point in the future. At the moment, we don’t know how urgently this issue will need treatment, and we will be monitoring alongside her recovery. Hopefully this issue won’t need to be addressed for a good while!!

We are hopeful that the upcoming surgery will relieve some of Maisie’s most debilitating symptoms and help her regain function and quality of life. However, we will also need to remain mindful of the lower neck issue and may need to fundraise again in the future to ensure it can be treated before it becomes more severe.

Unfortunately, we did not have the funds available to address the lower neck issue at the same time as the first surgery.

Thank you all for your continued support, kindness, and generosity. It means so much to us and to Maisie. ❤️

17/05/2026

Hi everyone,

We just want to say a huge thank you to everyone who continues to share Maisie’s story, and to all the incredible people who have donated. We are beyond grateful, and we will never forget your kindness and support.

Maisie is now scheduled to have surgery in June. We are hopeful that this will help reverse her most debilitating daily symptoms, including severe cognitive impairment, constant nausea, and dizziness. Most importantly, we hope it will allow her to be a mum again and start living life outside of these limitations.

There is, unfortunately , a possibility that Maisie may need another surgery in the near future which will mean fundraising again and costing more money🥲. Right now, this first operation is absolutely essential and life saving.

after surgery, Maisie could experience issues in her lower neck, as she currently has two herniated discs. If this happens, it may require additional surgery to remove the discs and extend the fusion. We truly hope this won’t be necessary but it’s a possibility— Maisie is young and just wants to move forward and live her life as fully as possible.

If further treatment is needed, we may have to fundraise again to ensure it can be done quickly, before symptoms become severe again. Maisie wants to just get back to work and living so she can save for future issues but she may not get the chance to save before she needs a second surgery fingers crossed this doesn’t happen. We shouldn’t have to rely on the public to help us fund such life saving important surgeries it’s just disgraceful! And sad that there’s no options because this condition without treatment leads to paralysis and permanent neurological damage. There have been so many cases in the uk and still no change!

As many of you know, the NHS currently does not provide surgery for Maisie’s condition, and private hospitals in the UK are also unable to offer this procedure. This means fundraising remains our only option.

We do hope things will change in the future. There have already been discussions in Parliament, as more people across the UK are being left without treatment for this condition. Without proper care, it can lead to permanent neurological damage and, in the most serious cases, paralysis.

If you would like to continue following Maisie’s journey, we will keep sharing updates on Facebook.

13/05/2026

Please keep sharing and donating. All funds will go towards MAISIES rehabilitation after surgery. There is also a possibility Maisie may needs another surgery in her lower neck after the first surgery which would mean us fundraising again. This is a possibility and we are hoping this won’t need to happen for a good while.

We have come so far this journey has been so hard and even harder for Maisie, not many people understand Maisie’s condition but it’s so debilitating and takes away your whole life unless you can get treatment….. which is extremely expensive as you all know. I can’t believe that it’s not available on the nhs or in the uk. I really hope things will change eventually because it’s such a worry for everyone with this condition as without treatment you worsen and worsen.

Thank you again everyone.

https://gofund.me/e6b86aad

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