Living with Schizophrenia

Living with Schizophrenia Schizophrenia is a complex and serious mental health condition which affects men and women from all walks of life and social backgrounds.

It is caused by physical and chemical changes within the brain. In the UK at the moment almost a quarter of a million people are being treated for this condition by the NHS. It is usually life changing and can often be life threatening. Although the condition is widely misunderstood, particularly by the popular media, modern treatments are highly effective and most people who suffer from the condi

tion will make a substantial recovery although it may take some time. Founded in 2013, Living with Schizophrenia is a mental health project based in the South West of England which provides a platform for people living with schizophrenia in the broader sense including sufferers as well as carers and relatives. Our aim is to provide hard evidence-based information about this often cruel and enigmatic condition about which there is often so much mythology.

Recent research published in both the mainstream press and the academic literature has strongly indicated that people wi...
28/07/2026

Recent research published in both the mainstream press and the academic literature has strongly indicated that people with schizophrenia are at an increased risk of death from heat-related illness during heat waves and other periods of excessive hot weather. And, with another heat wave now being experienced in the UK people living with schizophrenia should be aware of this risk.

Why people with schizophrenia are at higher risk is complex: there are a number of factors. Schizophrenia can affect the part of the brain that regulates body temperature and some antipsychotic medicines can affect the way that the body regulates its temperature as well. In addition, schizophrenia often causes a condition called anosognosia which reduces the person’s awareness of their ill health. Conditions like diabetes and alcohol use, which often occur alongside schizophrenia, can also contribute to the risk from heat-related illness and social isolation and homelessness can make it more difficult for people with heat -related illness to get timely help.

Greater awareness of this risk is needed, particularly by community mental health teams and especially community psychiatric nurses who can check on patients with schizophrenia during periods like this of excessive hot weather and ensure that they have taken precautions. Carers and relatives can also play a part and should know how to cope with hot weather and what to do in case of heat-related illness. Sufferers of schizophrenia themselves should also be more aware of this risk and look at how they can take some simple precautions when the weather is too hot. There is good advice on the Gov.UK website at https://www.gov.uk/government/publications/heatwave-plan-for-england/beat-the-heat-staying-safe-in-hot-weather
on how to cope with periods of extreme hot weather and the National Health Service (NHS) and Red Cross websites cover what to do in case of a heat-related illness. (https://www.nhs.uk/conditions/heat-exhaustion-heatstroke/ )
(https://www.redcross.org.uk/first-aid/learn-first-aid/heat-exhaustion)

Learn more about schizophrenia on our website at https://livingwithschizophreniauk.org/

Image: Guenter Albers on Shutterstock

Contact us on email at: [email protected]

July sees the anniversary of the Swiss psychiatrist Eugen Bleuler who died 15 July 1939 aged 82 and who was the first ps...
22/07/2026

July sees the anniversary of the Swiss psychiatrist Eugen Bleuler who died 15 July 1939 aged 82 and who was the first psychiatric doctor to use the term schizophrenia.

Bleuler was born Zollikon in Switzerland in April 1857. After studying medicine in Zurich, Bleuler held a number of psychiatric posts in Switzerland eventually becoming Professor of Psychiatry at the Burghölzli, a university hospital attached to the University of Zurich during which time he conducted research into schizophrenia and is said by some scholars to have been one of the most influential Swiss psychiatrists of modern times.

Amongst his other achievements Bleuler will always be known as the doctor who gave schizophrenia (previously known as dementia praecox) its modern name. Eugen Bleuler also introduced the concept of positive and negative symptoms into the understanding and diagnosis of schizophrenia, a distinction that is still used routinely by doctors and sufferers today. Positive symptoms are those symptoms that represent something that was not present in the patient before the onset of the illness such as hallucinations or delusions and negative symptoms are those features of the condition that represent things that the patient used to have but have now lost for instance apathy or social withdrawal.

During his career Bleuler was closely involved with the diagnosis and treatment of the famous Russian ballet dancer, Vaslav Nijinsky who suffered from schizophrenia for a large part of his life. There is more on Nijinsky on our web page at https://livingwithschizophreniauk.org/nijinsky/ .

Eugen Bleuler was perhaps one of the most important of the 20th Century scientists who studied and sought to understand this enigmatic and complex condition that today we call schizophrenia. In a very real way he did the groundwork for the many able doctors who came after him.

Learn more about schizophrenia on our website at https://livingwithschizophreniauk.org/.

