Sarcoidosisuk

Sarcoidosisuk We are the UK's sarcoidosis charity. We provide support and information to anyone affected by sarcoid SarcoidosisUK is the UK’s national sarcoidosis charity.

We provide information and support to anyone affected by sarcoidosis, and also raise awareness and fund research into finding a cure. Please visit www.sarcoidosisuk.org to find out more or get in touch on 020 3389 7221 or [email protected]. Join our active Facebook Group to share information and get support from the sarcoidosis community:
https://www.facebook.com/groups/sarcoidosisuk/

Schedu

le a call with our Nurse Helpline: www.sarcoidosisuk.org/support/telephone-helpline/. Find your local SarcoidosisUK Support Group: www.sarcoidosisuk.org/support/support-groups/. Sign up for our free monthly Newsletter: www.sarcoidosisuk.org/about/newsletter/. We are 100% reliant on donations: www.sarcoidosisuk.org/donate/. Thank you for your support!

SarcoidosisUK is looking for a new Chair of Trustees to lead our Board and support the next stage of our development. We...
18/08/2026

SarcoidosisUK is looking for a new Chair of Trustees to lead our Board and support the next stage of our development.

We are seeking someone with ambition and strategic experience to continue the amazing support for those affected by sarcoidosis and drive forward progress to future proof the Charity.

This is a significant voluntary role for someone with strong board or senior governance experience who can lead the charity and act as ambassador.

Applications close on the 14th September so click the link below to find out more and apply today! Please share this post with anyone you think may be right for the role 📣

https://www.sarcoidosisuk.org/wp-content/uploads/2026/07/Chair-of-Trustees-24-07-2026.pdf

Help to support patients like Cathy 📣Our Nurse Helpline is a free service, offering vital support to sarcoidosis patient...
11/08/2026

Help to support patients like Cathy 📣

Our Nurse Helpline is a free service, offering vital support to sarcoidosis patients and their loved ones. All of our nurses have personal and/or professional experience of sarcoidosis, so callers can talk to someone who truly understands them 💙

We need your help to keep services like our Nurse Helpline running Please consider making a donation today: https://www.sarcoidosisuk.org/donate/donate-to-sarcoidosisuk/

Thank you!

Quote reads:
"SarcoidosisUK was there when no one else was. Nurse Jo was fantastic and helped me understand the condition a bit better and made me feel less alone. For anyone who needs them, I cannot recommend the Nurse Helpline enough." - Cathy

A big thank you to our amazing supporters who raise free funds for us on .If you're not signed up yet, please join toda...
10/08/2026

A big thank you to our amazing supporters who raise free funds for us on .

If you're not signed up yet, please join today and you can raise free donations for SarcoidosisUK every time you shop online this summer. All the big names like TUI, John Lewis & Partners, Argos, Just Eat and many more are ready to make a free donation at no extra cost to you.

Please sign up today and we could win a massive £5,000 donation: https://join.easyfundraising.org.uk/sarcoidosisuk/G8X4GP/c2s/ZdU7Z020/CE955/textcopy/

Have you seen our 14 sarcoidosis factsheets❓📢These range from general sarcoidosis information, to topics such as vitamin...
08/08/2026

Have you seen our 14 sarcoidosis factsheets❓📢

These range from general sarcoidosis information, to topics such as vitamin D and calcium, pregnancy, and fatigue.

These are a fantastic resource to help educate anyone affected by sarcoidosis and to share with family and friends.

All of these factsheets are free to read, so take a look today: https://www.sarcoidosisuk.org/information-hub/factsheets/

Join us for the next Sheffield Support Group meeting taking place on Thursday 13th August at 1pm!This is an in person ev...
07/08/2026

Join us for the next Sheffield Support Group meeting taking place on Thursday 13th August at 1pm!

This is an in person event and is open to anyone in Sheffield and the surrounding areas.

If you would like to join, please contact [email protected] for more details!

We have an exciting opportunity to join the SarcoidosisUK team as our Fundraising Executive! 📣If you're looking for a ro...
30/07/2026

We have an exciting opportunity to join the SarcoidosisUK team as our Fundraising Executive! 📣

If you're looking for a role where you can make a real impact, this is for you. You will help to grow our fundraising, support our sarcoidosis community, manage campaigns and events, create engaging digital content, and play a key role in funding vital research and support for people affected by sarcoidosis.

📍 Hybrid working (two days per week in London)
💼 Full-time, 9am-5pm
📅 Applications close at 12pm on Monday 17th August

Find out more here:https://www.sarcoidosisuk.org/wp-content/uploads/2026/07/Fundraising-Executive-JD-24-07-2026.pdf

You can apply by sending your CV and covering letter to [email protected]

Please share this post with anyone you think might be interested 💙

Cathy has shared her sarcoidosis story with us 📣After a suspected brain tumour, Cathy was diagnosed with sarcoidosis and...
29/07/2026

Cathy has shared her sarcoidosis story with us 📣

After a suspected brain tumour, Cathy was diagnosed with sarcoidosis and prescribed steroids just before the COVID-19 lockdown. Her sarcoidosis affects her left eye, lungs and skin and she said:

"My biggest frustration is the lack of understanding both in life generally but particularly in the medical profession of this disease and I am grateful for all the charity does to promote awareness."

Click here to read Cathy's journey with sarcoidosis: https://www.sarcoidosisuk.org/cathy-sarcoidosis-story/

Darryn and Francesca have hosted their second Live Music event in loving memory of Jacqueline Byrne 💙There was live musi...
24/07/2026

Darryn and Francesca have hosted their second Live Music event in loving memory of Jacqueline Byrne 💙

There was live music, with performers including her son, daughter and daughter in law and a quiz and raffle with some incredible prizes. Their continued support has raised an incredible £4,021.25!!

Thank you so much for your support, it looked like an electric night and the money raised will make such a big difference to the work we do ✨

Have you been inspired by their fundraising? We'd love to hear from you! Send us a message or email [email protected] to get your fundraising started!!

has a simple but urgent message: access delayed is potentially access denied 🧠Our 2025 Research Innovation award was g...
22/07/2026

has a simple but urgent message: access delayed is potentially access denied 🧠

Our 2025 Research Innovation award was granted to Dr Claire Rice and her team at the University of Bristol who are looking at less invasive ways to diagnose neurosarcoidosis using tears.

We are hoping that this grant of £59,992 will help to improve the diagnosis of neurosarcoidosis in patients, leading to earlier diagnosis and access to treatment. You can watch a video with Dr Claire Rice explaining her research: https://www.sarcoidosisuk.org/research-innovation-award-2025-awarded/

To help us to continue to fund vital sarcoidosis research and provide support to sarcoidosis patients, please consider making a donation to our work: https://www.sarcoidosisuk.org/donate/donate-to-sarcoidosisuk/

Today is 🧠Sarcoidosis affects the nervous system in 5% to 15% of all patients (neurosarcoidosis). Neurosarcoidosis is ...
22/07/2026

Today is 🧠

Sarcoidosis affects the nervous system in 5% to 15% of all patients (neurosarcoidosis). Neurosarcoidosis is therefore uncommon but can be severe. Symptoms, diagnosis and treatment options all depend on which part of the nervous system is inflamed.

Share these infographics to help raise awareness of some of the symptoms associated with neurosarcoidosis this World Brain Day!

Find out more about neurosarcoidosis here: https://www.sarcoidosisuk.org/information-hub/sarcoidosis-nervous-system/

Address

214 China Works, 100 Black Prince Road
London
SE17SJ

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+ 44 20 3389 7221

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