Autistica

Autistica The UK's leading autism research and campaigning charity. Building happier, healthier, longer lives through autism research

Join us for the Cambridge Half Marathon! Steeped in history, this stunning (and flat) half-marathon takes in the sights ...
30/09/2026

Join us for the Cambridge Half Marathon!

Steeped in history, this stunning (and flat) half-marathon takes in the sights and sounds of one of the world's most beautiful university towns and surrounding countryside.

Date: 14 March 2027
Charity place: £25 registration fee and a £300 fundraising target
Support from us: Running vest, fundraising pack, dedicated event manager

Join and run for a world that is happier and healthier for all autistic people: https://www.autistica.org.uk/get-involved/events/cambridge-half-marathon-2027

On Friday, The Guardian published an article about regional NHS teams introducing minimum waits of up to two years for a...
28/09/2026

On Friday, The Guardian published an article about regional NHS teams introducing minimum waits of up to two years for autism and ADHD assessments.

The article cites a lack of funding behind the decision, and highlights the awful and unfair impact these waits will have on people referred with suspected autism and ADHD.

Responding, Autistica's Director of External Affairs Rebecca Sterry said:

Introducing a two-year minimum wait for assessment is a mistake. We know that early diagnosis and support lead to better outcomes. Diagnosis is important as a first step to accessing support while helping people make sense of their experiences and understand themselves. Making people wait for an assessment does nothing to help them or reduce demand for NHS care.

Our 'Not a Priority' report from 2024 highlighted the postcode lottery across the UK, which will get worse if steps to ration care are not reversed.

Read the report: https://www.autistica.org.uk/blog/not-a-priority

This decision could push children out of school, adults out of work, and drive people unnecessarily into crisis support services. Instead, all efforts should go towards supporting those on dangerously long waiting lists, speeding up diagnosis, and helping people to study, work, and live independently.

16/09/2026

Today would've been the 93rd birthday of our founder, Dame Stephanie "Steve" Shirley, who died last year.

To honour her legacy, we’re launching the Steve Shirley Pioneers Fund: a fund inspired by Steve’s belief in bold ideas, practical solutions and real-world impact for the autistic community.

We’re inviting supporters to join our six Founding Pioneers by pledging £10,000 or more, helping us carry forward Steve’s vision and build a better, fairer world for autistic people.

Find out more: https://www.autistica.org.uk/about-us/steve-shirley-pioneers-fund

Beat launched a new report last week, 'Not Designed for Me: Transforming Eating Disorder Support for Autistic People wit...
14/09/2026

Beat launched a new report last week, 'Not Designed for Me: Transforming Eating Disorder Support for Autistic People with Eating Disorders'.

Autistic people are twice as likely to develop an eating disorder, yet Beat have found that 6 in 10 autistic people with an eating disorder said their treatment was not adapted to take account of their needs.

We're supporting Beat's campaign to have more individual-centred and neurodivergent-inclusive care in eating disorder treatment, to make sure that Autistic individuals can get the support that they need - and deserve.

Read the full report here: https://www.beateatingdisorders.org.uk/about-beat/policy-work/not-designed-for-me-transforming-eating-disorder-support-for-autistic-people/

Last year, a House of Lords Committee published a report making it clear: autistic people and their families need a bett...
09/09/2026

Last year, a House of Lords Committee published a report making it clear: autistic people and their families need a better Government strategy, and they need it urgently.

Since then, Autistica and other national charities have been calling on the Government to set out a clear timeline for delivering that strategy.

That's why we're backing Baroness Rock's call for the Government to bring forward a new autism strategy before the end of this year.

Read the letter here: https://committees.parliament.uk/publications/54781/documents/304260/default/

Every day without a strategy is another day autistic people and their families are left without the support they deserve.

17/08/2026

We are all deeply saddened by the death of Professor Jason Arday. Please watch this message from our CEO, Ed Archer.

Going forward, we are committed to reaching out to journalists to offer support in understanding research on autism and in learning about safe, respectful ways to talk about autistic people.

We will not accept autistic people being dehumanised in ways that can lead to tragic outcomes, like the death of Jason.

As an autism organisation, we have the expertise to provide specific context and research on autism. We fully support and endorse the efforts of the organisations with expertise in anti-racism, discrimination and inequality, doing the much-needed work required.

If you see unfair treatment of autistic people in the press, please tag us. We will reach out.

We've been trialling a new tool designed to support children in schools who don't yet have a diagnosis, or who are still...
13/08/2026

We've been trialling a new tool designed to support children in schools who don't yet have a diagnosis, or who are still waiting for one.

Rather than focusing only on diagnosis, the tool builds a personalised strengths-and-needs profile for each child. Families, schools and professionals can use this shared picture to give timely support based on where the child is right now.

This feasibility trial is an important first step. It will help build the evidence base needed to support a larger research project, one that can fully shows the tool's impact and potential to change how we support children early.

Learn more about the research: https://www.autistica.org.uk/our-research/strengths-and-needs-autism-adhd-report

Today marks a year since our wonderful Founder Dame Stephanie 'Steve' Shirley, passed away. She leaves behind an incredi...
09/08/2026

Today marks a year since our wonderful Founder Dame Stephanie 'Steve' Shirley, passed away.

She leaves behind an incredible legacy for autistic people and their families, of support, research and policy change, that will continue to change lives for generations to come.

We feel so grateful to have been supported by her all these years, and honoured that she left the majority of her estate to Autistica. This generous gift will enable us to help more autistic people and plan for an impactful, sustainable future.

The 2027 Double TCS London Marathon want to support people with a huge range of disabilities and long-term health condit...
07/08/2026

The 2027 Double TCS London Marathon want to support people with a huge range of disabilities and long-term health conditions to take part in their event.

You can submit your application for a Disability place using this link by 24 August 2026: https://ow.ly/raf750ZxFQt. You can see the full terms and conditions there.

If you are offered a place, consider joining ! Whether you are an experience runner or it’s your very first marathon, as part of Team Autistica you'll be joining a truly special, supportive, neurodivergent-friendly group, and we'll cheer you on every step of the way.

We need your help! We're exploring different ways to improve support for autistic and ADHD children. We want to understa...
03/08/2026

We need your help!

We're exploring different ways to improve support for autistic and ADHD children. We want to understand how strengths and needs assessments can give support in school before a child has a diagnostic assessment.

Over the next two years, we're completing several research activities and we're are looking for people to register their interest to take part.

- You are: A parent or carer of children aged 2 - 18 years who have been identified in school as needing additional support, but do not have either an ADHD or autism diagnosis.

- What you'll do: As a parent or carer, you may be asked to complete a strengths and needs assessment about your child and give feedback on your experiences.

Register your interest to take part: https://autistica.qualtrics.com/jfe/form/SV_1NOLZvTxfnoGpUy

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