(Image: Clinique du Burghözli on Wikimedia Commons)

Contact us on email at: [email protected]

Schizophrenia is a much misunderstood mental health condition so here are a few basic facts about this complex and enigm...
26/06/2026

Schizophrenia is a much misunderstood mental health condition so here are a few basic facts about this complex and enigmatic illness:

1. In the UK about 1 in 6 people will need treatment for mental ill health during their lifetime.
2. Schizophrenia is not a rare condition. At some time during their life about 1 in 100 people will suffer an episode of schizophrenia.
3. Schizophrenia occurs in all countries and societies of the world.
4. Schizophrenia affects men and women alike and sufferers come from all walks of life and social backgrounds.
5. Schizophrenia is a major illness. At any one time about 220,000 people are being treated for schizophrenia in the UK by the National Health Service.
6. Schizophrenia sufferers have a 5 to 10% chance of dying by their own hand within ten years of diagnosis; around two and half times higher than the general population.
7. Schizophrenia strikes most often in late teens and early twenties. Slightly later in women than in men. However late onset can occur as late as 70 years old.
8. Schizophrenia runs in families. If you have a parent or sibling with the illness you are more likely to suffer from it yourself.
9. There is now evidence that using street drugs especially cannabis will increase your chances of suffering an episode of schizophrenia.
10. About 25% of people who suffer an episode of schizophrenia will go on to recover completely without any further problems in the future.
11. Because of the higher risk of su***de and greater vulnerability to physical conditions like diabetes people with schizophrenia will die on average 10 – 20 years earlier than the general population.

You can read more about schizophrenia on the Living with Schizophrenia website at https://livingwithschizophreniauk.org/.

(Image: CLIPAREA l Custom media on Shutterstock)

Schizophrenia has been around for a long time. References to people who were clearly insane appear in classical writings...
18/06/2026

Schizophrenia has been around for a long time. References to people who were clearly insane appear in classical writings and the Bible. Descriptions of episodes of madness involving hearing voices, seeing visions and erratic and unruly behaviour start to appear in literature from about the 17th century.

In the medical profession schizophrenia was first described by Dr Emil Kraepelin pictured above in Estonia in the 19th century. He first used the term dementia praecox or premature dementia and he believed that the condition always had a steadily worsening course over time. We now know that that is not the case for most people.

Later the Swiss psychiatrist Dr Eugen Bleuler developed Kraepelin’s ideas on the diagnosis of the condition and first used the term schizophrenia. Significantly he believed that patients did indeed show a distinct improvement in time.

The enlightened leaders of the Victorian age built large institutional asylums into which people with schizophrenia were confined often for many years and sometimes for life. Although some of these asylums were later exposed as abusive, at the time they were built, they were seen as a compassionate alternative to confining “lunatics” (as they were then called) in prison or to life on the streets.

In the middle of the 20th century scientists developing new types of antihistamine drugs found that the new drugs were also effective in controlling the psychotic or positive symptoms of schizophrenia such as hallucinations and delusions. This was the first generation of the new antipsychotic medicines which were to make such a difference to sufferer’s lives.

With the development of the new antipsychotic drugs, which were effective at controlling the positive symptoms of the illness the concept of care in the community, which had already been born in the USA, evolved at a pace. The new practice would involve people being looked after in their own homes rather than in hospital, with hospital stays being reserved for people in crisis.

Today there are about 220,000 people being treated for schizophrenia in the UK by the National Health Service (NHS). Treatment with antipsychotic medicines remains the mainstay of treatment in the NHS. In the UK at least great progress was made in the treatment of schizophrenia during the 20th Century. However, there are still many gaps in our understanding and techniques. Consequently, schizophrenia still remains one of the most serious public health challenges facing humanity today.

You can read more about schizophrenia on the Living with Schizophrenia website at https://livingwithschizophreniauk.org/.

(Image: Wellcome Collection on Wikimedia Commons)

30/05/2026

Many people living with schizophrenia would like to get into work of some sort but find the process of job searching very challenging. After working out what sort of job you would like to do the next step is to ask if any of your existing abilities could be improved to make you better suited to getting the sort job that you would like. For instance, if you have poor literacy or numeracy skills then that would be a serious drawback and something that you will need to work hard on.

Similarly, if you want to move into a particular area of work, you may be able to find vocational training courses in your area available at a reduced rate or free for people on benefits. To find these courses you will need to ask at the Jobcentre or local library or search on the web.

In addition to vocational training there are two courses in particular in the UK that employers really value. These are, a First Aid at Work qualification and a Fire Warden course. Having these courses will greatly strengthen your CV.

If you can’t find a free course then you may be able to get help with your course fees from a charity. Most large industries such as construction, engineering, electronics, retail etc have benevolent charities which give grants to people who have worked in the industry and who now need help. Many will also provide support to close relatives of someone who has worked in the industry.

