International Alliance of Patients' Organizations

International Alliance of Patients' Organizations IAPO is a pioneer alliance supporting and empowering patient organisations worldwide since 1999.

22/05/2026

Today at : IAPO led and delivered a Constituency Statement under agenda item 12.5: Primary Health Care.

Read by CEO Dani Mothci, the statement highlighted three priorities as the 2027 High-Level Meeting on UHC approaches - meaningful engagement, person-centred integration and accountability with people-centred indicators.

Read the full statement here:

The statement was delivered by IAPO on behalf of International Society for Biomedical Research on Alcoholism,
WaterAid International, Anesvad Foundation, Global Network of People Living with HIV, World Heart Federation, Worldwide Hospice Palliative Care Alliance, The Task Force for Global Health, International Association for Hospice and Palliative Care, World Federation of Hemophilia, World Federation of Societies of Anaesthesiologists, International Association of Communication Sciences and Disorders, Health Action International, World Obesity Federation, International Diabetes Federation, Women in Global Health, Global Health Partnerships (formerly THET), Global Healthcare Information Network CIC, Multiple Sclerosis International Federation, Sightsavers, World Federation of Chiropractic and International Society for Telemedicine and eHealth.

22/05/2026

Today at : IAPO led and delivered a Constituency Statement under agenda item 12.5: Primary Health Care.

Read by CEO Dani Mothci, the statement highlighted three priorities as the 2027 High-Level Meeting on UHC approaches - meaningful engagement, person-centred integration and accountability with people-centred indicators.

Read the full statement here: https://www.iapo.org.uk/node/15758

The statement was delivered by IAPO on behalf of International Society for Biomedical Research on Alcoholism,
WaterAid International, Anesvad Foundation, Global Network of People Living with HIV, World Heart Federation, Worldwide Hospice Palliative Care Alliance, The Task Force for Global Health, International Association for Hospice and Palliative Care, World Federation of Hemophilia, World Federation of Societies of Anaesthesiologists, International Association of Communication Sciences and Disorders, Health Action International, World Obesity Federation, International Diabetes Federation, Women in Global Health, Global Health Partnerships (formerly THET), Global Healthcare Information Network CIC, Multiple Sclerosis International Federation, Sightsavers, World Federation of Chiropractic and International Society for Telemedicine and eHealth.

📣We’re getting ready to begin our next side event here at the 79th World Health Assembly!Starting at 12:00pm (CEST) and ...
20/05/2026

📣We’re getting ready to begin our next side event here at the 79th World Health Assembly!

Starting at 12:00pm (CEST) and held in collaboration with The International Cerebral Palsy Society, this session will bring together civil society, WHO representatives and partners to help inform a more inclusive approach to global health governance and advance progress toward universal health coverage

There’s still time to join us virtually and contribute to this important conversation. Register now to take part - we look forward to welcoming you shortly!

🔗Register now: https://docs.google.com/forms/d/e/1FAIpQLSe0-Y2PG7838_TJCEjiP5c0nK0jGwcZpWao86HHQk_aRFVHEA/viewform

📣Starting soon! We’re here at the 79th World Health Assembly, and our first side event 'The Social Participation Village...
19/05/2026

📣Starting soon! We’re here at the 79th World Health Assembly, and our first side event 'The Social Participation Village: Where Every Voice Shapes Health Governance' begins at 9:30am (CEST).

There’s still time to join us virtually for an engaging discussion featuring insights from WHO and civil society reporting, as well as a collaborative session to co-create an immersive Social Participation Stakeholder Map.

Register now and be part of the conversation shaping more inclusive health governance. We look forward to welcoming you shortly!

🔗Register here: https://docs.google.com/forms/d/e/1FAIpQLSdKQ_6Npn22fytmIX6xpxJ7D9BzaGGUvNkHH42wkuRJceTDTg/viewform

📣There's still time to join us at the 79th World Health Assembly next week - both in person and online. IAPO's side even...
14/05/2026

📣There's still time to join us at the 79th World Health Assembly next week - both in person and online.

