Scoliosis Support & Research

Scoliosis Support & Research In 2023, Scoliosis Association UK (SAUK) and British Scoliosis Research Foundation (BSRF) merged. We are now known as Scoliosis Support & Research.

We raise awareness, provide support, and fund research for scoliosis & spinal conditions in the UK. SSR is the only UK wide patient support organisation for people with scoliosis and their families. Our aim is to provide advice, support, and information to people affected by scoliosis and their families and raise awareness of scoliosis among health professionals and the general public. We also pr

omote and fund high quality, innovative research into scoliosis and other spinal conditions. If you need confidential support or advice or purely a person that will listen please call the Helpline on: 020 8964 1166. For more information on what SSR has to offer please visit www.ssr.org.uk. DISCLAIMER
SSR can accept no responsibility for the accuracy of the posts and comments on this forum received from individuals, outside bodies or organisations, nor does SSRnecessarily endorse such views or material published on the forum.

23/08/2026

Embrace Your Curve: Katie's Story 💙

Next in our Embrace Your Curve campaign is Katie Farrall ().

Katie was diagnosed with scoliosis at just 8 years old and later underwent full spinal fusion surgery.

Growing up, Katie was told that her body would have limitations, but she has spent years proving that wrong.

Her message for anyone newly diagnosed is a powerful one: don't let anyone else decide what you are capable of. Scoliosis may change your journey, but it doesn't have to define your future.

Katie continues to challenge expectations and push her own boundaries. In April 2026, she took on the incredible challenge of running the London Marathon for Scoliosis Support & Research, showing exactly what is possible.

A brilliant reminder that your scoliosis is only one part of your story, and your potential is so much bigger. 💙

▶️ Watch Katie's story.

📩 We'd still love to hear from you! Record a short video answering "If you're newly diagnosed, this is for you..." and send it to [email protected].

21/08/2026

Embrace Your Curve: Kate's Story 💙

Next in our Embrace Your Curve campaign is Kate Gleghorn ().

Kate shares a powerful message for anyone starting their scoliosis journey: being different does not mean being limited.

If she could speak to her younger self, Kate would remind her that her dreams are still possible and that scoliosis doesn't have to stand in the way of the things she loves.

Kate has gone on to graduate from university with a First Class degree in Musical Theatre, proving that your ambitions, passions and future are not defined by your scoliosis.

A beautiful reminder that your curve is only one part of your story, and it doesn't decide what you can achieve. 💙

▶️ Watch Kate's story.

📩 We'd still love to hear from you! Record a short video answering "If you're newly diagnosed, this is for you..." and send it to [email protected].

19/08/2026

Embrace Your Curve: Julie's Story 💙

Next in our Embrace Your Curve campaign is Julie Harris.

Julie shares her incredible scoliosis journey, having had her first surgery at just 13 years old and then undergoing further surgery again at 49.

Her message for anyone newly diagnosed is one of reassurance and support: you are not alone. There is a whole community of people who understand what you're going through, so don't be afraid to reach out and ask for help.

Julie also reminds us that scoliosis can be a part of your story, but it does not define your limits. Listen to your body, take care of yourself, and remember that you are capable of so much more than you might think.

A powerful reminder that support, self-awareness and connection can make a huge difference throughout your journey. 💙

▶️ Watch Julie's story.

📩 We'd still love to hear from you! Record a short video answering "If you're newly diagnosed, this is for you..." and send it to [email protected].

17/08/2026

Embrace Your Curve: Issy's Story 💙

Next in our Embrace Your Curve campaign is Issy Gale ().

At just 17, Issy shares her experience of being diagnosed with scoliosis and the shock she felt when she first found out.

Issy wore a brace throughout much of senior school, something that felt challenging at first but eventually became part of her everyday life. Her advice for anyone starting their journey is to find what helps you feel comfortable, look after your body, and keep moving by doing exercises that help strengthen your spine.

Most importantly, Issy reminds us that scoliosis doesn't define you.

She continues to do the things she loves, from playing sport to taking on incredible challenges, including hiking Snowdon last year and recently completing her DofE Gold Award.

A brilliant reminder that scoliosis is only one part of your story, and it shouldn't stop you from chasing your goals. 💙

▶️ Watch Issy's story.

📩 We'd still love to hear from you! Record a short video answering "If you're newly diagnosed, this is for you..." and send it to [email protected].

15/08/2026

Embrace Your Curve: Georgina's Story 💙

Next in our Embrace Your Curve campaign is Georgina Shute.

