Scoliosis Support & Research

Scoliosis Support & Research In 2023, Scoliosis Association UK (SAUK) and British Scoliosis Research Foundation (BSRF) merged. We are now known as Scoliosis Support & Research.

We raise awareness, provide support, and fund research for scoliosis & spinal conditions in the UK. SSR is the only UK wide patient support organisation for people with scoliosis and their families. Our aim is to provide advice, support, and information to people affected by scoliosis and their families and raise awareness of scoliosis among health professionals and the general public. We also promote and fund high quality, innovative research into scoliosis and other spinal conditions. If you need confidential support or advice or purely a person that will listen please call the Helpline on: 020 8964 1166. For more information on what SSR has to offer please visit www.ssr.org.uk. DISCLAIMER
SSR can accept no responsibility for the accuracy of the posts and comments on this forum received from individuals, outside bodies or organisations, nor does SSRnecessarily endorse such views or material published on the forum.

🏃 NEW CHALLENGE EVENTS WITH SSR!Fancy taking on a new challenge while raising vital funds and awareness for people affec...
10/10/2026

🏃 NEW CHALLENGE EVENTS WITH SSR!

Fancy taking on a new challenge while raising vital funds and awareness for people affected by scoliosis?

We now have limited charity places available across loads of amazing events, including:

🏅 Manchester Marathon
🏅 Edinburgh Marathon
🏅 Brighton Marathon
🏃 Cambridge Half Marathon
🏃 Hackney Half Marathon
…and so, so many more! 🎉

Whether you’re looking to take on your first half marathon, chase a new PB, or tackle your first full marathon, there’s something for everyone.

And when you run for SSR, you’ll get:

🎟️ Just £5 entry for you – SSR covers the rest of the entry cost
🏃 Free running training support through Sapphire Running Zone
🎁 Fundraising rewards to keep you motivated along the way
💜 The chance to be part of Team SSR and make every mile count

Places are limited, so if you’ve been thinking about taking on a challenge, now’s the time!

📩 Drop us a message or email [email protected] to find out more.

Or check out all our available events on our website:
ssr.org.uk/challenge-events/

Let’s get Team SSR on the start line! 🏃💜

Volunteer shout-out! 💜A big shout-out to Janelle, who recently represented SSR at the Black British Book Festival at the...
08/10/2026

Volunteer shout-out! 💜

A big shout-out to Janelle, who recently represented SSR at the Black British Book Festival at the Barbican Centre! 📚

Janelle had a stall at the festival, showcasing SSR and helping to raise awareness of scoliosis alongside her own books. She also got the chance to meet and connect with lots of other authors and people affected by the condition.

It’s brilliant to see our volunteers finding their own ways to raise awareness and get SSR out into their local communities. Thank you, Janelle! 👏

🏃 RUN THE MANCHESTER MARATHON FOR SSR! Fancy taking on 26.2 miles while raising money and awareness for people affected ...
07/10/2026

🏃 RUN THE MANCHESTER MARATHON FOR SSR!

Fancy taking on 26.2 miles while raising money and awareness for people affected by scoliosis?

We have a small number of potential charity places available for the Manchester Marathon 2027!

📅 Sunday 18 April 2027
🎟️ Just £5 entry for you, with SSR covering the rest
🎯 £1,000 minimum fundraising target
🏃 Free running training support through Sapphire Running Zone
🎁 Fundraising rewards to keep you motivated
💜 Join Team SSR and make every mile count

Whether you’ve run a marathon before or this is the challenge you’ve been waiting for, we’d love to hear from you.

Interested? Email [email protected] with a little bit about yourself, your connection to scoliosis (if you have one), and why you’d like to run for SSR.

Places are limited, so get in touch if you’d like to be part of Team SSR! 🏃‍♀️🏃‍♂️

🎙️ Something very special is coming…We’ve been working behind the scenes on a project we’re incredibly excited to finall...
04/10/2026

🎙️ Something very special is coming…

We’ve been working behind the scenes on a project we’re incredibly excited to finally share with you.

Introducing Beyond The Curve, a brand-new podcast from Scoliosis Support & Research, exploring the people, stories and experiences behind scoliosis.

