National Axial Spondyloarthritis Society

11/06/2026

Living in Coventry with axial SpA? Our NASS Coventry branch would love to welcome you to their weekly hydrotherapy sessions.

They meet every Tuesday evening at West Coventry Academy from 19:30 until 20:30. You can stand in the pool and it's accessed by shallow steps. It's a new facility with separate men’s and women’s changing rooms and new pool equipment. There is free parking on site.

The sessions are led by Physiotherapists from University Hospital Coventry and Warwickshire who have a special interest in axial spondyloarthritis. They start with stretches and exercises, and finish with some team games. The group is very welcoming and everyone can work to their own ability.

I've popped a link to the branch page in the comments.

11/06/2026

Take part in paid research! Just Worldwide is a global market research firm conducting a study to better understand the experience of people who have axial SpA and/or psoriatic arthritis and are currently using medication

Participants will first complete a short 10-minute screening survey to confirm eligibility.

• The study consists of three phases:
• Phase 1: In-home ethnography (5-7 hours)
• Phase 2: 60-minute interview
• Phase 3: 30-minute online survey

Incentives:
• 60-minute interview: £65
• 30-minute online survey: £35
• Ethnography (5–7 hours): £420

An ethnographer will visit the participant’s home to observe a typical “day in their life.” During the 5-7-hour visit, participants will continue with their normal routines (e.g., spending time with family/friends).

The session will be video recorded using a handheld camera, and participants will wear a small lapel microphone to capture interactions and conversations.

Interested in taking part? Email [email protected]

10/06/2026

In just two weeks we are hosting our FREE event, Going for Gold: The NASS 50th Walk on 27 June--and there is still time to sign up!
This sponsored walk is a leafy 5km or 10km wheelchair and scooter friendly route in Victoria Park, London. Free t-shirts, breakfast, coffee, tea, and lunch will be provided. (You’re also welcome to skip the walk and join the lunch!)
You can show your support for axial SpA by fundraising for the walk, which will help us raise £30,000 to launch a project to support those members of our community whose axial SpA is difficult to manage. Your generosity will make a lasting impact for future generations of people living with axial SpA!

Event: Going for Gold: The NASS 50th Walk
Date: 27 June 2026
Location: Victoria Park, London
Tickets: FREE
What you get: FREE T-shirt, breakfast, and lunch!

Sign up today! 🧡 https://buff.ly/OuLF2Uf

10/06/2026

What is your worst nightmare?

Being on an old (vintage) biplane which is doing loop the loops?

How about if you weren't inside the plane but standing on the wing with the plan reaching speeds of up to 120mph? We couldn't imagine anything more terrifying!

So we are incredibly impressed that long term NASS member Sam is taking on a wing walk to raise funds for both NASS and his local branch, NASS Bristol. We wish you the very best of luck! If you'd like to find out more or support Sam with a small donation please use the link. https://buff.ly/Bjq2R3Q

Help Sam Freke raise money to support National Axial Spondyloarthritis Society

09/06/2026

There are lots of things you can do to help manage your fatigue and the impact it has, but before looking at making any changes, it can be helpful to spend some time tracking your energy levels and your activities. Take a look at the activity diary in our guide to fatigue. You track your activities over a four-week period, recording when you spend time doing a high energy activity, low energy activity, periods of rest and relaxation, as well as sleep. It’s easier to look at your activity over a longer period like this. You may start to notice some patterns. Learn more in our video: https://buff.ly/kM4GDOV

Keeping an activity diary is the first step towards understanding your fatigue. This can help you find ways to manage your energy levels. Follow the links be...

09/06/2026

Last week (3–6 June), members of the NASS team attended the EULAR Congress in London, where leading researchers, healthcare professionals, and patient organisations came together to share the latest developments in rheumatology.

We were proud to showcase our Act on Axial SpA campaign, including the Axial Spondyloarthritis Playbook: Reducing Time to Diagnosis and Improving Patient Experience, through two presentations in the EULAR PARE programme.

There was plenty of encouraging news for people living with axial SpA. Highlights included:

🔹 New classification criteria for axial SpA, designed to support earlier and more accurate diagnosis

🔹 Updated recommendations on the use of imaging, including MRI, to help diagnose and monitor the condition

🔹 New research highlighting the role of inflammation in disease progression, which could help identify those at greater risk of spinal damage

🔹 Continued support for the use of ASDAS to monitor disease activity and guide treatment decisions

🔹 Updated guidance on physical activity, reinforcing the importance of exercise in managing axial SpA and maintaining wellbeing

The congress was also a great opportunity to connect with patient groups and healthcare professionals from across Europe, exploring ways we can continue to collaborate and support people living with axial SpA.

The message from EULAR 2026 is positive: research is advancing our understanding of axial SpA, helping to drive earlier diagnosis, more personalised care, and better long-term outcomes.

08/06/2026

Do you struggle with fatigue from your axial SpA? Come along to our online meetup on Monday 15 June to meet others who can relate, share practical tips, and get support. Find out more and book your place: https://buff.ly/yILFRHL

07/06/2026

We've scheduled the last pilot NASS Leicester physiotherapy session before the summer break. It's on the 1st July at 18:30 in the Glenfield Hospital and local physiotherapist John is looking forward to taking everyone through a gentle stretch. If you have axial SpA and live in Leicester do book in using the link.
https://buff.ly/8gb1m8V

05/06/2026

✉️ Member Memories - Gerry Dance

I will be forever grateful to NASS, as I’m certain I would not be where I am today without the super support I have received.

I have always been a keen runner and I’m still running at 64, but a lot slower and on trails. There are days when I can’t run at all. AS stops me in my tracks. But my motto has always been ‘Rest is Rust and Motion is Lotion’! Just got to keep on kicking AS into touch. 🏃‍➡️

Read more about Gerry's memories here👇️
https://buff.ly/67ZbiT0

05/06/2026

🎉 Join us for Going for Gold: The NASS 50th Walk

On 27 June, we're bringing the NASS community together in Victoria Park, London to celebrate 50 years of support, advocacy and action.

Whether you choose the 5km route, the 10km route, or simply join us for lunch afterwards, we'd love to see you there.

By taking part and fundraising, you'll help us raise £30,000 towards a new project supporting people whose axial SpA is difficult to manage.

📍 Victoria Park, London
📅 27 June 2026
💙 Free registration
👕 Free t-shirt, breakfast and lunch included

Sign up today and join us for what promises to be a fantastic day with the NASS community. https://buff.ly/ulTZtwb