Pitt Hopkins UK

23/07/2026

Arron, Thorne and Gary are in the middle of an incredible challenge of climbing the three peaks over three days to raise money for Pitt Hopkins UK! This an absolutely amazing challenge. Please read their story here and consider donating or sharing! They are presently at 85% of their fundraising goal!

This year, Our client is preparing to take on one of the UK’s… Lois Chappel needs your support for Arron takes on the Three Peak Challenge for Pitt Hopkins UK

23/07/2026

CamRARE’s RAREsummit is going global

CamRARE know that attending events in person isn't always possible, which is why Rare Summit 2026 is going to be a hybrid event - giving you the flexibility to join us from around the world.

The virtual experience has been designed to help you connect, collaborate and engage, not just watch, from afar.

RAREsummit will be using Swapcard to allow you to:
• Connect and network with delegates
• Join online discussions
• Explore the virtual exhibition
• Meet exhibitors
• Browse online poster presentations

And Slido to enable live interaction with:
• Polls
• Audience questions
• Q&A sessions

And of course, you'll have live-stream access to all main auditorium presentations and panel discussions, so you won't miss the biggest conversations of the summit.

Plus, join a dedicated virtual Research Spotlight session featuring a series of short research presentations available exclusively to online attendees.

Whether you join CamRARE in Cambridge or online, RAREsummit26 will be bringing the rare community together, wherever you are.

Tickets: https://raresummit26.eventbrite.co.uk/?aff=mediapartners

21/06/2026

Hoping everyone has a fantastic day!

31/05/2026

Today is the big day! Good luck to all the runners! 😃
Please check out their fundraising page!

“Team Lila“ are back again to take part in the Manchester 10k, running in memory of our amazing, gorgeous and unforgettable daughter; Lila. It's a gre

20/05/2026

It’s wonderful to be able to share these great photos of Theo, Bjorn and Tom at the Jurassic Coast Ultra Challenge!
Congratulations on this amazing accomplishment! Thank you for raising awareness of Pitt-Hopkins syndrome and for the incredible amount of £4,656.25 that you have raised for Pitt Hopkins UK!

16/05/2026

Our long awaited 10th year anniversary newsletter will be dropping into subscribed email boxes tomorrow morning! Have you signed up for our newsletter?
If you haven’t fill in this form now:

http://eepurl.com/g7hp81

16/05/2026

The weekend is finally here! Theo, Tom and Bjorn are taking on the Jurassic Coast Ultra Challenge for Forest and for Pitt Hopkins UK!
They have smashed their fundraising goal but do please still share the link!

In May, myself and my friends Bjorn and Tom are lacing-up our trail shoes to take on the Jurassic Coast Ultra Challenge 100km event. We're doing it for

01/05/2026

It is May this means it’s just two weeks until Theo, Tom and Bjorn take on the amazing Jurassic Coast Ultra Challenge! They would love to reach their fundraising target Please check out their site and see how close they are and consider donating or sharing.

In May, myself and my friends Bjorn and Tom are lacing-up our trail shoes to take on the Jurassic Coast Ultra Challenge 100km event. We're doing it for

05/04/2026

Happy Easter, everyone from Pitt Hopkins UK 🥰🐣🥙