KLS Support UK, Kleine-Levin Syndrome Support UK

08/09/2024

A big thank you to everyone who attended our family day today, both in person and on line.

It was lovely to see you all.

A special thanks to trustee Caron Krieger for her hard work in organising the event.

05/06/2024

We have a big ANNOUNCEMENT: The Kleine-Levin Syndrome Foundation welcomes Jason Fisher as our first executive director!

In addition to being an experienced non-profit leader and government policy advisor, Jason is an impactful and empathic advocate for rare disease patients and their families as a parent to a child with a rare chromosome 18 abnormality.

You can read more about Jason in the press release we sent out: https://www.prnewswire.com/news-releases/kleine-levin-syndrome-foundation-welcomes-executive-director-302159439.html

We’re very excited for all that lies ahead!

The KLS Foundation board,
Steve, Dani, Jenny, Gaylene, Caron, Arielle, and Dick

02/06/2024

The 2024 Beyond Sleepy conference starts TOMORROW in Houston, Texas.⁠ We’ll see you there!

You can still register to attend the conference virtually here: https://whova.com/portal/registration/hyper_202405/

01/06/2024

The KLS Foundation are attending the Beyond Sleepy Conference in Texas

20/03/2024

Producer Tobin Low finds a group of people with a special relationship with the idea of catching up. (10 minutes) Visit KLS Foundation for more on Klein-Levine Syndrome.

15/03/2024

People stuck in the lag time between the world suddenly changing and being able to see it.

12/09/2023

Thank you to all those who attended our Family Day, whether in person or virtually, on 10th September. It was held at Guy’s Hospital in London and as you can see from the photograph we were treated to fabulous views from the Robens Suite. If you were unable to attend then look out for the next newsletter which will have various links to information that was discussed during the meeting.

26/07/2023

Please join us at the KLS Support UK Hybrid Family Day on 10 September 2023 in London. For further details and to register please scan the QR code.

12/05/2023

The KLS Foundation are holding a forum in Indianapolis ( at the Hypersomnia Foundation beyond sleepy conference) - the main KLS speaker event will be with world leading KLS expert Dr Emmanuel Mignot and will also be a virtual session. It will take place at 5pm on Sunday 4th June. If you would like to attend this session you need to register below to get the link. Virtual attendance is free.

2023-06-02, Indianapolis, IN

28/02/2023

KLS Support UK supports those affected by the rare disease Kleine Levin Syndrome, raises awareness of KLS and supports research.

30/11/2022

THANK YOU to everyone who has made a donation to help the KLS Foundation fund Dr. Isabelle Arnulf’s KLSresearch! The results will help generate new understandings about KLS.

You can donate here: klsfoundation.org/donations
THANK YOU!
WE ARE SO GRATEFUL TO YOU!

30/11/2022