National Axial Spondyloarthritis Society

12/10/2026

Throwing it back to July! 🏔️✨

A massive thank you again to Shaun Brunt, who took on the grueling Peak District Ultra back in July and raised an incredible £556 for NASS!

Your ongoing support means the world to everyone living with axial SpA. 💪💙

12/10/2026

Today is the first day of - and World Arthritis Day. 10 million people in the UK live with arthritis. Arthritis can make life tough by causing pain and making it harder to get about. Did you know it can affect people of all ages – including children and teenagers?

On , our message is simple: musculoskeletal health is not a niche issue. It shapes how people move, work, care and live. Want to find out more about musculoskeletal health?

Learn more here 👉️ https://buff.ly/yyHZMJd on the Arthritis and Musculoskeletal Alliance website, representing patient groups, professional bodies and other organisations as one united voice.

11/10/2026

⏳ Time is running out to secure your 2027 NASS place!

Run For Charity has just updated us: they only have a final few spots left for the Manchester Marathon and Barcelona Marathon.

If you are currently marked as ‘Notified’ on the portal, please log in and complete your registration ASAP. Remember to also check your emails for the official event organiser registration link!

If you are new to Fundraising or want to get involved, check the link below to view details and lock in your place before the waiting list opens:

🔗 https://buff.ly/nXzgVPY

Once you have signed up, send us an email, or get in touch about how to start your fundraising journey with NASS.

10/10/2026

A new national rheumatology audit highlights the lengthy journey many people experience before receiving specialist assessment for axial spondyloarthritis (axial SpA).

Living with ongoing back pain, stiffness and fatigue without knowing the cause can be physically and emotionally exhausting. Getting the right diagnosis can be an important step towards accessing appropriate treatment and support.

The findings reinforce why earlier recognition, timely referral and listening to people's symptoms matter.

At NASS, we're committed to raising awareness of axial SpA through our Act on Axial SpA campaign and championing better care for everyone affected by the condition.

📖 Read our latest news item to find out more: https://buff.ly/wmMdsSO

The only charity in the UK dedicated to supporting people affected by axial spondyloarthritis (ankylosing spondylitis) (AS)

10/10/2026

5km loops for 7 hours straight?! 😱🏃‍♂️ That is an absolute endurance beast of a challenge!

Ross Sysum is back at it this weekend with his 12 marathons in 12 months challenge, and next up are those gruelling Lancashire Loops. How many loops can he crush in 7 hours?

Good luck, Ross, we are cheering you on every single step of the way! 💪💙

09/10/2026

🎉💙 Help us celebrate 50 years of NASS!

This November is going to be a very special one as we bring together people living with axial SpA, healthcare professionals, researchers and supporters from across the UK for our 50th Anniversary Awards Dinner and Conference.

It’s a chance to come together, share experiences and learning, celebrate how far we’ve come over the past 50 years, and look forward to the future of support and care for everyone living with axial SpA.

And we’re getting very close… 🥂 We only have a handful of places left before the event is SOLD OUT!

We’re now looking for businesses and organisations who might like to sponsor or support this very special event.

💙 Could your company help us make our 50th anniversary celebrations extra special?

We’re happy to work with businesses to create a bespoke sponsorship or partnership package that fits your organisation’s priorities and budget.

If you’re interested, or know a company that might be, please contact Jill at [email protected] or send us a direct message. We’d love to hear from you!

👉 Please share this post or tag a business below that you think could help support NASS.

Let’s make our 50th anniversary a celebration to remember!🎉💙

NASSat50

08/10/2026

🙆 In our Your SpAce meeting on Tuesday we were talking about getting active with axial SpA and how it can be hard to get started.

🆓 One option for those living in the UK could be this great free programme offered by Nuffield Health. If you are looking to get my active then do take a look!

If you've tried the programme we'd love to hear your views.⬇️


https://buff.ly/CJ22m7G

Join our free programme to help relieve joint pain and live a more independent life.

07/10/2026

🦠 We are now in virus season and we've had a number of people contact us who are taking biologics or JAK inhibitors who would want to test and access antivirals if they developed COVID.

🧑‍🔬 In some areas there seems to be a lack of availability of the free lateral flow kits from chemists. Without a positive lateral flow - people won't be able to access anti virals.

Please let us know in the comments if you have been impacted by any of these issues? ⬇️

06/10/2026

🏅 A huge congratulations to Ross Sysum!

Ross went beyond marathon distance, completing an incredible 50km in 4 hours, 49 minutes and 28 seconds! 👏

He’s also raised a fantastic £676 for NASS so far, including a very generous £200 donation from his football team, Smile FC. As a thank you for their support, Ross proudly took on the 50km wearing his Smile FC kit! ⚽💙

And he’s not stopping there! Next up is Priya’s Birthday Biryani Dash on the 11th October, where Ross will be aiming for at least another marathon distance. 🏃

For now, enjoy a very well-earned rest, Ross. What an incredible achievement and thank you for your amazing support of NASS! 🎉

06/10/2026

For 50 years, people affected by axial SpA have been at the heart of NASS – helping us grow, reach more people and fight for better support for everyone living with the condition. 🧡

Together, supporters have helped us provide invaluable information and support to people when they need it most, build communities across the country, campaign for better care and make sure the voices of people living with axial SpA are heard.

But the next 50 years aren’t written yet.

The progress we’ve made over the last five decades was only possible because people chose to invest in a better future for people with axial SpA. Now, we need you to help us build what comes next. Too many people are living with 'difficult to manage' axial SpA, without the answers, support and options they need to live well.

Your donation to the 50 for 50 campaign will help us keep pushing for better care, provide vital information and support, and make sure people with difficult to manage axial SpA are not left behind.

The next 50 years aren’t secured yet. Help us make them possible. 🧡

Donate to our 50 for 50 campaign today: https://buff.ly/jRdeSs1