IAPO's side event 'The Social Participation Village: Where Every Voice Shapes Health Governance' is taking place Tuesday 19 May, and we'd be delighted for you to join us!

This interactive side event will bring together civil society, patient organisations, and global health stakeholders to:
🌎 Share progress on implementing the WHA resolution on social participation
🌎 Exchange insights from WHO & civil society reporting
🌎 Co-create a Social Participation Stakeholder Map

🔗You can register here: https://docs.google.com/forms/d/e/1FAIpQLSdKQ_6Npn22fytmIX6xpxJ7D9BzaGGUvNkHH42wkuRJceTDTg/viewform

This event is organised in collaboration with CSEM for UHC2030, Global Health Council, Save the Children UK, The George Institute for Global Health, and SPHERE, the Social Participation for Health Engagement, Research, and Empowerment

The 79th World Health Assembly is fast approaching, and we’re looking forward to an exciting week of discussion, collabo...
08/05/2026

The 79th World Health Assembly is fast approaching, and we’re looking forward to an exciting week of discussion, collaboration, and action for patient-centred healthcare.

On the side lines of this year’s Assembly, IAPO will be hosting and taking part in a number of engaging side events bringing together global health leaders, patient advocates, and partners from around the world.

We’d be delighted for you to join us - either in person or online!

📣 The Social Participation Village: Where Every Voice Shapes Health Governance
📅 Tuesday 19 May, 9:30-11:00 (CEST)
🌍 Organised with CSEM for UHC2030, Global Health Council, Save the Children UK, The George Institute for Global Health
🔗 Register here: https://docs.google.com/forms/d/e/1FAIpQLSdKQ_6Npn22fytmIX6xpxJ7D9BzaGGUvNkHH42wkuRJceTDTg/viewform

📣 Civil Society Shaping the WHO Civil Society Engagement Strategy: Opportunities for Meaningful Participation in Global Health Governance
🌍Organised with Cerebral Palsy International on behalf of the World Health Organization (WHO) Civil Society Commission
📅 Wednesday 20 May, 12:00-13:30 (CEST)
🔗 Link to register to follow

📣 The Value Collection: Stories Shaped by Flexible, People-centred Primary Health Care
📅 Wednesday 20 May, 18:30-20:30 (CEST)
🌍 Held in collaboration with UNAIDS, Harvard Medical School Program in Global Primary Health Care and Roche
🔗 RSVP here: https://thevaluecollection.rsvpify.com/


🚀 The Personalised Cancer Care Alliance (PCCA) Position Paper 2.0 is now officially launched! 🚀 ✨ Thank you to everyone ...
07/05/2026

🚀 The Personalised Cancer Care Alliance (PCCA) Position Paper 2.0 is now officially launched! 🚀

✨ Thank you to everyone who joined us for the virtual launch event this week, and was part of this shared milestone.

The Position Paper 2.0 builds on the PCCA first Position Paper published in 2022, and recognises that the next stage of advocacy must move from theory to practice. It demonstrates a shift from conceptual advocacy to implementation-driven action, grounded in real-world evidence, lived experiences, and multi-stakeholder collaboration.

The paper is structured in three chapters and captures how the recommendations from the first Position Paper have been tested in real-world contexts through two pilot initiatives undertaken in 2024: one in Morocco and one across the Gulf Cooperation Council (GCC). It also introduces the work of the Gender Working Group, established to bring a stronger gender equity lens to personalised cancer care.

📽️ If you missed the launch, you can rewatch the event here: https://www.youtube.com/watch?v=OOWYDAQvYc8

🔗 You can also download and explore the PCCA Position Paper 2.0 here: https://www.iapo.org.uk/personalised-cancer-care-alliance

Thanks also to all our speakers, and all the patient organisations who led on this important work!