Georgina shares how pushing for a second opinion became a life-changing moment in her scoliosis journey.

Looking back, she wishes she had known just how important her support system would be, and how much of a difference staying active and moving her body could make.

Her message for anyone who is newly diagnosed is clear: if you're unsure, ask questions and don't be afraid to seek a second opinion. You know your own body, and finding the right support and care can make all the difference.

A powerful reminder that you don't have to navigate scoliosis alone. 💙

▶️ Watch Georgina's story.

📩 We'd still love to hear from you! Record a short video answering "If you're newly diagnosed, this is for you..." and send it to [email protected].

13/08/2026

Embrace Your Curve: Elizabeth's Story 💙

Next in our Embrace Your Curve campaign is Elizabeth Davies.

Elizabeth was diagnosed with scoliosis in 1959 and, a few years later in 1963, was recommended spinal surgery in Edinburgh.

Her recovery was a long journey, taking around 12 months in total and meaning she missed a year of school. But looking back all these years later, Elizabeth describes her surgery as a blessing, something that gave her the opportunity to move forward and live her life.

Elizabeth's story is a powerful reminder of how far scoliosis treatment has come, and how life-changing the right support and care can be.

For anyone newly diagnosed, Elizabeth's message is one of hope: your journey may feel overwhelming at first, but there is a future beyond scoliosis. 💙

▶️ Watch Elizabeth's story.

📩 We'd still love to hear from you! Record a short video answering "If you're newly diagnosed, this is for you..." and send it to [email protected].

11/08/2026

Embrace Your Curve: Deborah's Story 💙

Next in our Embrace Your Curve campaign is Deborah Daminabo ().

Deborah recently underwent spinal fusion surgery as part of her scoliosis journey.

Speaking to her 11-year-old self, Deborah shares a powerful message: embrace who you are. Your curve does not define you, and it should never stop you from living your life to the fullest.

A beautiful reminder that scoliosis is just one part of your story. It does not limit who you can become or the life you can create. 💙

▶️ Watch Deborah's story.

📩 We'd still love to hear from you! Record a short video answering "If you're newly diagnosed, this is for you..." and send it to [email protected].

09/08/2026

Embrace Your Curve: Curtis' Story 💙

Next in our Embrace Your Curve campaign is Curtis Newman-Jones ().

Curtis shares an important message for anyone starting their scoliosis journey: your body may be different, but that doesn't mean it has to limit your potential.

Learning to accept your body and embrace what makes you unique can be a powerful part of the journey. Scoliosis is only one part of who you are, it doesn't define what you can achieve.

Curtis knows this better than most. Earlier this year, he took on the incredible challenge of walking 1 million steps in January to raise awareness and funds for SSR. An amazing physical achievement that showed exactly what's possible.

A reminder that your scoliosis doesn't have to hold you back. 💙

▶️ Watch Curtis' story.

📩 We'd still love to hear from you! Record a short video answering "If you're newly diagnosed, this is for you..." and send it to [email protected].

07/08/2026

Embrace Your Curve: Chloe's Story 💙

Next in our Embrace Your Curve campaign is Chloe Hayler ().

Chloe was diagnosed with scoliosis at just 12 years old, and this year marks 10 years since she began her scoliosis journey.

If she could go back and speak to her younger self, Chloe would share a powerful message: don’t be ashamed of your scoliosis. What once felt difficult became something she now sees as her superpower.

A beautiful reminder that scoliosis is only one part of who you are and the things that make us different can become the things that make us stronger. 💙

▶️ Watch Chloe’s story.

📩 We'd still love to hear from you! Record a short video answering "If you're newly diagnosed, this is for you..." and send it to [email protected].

05/08/2026

Embrace Your Curve: Charlotte's Story 💙

Next in our Embrace Your Curve campaign is Charlotte Arch.

Charlotte was diagnosed with scoliosis after seeing a hip specialist. Just six months later, she underwent spinal surgery, a life-changing journey that happened far quicker than she ever expected.

Her message for anyone who's just been diagnosed is simple: fight for yourself. Trust your instincts, ask questions, do your research, and don't be afraid to advocate for the care you need. She also encourages people to connect with others who are going through a similar experience, because you don't have to face scoliosis alone.

A thoughtful reminder that knowledge, support and self-advocacy can make all the difference. 💙

▶️ Watch Charlotte's story.

📩 We'd still love to hear from you! Record a short video answering "If you're newly diagnosed, this is for you..." and send it to [email protected].

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Ground Floor, 329 Latimer Road
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Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

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