Scoliosis Support & Research

Scoliosis Support & Research In 2023, Scoliosis Association UK (SAUK) and British Scoliosis Research Foundation (BSRF) merged. We are now known as Scoliosis Support & Research.

We raise awareness, provide support, and fund research for scoliosis & spinal conditions in the UK. SSR is the only UK wide patient support organisation for people with scoliosis and their families. Our aim is to provide advice, support, and information to people affected by scoliosis and their families and raise awareness of scoliosis among health professionals and the general public. We also pr

omote and fund high quality, innovative research into scoliosis and other spinal conditions. If you need confidential support or advice or purely a person that will listen please call the Helpline on: 020 8964 1166. For more information on what SSR has to offer please visit www.ssr.org.uk. DISCLAIMER
SSR can accept no responsibility for the accuracy of the posts and comments on this forum received from individuals, outside bodies or organisations, nor does SSRnecessarily endorse such views or material published on the forum.

24/06/2026

🎥 Mr Sudarshan Munigangaiah – Are there exercises to avoid with scoliosis?

Should people with scoliosis avoid certain exercises?
Not necessarily, but some activities may need adapting.

In this video, Consultant Spinal Surgeon Mr Sudarshan Munigangaiah discusses exercise and scoliosis.

He covers:
• Whether any exercises should be avoided
• The importance of staying active
• Adapting movement safely
• Why advice should be tailored to the individual

Key insight:
There’s rarely a one-size-fits-all answer, exercise advice depends on the person and their curve.

📣 Part of our Scoliosis Awareness Month series.

23/06/2026

🎥 Mr Sudarshan Munigangaiah – Managing scoliosis pain

Can scoliosis pain be managed day-to-day?
There’s no single solution, but small changes can make a big difference.

In this video, Consultant Spinal Surgeon Mr Sudarshan Munigangaiah discusses ways people can manage scoliosis-related pain in everyday life.

He covers:
• Common causes of scoliosis pain
• Movement, posture, and activity tips
• When to seek extra support
• Balancing activity and rest

Key insight:
Pain management is often about consistency, movement, and finding what works for you.

📣 Part of our Scoliosis Awareness Month series.

22/06/2026

🎥 Mr Sudarshan Munigangaiah – The ABCD of Scoliosis

Could you spot the signs of scoliosis?
The ABCD of Scoliosis is a simple way to help recognise the early signs.

🅰️ Asymmetry — Uneven shoulders, hips, or waist
🅱️ Bend Forward — Look for rib or back bulges
🅲 Check for Curve — Notice abnormal spinal curvature
🅳 Diagnosis — Confirmed by specialist X-ray

In this video, Consultant Spinal Surgeon Mr Sudarshan Munigangaiah explains why early detection matters and how families, schools, and communities can help spot scoliosis sooner.

Key insight:
Early detection can lead to better treatment outcomes and support.

📣 Part of our Scoliosis Awareness Month series.

21/06/2026

🎥 Mr Ashley Cole – The BASIS Study

Which scoliosis brace works best?
That’s exactly what the BASIS Study is aiming to find out.

In this video, Consultant Spinal Surgeon Mr Ashley Cole explains the BASIS Study - a UK-wide research project focused on scoliosis bracing in young people.

Key insight:
The BASIS Study aims to improve evidence and outcomes for young people with scoliosis.

📣 Part of our Scoliosis Awareness Month series.

20/06/2026

🎥 Mr Ashley Cole – The future of scoliosis bracing

How is scoliosis bracing changing in the future?
New technology is helping braces become more personalised and effective.

In this video, Consultant Spinal Surgeon Mr Ashley Cole discusses the future of scoliosis bracing.

He covers:
• Advances in brace design and technology
• More personalised and comfortable fitting
• How treatment is continuing to evolve
• What patients may expect in the years ahead

Key insight:
Modern bracing is becoming more tailored, discreet, and patient-focused.

📣 Part of our Scoliosis Awareness Month series.

📢 Final Week to Register – Bristol Scoliosis Event, 27th JuneAn afternoon event for anyone affected by scoliosis, featur...
19/06/2026

📢 Final Week to Register – Bristol Scoliosis Event, 27th June

An afternoon event for anyone affected by scoliosis, featuring talks from experienced specialists covering adult spine health.

🗓 Saturday 27th June
📍 Novotel Bristol Centre
⏰ 1pm – 4pm
🎟 Tickets available now

What to expect:
• Spine health and wellbeing
• Treatments and management for scoliosis
• Physiotherapy and movement for people living with scoliosis

🥗 Lunch included (with vegan option available)

A brilliant opportunity to hear from leading specialists, ask questions, and connect with others who understand the journey.

🔗 Places are limited – book your ticket today!

Scan the QR code or book here:
https://app.etapestry.com/onlineforms/ScoliosisSupportAndResearch/bristolevent.html

💙 £33,000+ raised... wow!A huge thank you to everyone who took part in Walk Together, donated, fundraised, and supported...
19/06/2026

💙 £33,000+ raised... wow!

A huge thank you to everyone who took part in Walk Together, donated, fundraised, and supported Scoliosis Awareness Month. Raising over £33,000 is absolutely unreal, and we couldn't have done it without you.

A special thank you to our amazing volunteers who hosted walks across the UK and helped bring our community together.

Every pound raised helps provide support for those living with scoliosis, fund vital research, and strengthen our community so no one faces scoliosis alone.

Thank you for making Walk Together 2026 so special. 💙

19/06/2026

🎥 Mr Ashley Cole – Bracing & teenage self-confidence

How can teenagers cope with the self-image side of wearing a brace?
For many young people, this can be one of the hardest parts of treatment.

In this video, Consultant Spinal Surgeon Mr Ashley Cole discusses the emotional and confidence challenges that can come with scoliosis bracing.

He covers:
• The impact bracing can have on confidence
• Supporting teenagers emotionally during treatment
• Why reassurance and support matter

Key insight:
The emotional side of bracing is just as important as the physical treatment.

📣 Part of our Scoliosis Awareness Month series.

18/06/2026

🎥 Mr Ashley Cole – Can bracing prevent scoliosis surgery?

Can wearing a brace stop the need for surgery?
It’s one of the most common questions families ask.

In this video, Consultant Spinal Surgeon Mr Ashley Cole explains what bracing can realistically achieve.

He covers:
• Whether bracing can slow curve progression
• When bracing is most effective
• Why some patients still need surgery
• The importance of early treatment and consistency

Key insight:
Bracing can help reduce the likelihood of surgery in some patients, but it doesn’t guarantee it.

📣 Part of our Scoliosis Awareness Month series.

🌟 An inspiring update from Lilly and her family!Almost two years ago, Lilly was diagnosed with severe scoliosis and told...
17/06/2026

🌟 An inspiring update from Lilly and her family!

Almost two years ago, Lilly was diagnosed with severe scoliosis and told she would likely need spinal surgery within a few years. Determined to explore her options, she committed to physiotherapy, wore a brace around her training, and adapted how she trained.

At her most recent appointment, her consultant was delighted to see improvements in her spine and felt she was no longer a surgical candidate.

Throughout this journey, Lilly has continued to excel in sport, representing Great Britain in biathle, triathle and laser run at both European and World Championships. And now, she's taken another exciting step towards her dream of competing in modern pentathlon, having recently been welcomed onto the GB pathway programme.

Congratulations, Lilly – what an incredible achievement! 💙

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