The future of care is not just about outcomes. It is about what it makes possible.‘The Value Collection’ brings this to ...
05/05/2026

The future of care is not just about outcomes. It is about what it makes possible.

‘The Value Collection’ brings this to life through an immersive exhibition of real stories and personal objects, featuring global perspectives on the value of flexible, people-centred care.

At IAPO, we believe care should be shaped around people’s lived realities and the difference this makes in practice.

Join us at the International Museum of the Red Cross and Red Crescent in Geneva on 20 May, 6:30 to 8:30pm, for this exhibition held during the 79th World Health Assembly.

RSVP and learn more here: https://thevaluecollection.rsvpify.com/

'The Value Collection' is co-organised with Roche, the Program in Global Primary Health Care at Harvard Medical School, and UNAIDS.

We are delighted to invite you to the upcoming Personalised Cancer Care Alliance (PCCA) event From Theory to Practice: P...
02/05/2026

We are delighted to invite you to the upcoming Personalised Cancer Care Alliance (PCCA) event From Theory to Practice: PCCA Position Paper 2.0 Launch, taking place next week.

Don't miss your chance to join this milestone gathering to launch the Personalised Cancer Care Alliance Position Paper 2.0, building on the first Position Paper published in 2022.

📅Date: Tuesday, 5 May 2026
🕙Time: 3:00 - 4:30 pm (GST)
📍Format: Online via zoom
🗣 Language: English with simultaneous interpretation into Arabic
Register your place here: https://www.iapo.org.uk/node/15748

This newly updated position paper recognises that advocacy must move from theory to practice and highlights two pilot initiatives launched to test the recommendations from the first position paper in real-world contexts.

As a result, the Position Paper 2.0 marks a critical shift from conceptual advocacy to implementation-driven action, grounded in real-world evidence, lived experiences, and multi-stakeholder collaboration.

Dani Mothci - CEO, International Alliance of Patients’ Organizations
Hajar Gdader - Advocacy Strategy Lead, NABD-BC2 Association
Khaled Al-Saleh - Secretary General and Board Chair, Society for Smoking and Cancer Prevention
Dr. Reem Al-Ajloun - Director, Jordan Breast Cancer
Majed Mohamed - Head of Community Engagement & Advocacy Department, Friends of Cancer Patients
Dr. Heba Alsawahli - Consultant, WHO
Claire Lebled - EEMEA Regional Patient Engagement Lead, MSD

Learn more and register your place here: https://www.iapo.org.uk/node/15748

📣 We're delighted to invite you to join us at for ‘The Social Participation Village: Where Every Voice Shapes Health G...
01/05/2026

📣 We're delighted to invite you to join us at for ‘The Social Participation Village: Where Every Voice Shapes Health Governance’, taking place on the side lines of the 79th World Health Assembly at the WHA79 Civil Society Networking Space in Geneva.

📅 Tuesday 19 May 2026
🕘 09:30 – 11:00am (CEST)
📍In person: Auditorium de la Pastorale, 106 Route de Ferney, Geneva, Switzerland
💻 Or Online via Zoom

This interactive side event will bring together civil society, patient organisations, and global health stakeholders to:

💬 Share progress on implementing the WHA resolution on social participation
💬 Exchange insights from WHO & civil society reporting
💬 Co-create a Social Participation Stakeholder Map

The event will be hosted in collaboration with CSEM for UHC2030 - The Civil Society Engagement Mechanism for Universal Health Coverage, Save the Children UK, Global Health Council, The George Institute for Global Health and SPHERE, the Social Participation for Health Engagement, Research, and Empowerment consortium.

🌍 Join us and be part of shaping more inclusive health governance.

Find out more and register your place here: https://docs.google.com/forms/d/e/1FAIpQLSdKQ_6Npn22fytmIX6xpxJ7D9BzaGGUvNkHH42wkuRJceTDTg/viewform

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