For men and women who have served in the armed forces, including the reserve forces, there are a number of ex-forces charities that can give help. The first point of contact is normally your local office of the Royal British Legion.

Try your local library or searching on the internet to find out if a charity exists that could help you. Most charities are very ready to help people who are disabled and trying get back into the workplace.

Looking for a job can be challenging enough and it is very beneficial to reinforce your qualifications and expertise so as to try to improve your chances of getting a job that you will enjoy doing. This is a very useful first step to getting on the job search ladder. You can read more about living and working this condition on the Living with Schizophrenia website at https://livingwithschizophreniauk.org/.

Contact us on email at: [email protected]

After you have experienced a period of schizophrenia, particularly a prolonged one, it is often difficult to get into wo...
19/05/2026

After you have experienced a period of schizophrenia, particularly a prolonged one, it is often difficult to get into work. One of the biggest hurdles facing people in this position is knowing where to start. Often people who have suffered from schizophrenia have little or no experience of work and do not know what sort of work they can do. Answering the question, “what sort of work could I do?” is the starting point on your journey back into the mainstream.

You may not be able to develop a clear idea of what sort of job best suits you until you have spent a lot of time job-searching or even tried some work experience but it is a good idea to have some ideas before you begin your job-search and this involves taking a long hard look at your personal qualities.

There are a number of key questions that you will need to ask yourself when you start job searching in order to get a clearer idea of what sort of work you can do. These are:
1. What sort of things do you enjoy doing?
2. What sort of things are you good at?
3. How will your illness limit your ambitions?
4. What previous experience in work do you have?
5. What qualifications do you have?
6. External factors such as travel to work and family commitments?

By drawing these factors together you should now be able to draw some definite conclusions about the sorts of work that will suit you.

Try to be as realistic as possible. We would all like to have glamorous careers as celebrities and earn bucketfuls of cash but the reality for most people is a modest job doing something they are good at and enjoy and bringing home enough money to provide a comfortable existence for them and their family.

For many people with schizophrenia getting into work is a major challenge but if done well it will lead them into a new and highly promising period in their life. Job searching should be approached with great care and will require a lot of hard work and diligence if it is to be successful. But knowing where and how to start will bring great benefits.

You can read more about living and working this condition on the Living with Schizophrenia website at https://livingwithschizophreniauk.org/.

(Image: Basher Eyre on Wikimedia Commons).

Contact us on email at: [email protected]

Many people with schizophrenia also suffer from anxiety. Anxiety at some levels may be tolerable but in some people it ...
28/04/2026

Many people with schizophrenia also suffer from anxiety. Anxiety at some levels may be tolerable but in some people it can become severe and disabling, often preventing the sufferer from engaging with many everyday activities. When schizophrenia and anxiety occur together the combined effect can be very distressing indeed. Sometimes anxiety can be caused by schizophrenia symptoms, for instance by hearing voices or paranoid delusions, but at other times anxiety may occur alongside the schizophrenia and when severe enough it may be diagnosed as an anxiety disorder like generalised anxiety disorder.

Anxiety can often be a very intractable problem: as well as being very distressing for the sufferer it can often be very difficult to treat. Now, a recent study from the Republic of Ireland, the Irish Longitudinal Study of Aging, has found that exercise can be used to help cope better with the effects of anxiety.

Reported on the Medscape platform in 2024 and led by researchers at the University of Limerick, this study looked at over seven thousand participants aged over 50 and used data self-reported by them about their anxiety and activity levels. This study showed that moderate to intense physical activity for as little as 10 minutes duration each day does seem to reduce the risk of generalised anxiety disorder in older adults.

This is very useful research. As many people with schizophrenia will testify the problem of anxiety in their lives can be highly disabling and very difficult to overcome. Often it is the case that self-help skills like this can fill the gaps left by the anti-anxiety medicines.
You can read more about this condition on the Living with Schizophrenia website at https://livingwithschizophreniauk.org/.

(Image: CLIPAREA l Custom media on Shutterstock)

Contact us on email at: [email protected]

Research from Denmark has confirmed the findings of previous studies that there is a connection between cannabis use and...
17/04/2026

Research from Denmark has confirmed the findings of previous studies that there is a connection between cannabis use and schizophrenia and has underlined the need for extreme caution when considering legalisation of cannabis use.

Led by Danish researchers, this was a large study of over 60,000 participants diagnosed with cannabis use disorder using data from a population of almost seven million. Cannabis use disorder occurs when a person’ s use of cannabis cannot be controlled and withdrawal effects are experienced if they stop using it. This study found that as many as 15% of cases of schizophrenia in young men may be preventable by avoiding cannabis, with young men being more at risk than young women.

