Maisie's Mission To Live

08/06/2026

Hi everyone,

During our stay in Barcelona, we found out that Maisie has an issue affecting one of the vertebrae in her lower neck (C3-C4) that will need to be addressed at some point in the future. At the moment, we don’t know how urgently this issue will need treatment, and we will be monitoring alongside her recovery.

We are hopeful that the upcoming surgery will relieve some of Maisie’s most debilitating symptoms and help her regain function and quality of life. However, we will also need to remain mindful of the lower neck issue and may need to fundraise again in the future to ensure it can be treated before it becomes more severe.

Unfortunately, we did not have the funds available to address the lower neck issue at the same time as the first surgery.

Thank you all for your continued support, kindness, and generosity. It means so much to us and to Maisie. ❤️

27/05/2026

In a few weeks, Maisie will undergo surgery in the hope of saving her quality of life and reversing some of her symptoms. Maisie is absolutely terrified and nervous, but she knows this is her only hope of stopping the suffering she has endured for the past year and a half.

She has faced debilitating symptoms every single day, and the surgery she needs is not available on the NHS or anywhere else in the UK. As many of you know, she has had to fight tirelessly for her health and share her story publicly just to access the specialist treatment she needs.

There are so many people suffering from these conditions with little to no support, while the only specialists available are in Spain and America, costing families thousands.

We are incredibly grateful to everyone who has shared, donated, and supported Maisie throughout this journey. We truly hope this surgery gives her some of her life back — even simple things like being able to go for a small walk again, instead of spending her days laying down with severe cognitive issues, nausea, and many other debilitating symptoms.

Recovery will take around a year, and we do not yet know which symptoms will improve as healing progresses.

As we mentioned before, there is also a possibility that Maisie may eventually need further surgery. She has herniated discs, and the fusion could place additional pressure on them, which may mean extending the fusion lower in the future. If that happens, we would need to act quickly with fundraising again to prevent her becoming as unwell as she is now.

But right now, we are trying not to think too far ahead. Maisie has already been through more than enough, and she deserves the chance to finally live her life again.

Thank you again for all of your support. We will continue to update everyone throughout Maisie’s recovery.

❤️‍🩹

17/05/2026

Hi everyone,

We just want to say a huge thank you to everyone who continues to share Maisie’s story, and to all the incredible people who have donated. We are beyond grateful, and we will never forget your kindness and support.

Maisie is now scheduled to have surgery in June. We are hopeful that this will help reverse her most debilitating daily symptoms, including severe cognitive impairment, constant nausea, and dizziness. Most importantly, we hope it will allow her to be a mum again and start living life outside of these limitations.

There is, unfortunately , a possibility that Maisie may need another surgery in the near future which will mean fundraising again and costing more money🥲. Right now, this first operation is absolutely essential and life saving.

after surgery, Maisie could experience issues in her lower neck, as she currently has two herniated discs. If this happens, it may require additional surgery to remove the discs and extend the fusion. We truly hope this won’t be necessary but it’s a possibility— Maisie is young and just wants to move forward and live her life as fully as possible.

If further treatment is needed, we may have to fundraise again to ensure it can be done quickly, before symptoms become severe again. Maisie wants to just get back to work and living so she can save for future issues but she may not get the chance to save before she needs a second surgery fingers crossed this doesn’t happen. We shouldn’t have to rely on the public to help us fund such life saving important surgeries it’s just disgraceful! And sad that there’s no options because this condition without treatment leads to paralysis and permanent neurological damage. There have been so many cases in the uk and still no change!

As many of you know, the NHS currently does not provide surgery for Maisie’s condition, and private hospitals in the UK are also unable to offer this procedure. This means fundraising remains our only option.

We do hope things will change in the future. There have already been discussions in Parliament, as more people across the UK are being left without treatment for this condition. Without proper care, it can lead to permanent neurological damage and, in the most serious cases, paralysis.

If you would like to continue following Maisie’s journey, we will keep sharing updates on Facebook.

13/05/2026

Please keep sharing and donating. All funds will go towards MAISIES rehabilitation after surgery. There is also a possibility Maisie may needs another surgery in her lower neck after the first surgery which would mean us fundraising again. This is a possibility and we are hoping this won’t need to happen for a good while.

We have come so far this journey has been so hard and even harder for Maisie, not many people understand Maisie’s condition but it’s so debilitating and takes away your whole life unless you can get treatment….. which is extremely expensive as you all know. I can’t believe that it’s not available on the nhs or in the uk. I really hope things will change eventually because it’s such a worry for everyone with this condition as without treatment you worsen and worsen.

Thank you again everyone.

https://gofund.me/e6b86aad

03/05/2026

Please keep sharing and donating. All funds will go towards MAISIES rehabilitation after surgery. There is also a possibility Maisie may needs another surgery in her lower neck after the first surgery which would mean us fundraising again. This is a possibility and we are hoping this won’t need to happen and if it is to happen we are hoping it won’t be for a good while.

Hi everyone, my name is Rebecca and I am fundraising on behalf of my partner Maisi… Rebecca Mcgavin needs your support for Help Maisie Get Life-Saving Surgery

28/03/2026

Craniocervical instability (CCI) is a medical condition characterized by excessive movement at the craniocervical junction—the area where the skull (cranium) meets the cervical spine (neck). This instability can compress or stretch critical neurological structures, such as the brainstem, spinal co...

14/03/2026

💃 🕺

13/03/2026

Thank you so much to everyone who came tonight to MAISIES fundraising event.

We are so so grateful for all your donations we will never forget your kindness and support

Maisie is so grateful to each and every single one of you helping her get the treatment she desperately needs. X

We are so close to target now!