Pitt Hopkins UK

01/05/2026

It is May this means it’s just two weeks until Theo, Tom and Bjorn take on the amazing Jurassic Coast Ultra Challenge! They would love to reach their fundraising target Please check out their site and see how close they are and consider donating or sharing.

In May, myself and my friends Bjorn and Tom are lacing-up our trail shoes to take on the Jurassic Coast Ultra Challenge 100km event. We're doing it for

05/04/2026

Happy Easter, everyone from Pitt Hopkins UK 🥰🐣🥙

08/02/2026

Please check out this page on Instagram that Theo, Bjorn and Tom have set up to share their amazing challenge!😀

4 Followers, 9 Following, 2 Posts - See Instagram photos and videos from Jurassic Coast Ultra Marathon for Forest and Pitt Hopkins UK ()

31/12/2025

Wishing everyone a very Happy New Year!

09/09/2025

CamRARE’s unique biannual RAREsummit is back for 2025! �This one-of-a-kind event brings together scientists, researchers, tech innovators, policy-makers, funders, and patient organisations to connect, collaborate, and drive change.
Did you know the CamRARE charity was born from the very first RAREsummit in 2015? �That’s why this year’s summit will look back on:�✨ A decade of progress. �🚀 A future of possibilities. �📢 We are proud to be media partners for the event and invite you to watch and share the highlights film from RAREsummit23 to get a taste of what’s in store!!
https://youtu.be/2tnxDwDAAhw?si=1hs_-n1EzcVwWfTP

Please note this year, the date for the RAREsummit is Thursday, 6th November 2025

Watch the highlights of talks and exhibits and hear from those who attended in our short highlights reel from 's RAREsummit23. This con...

02/09/2025

T-SHIRTS, HOODIES, HATS, AND BAGS COMING SOON!!!!!
Look out for details on how to order our t-shirts, hoodies, hats, and bags in time for Pitt-Hopkins syndrome awareness day 2025.