The researchers commented that legalisation of cannabis use sends the wrong message that cannabis is harmless. Dr Carsten Hjorthøj, the study’s lead, said, “This study adds to our growing understanding that cannabis use is not harmless”.

In recent years there has been a growing movement in jurisdictions around the world to legalise the use of cannabis but the evidence of a connection between cannabis and schizophrenia has been growing. These changes in laws have led to cannabis becoming one of the most frequently used psychoactive drugs. Schizophrenia is a cruel, life-changing (and often life-threatening) condition. Legislators must be made aware that legalisation of cannabis will have real and tangible human costs. And sufferers of schizophrenia and their carers should know that cannabis use will make their symptoms worse.

There is more about schizophrenia and drug use in the Living with Schizophrenia website at. https://livingwithschizophreniauk.org/information-sheets/schizophrenia-and-street-drugs/

Contact us on email at: [email protected]

(Image: Pe3K on Shutterstock)

March sees the anniversary of the birth of Vaslav Nijinsky, the great ballet dancer who some experts believe to be the g...
31/03/2026

March sees the anniversary of the birth of Vaslav Nijinsky, the great ballet dancer who some experts believe to be the greatest male dancer of all time. Despite a meteoric early career he was, during his early life, struck down by the serious mental illness that we now know of as schizophrenia and which prevented him from fulfilling his true potential.

Vaslav Nijinsky was born 12th March 1889 in St Petersburg, the son of two Polish dancers and studied dance at the Imperial Ballet School where his exceptional skills were soon evident. By the age of 18 he was already dancing with the likes of Anna Pavlova at the Mariinsky Theatre. Later he joined the Ballet Ruse, a new company formed by Russian impresario Sergei Diagelev in Paris.

By 1917 the first signs of the mental storms that were to end his career were beginning to show through and in 1919 Nijinsky was diagnosed with the newly-described condition called schizophrenia and committed to an asylum. In the absence of any effective treatments, over the next 30 years or so he was to suffer repeated episodes of his illness and was confined on a number of occasions. Despite treatment by the foremost psychiatrists of the time he rarely danced professionally again after the first episode of illness.

It is a tragedy that this great dancer, who some described during his short career as the eighth wonder of the world, died before the development of the new antipsychotic medicines that today enable so many people with schizophrenia to live fulfilling lives. You can read more about Nijinsky’s struggle with schizophrenia on the Living with Schizophrenia website at https://livingwithschizophreniauk.org/nijinsky/.

(Image: Jean-Pierre Dalbera on Wikimedia Commons, creative commons attribution)

Contact us on email at: [email protected]

First World War poet and composer Ivor Gurney who suffered with hearing voices probably lived with schizophrenia.Hearing...
20/03/2026

First World War poet and composer Ivor Gurney who suffered with hearing voices probably lived with schizophrenia.

Hearing voices, or auditory hallucinations as psychiatrists call them, is a common experience for people living with schizophrenia. In fact, it is so common that it is considered to be one of the principal indicators when doctors are considering a diagnosis. Voices are often one of the most difficult experiences to cope with and sometimes they can lead to dangerous behaviour. They remain one of the biggest issues for people with schizophrenia and should be taken very seriously by doctors, patients and carers alike.

What is it like to hear voices?
To the voice hearer, the voices coming from inside them are very real and are often indistinguishable from real people’s voices. Sometimes the person may hear voices of people that they recognise, e.g. relatives or friends. For other people the voices may have no distinct personality, being just a non-descript voice with no discernible accent.

The experience of voice hearing should not be confused with the normal inner voice that we all have in our minds when we are in good health. Voices caused by psychosis are profoundly different. They are as real as hearing a person in the same room speaking.

Why is voice hearing so significant?
One of the most important questions about voices is why are they so powerful? Why can voices make people think and do things that are irrational, bizarre or even dangerous, and why are they so successful in causing suffering? Well, part of the answer to that is that the voices know you intimately. Because they come from inside you, they have a perfect understanding of your whole psyche. They understand all of your strengths and weaknesses, all of your secret fears and hates. All of the things you most love and care about, and because they know you so well they can attack you where they know that you are most sensitive and where they can do the most damage.

Some people may experience voices that are benign or friendly but in schizophrenia the common experience is for voices that are malevolent and hostile.

Voice hearing is a very common experience for many people living with schizophrenia and is a very serious issue. It is vital to try to understand voices in order to cope better with them. You can read more about voices in schizophrenia on the Living with Schizophrenia website at https://livingwithschizophreniauk.org/information-sheets/understanding-voice-hearing/.

Contact us on email at: [email protected]

Image: Richard Hall, Ivor Gurney Estate/Gloucestershire Archives

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