Hosted by our amazing community member Grace Winterburn, the series will feature honest conversations about life with scoliosis, from treatment and surgery to confidence, body image, fitness, work, relationships and everything in between.

We’re kicking things off with four very special episodes, featuring some brilliant guests with very different experiences and perspectives.

🎧 The first episode launches 20th October.

This is a collaboration with The Screw Loose Podcast.

🎙️ The Screw Loose Podcast:
📸 Grace:

We can’t wait to share Beyond The Curve with you. ❤️

Because there’s more to scoliosis than a curve in the spine.

🎄 Yes, we know it’s only October.But if you’re the kind of person who likes to get ahead of Christmas, we’ve got you cov...
01/10/2026

🎄 Yes, we know it’s only October.

But if you’re the kind of person who likes to get ahead of Christmas, we’ve got you covered!

Before our brand-new 2026 Christmas cards arrive, we’re clearing some stock from previous years. You can now pick up a pack of 10 cards for just £2.50. 🎅

Get your Christmas shopping started early, support SSR, and feel smug about being organised. 😉

👉 [Shop Christmas cards](https://app.etapestry.com/cart/ScoliosisSupportAndResearch/default/index.php)

Our 2026 designs will be coming soon!

📢 This is not an Scoliosis Support & Research-led project. We’re sharing this research opportunity as it may be of inter...
29/09/2026

📢 This is not an Scoliosis Support & Research-led project. We’re sharing this research opportunity as it may be of interest to members of our community.

🔎 RESEARCH OPPORTUNITY: Living with an MSK condition and working

Public Health teams at Nottingham City Council and Nottinghamshire County Council are carrying out research exploring people’s experiences of living with a musculoskeletal (MSK) condition and how this has affected their working lives.

They’re looking to hear from adults aged 18+ who:

• Live or work in Nottingham or Nottinghamshire
• Have, or have had, a long-term (4+ months) or recurring MSK condition, such as back pain, arthritis, chronic pain or osteoporosis
• Have experienced their condition affecting or influencing their working life in some way

This could include people who are currently working, have previously worked, are on long-term sick leave, are unemployed or unable to work due to ill health, or are trying to return to work.

Participants will take part in a 90-minute focus group, with a limited number of one-to-one interviews also available. Sessions are taking place between 28 September and 15 October.

🎁 Participants will receive a £10 shopping e-voucher as a thank you, with travel expenses reimbursed for in-person focus groups up to £6.90.

👉 Interested in taking part? Register your interest here: https://forms.cloud.microsoft/e/2zugds7Z8X

Please note that this research is being conducted by Nottingham City Council and Nottinghamshire County Council, and is not run by Scoliosis Support & Research.

🏃‍♂️ A huge thank you to Dan! Dan recently took on the New Forest Marathon 10K, describing it as one of the hardest phys...
28/09/2026

🏃‍♂️ A huge thank you to Dan!

Dan recently took on the New Forest Marathon 10K, describing it as one of the hardest physical challenges he’s faced, but one he absolutely loved!

Inspired by the atmosphere and seeing so many people running for causes close to their hearts, Dan was proud to take on the challenge for SSR and raise vital funds to support people affected by scoliosis.

A huge thank you to Dan and everyone who supported his fundraising. Every mile, every donation and every bit of awareness helps make a difference.

Well done, Dan! 👏🏃‍♂️

📌 Put scoliosis awareness on the wall!Our ABCD posteris a simple way to help share information about the signs of scolio...
27/09/2026

📌 Put scoliosis awareness on the wall!

Our ABCD posteris a simple way to help share information about the signs of scoliosis in your school. 💚

It’s perfect for classrooms, corridors, noticeboards or anywhere pupils, teachers and families can see it.

The poster helps people understand some of the things to look out for and encourages children and families to seek professional advice if they have concerns.

🏫 Are you a school, teacher or parent?

Download and print our free ABCD poster and help spread scoliosis awareness this September.

📚 Find it alongside our other free school resources in our Resource Library:

https://ssr.org.uk/explore-more/resource-library/

The more we know, the more we can recognise. 💚

🏃‍♀️ EDINBURGH MARATHON CHARITY PLACES AVAILABLE! 🏃‍♂️We’re excited to share that a limited number of charity places hav...
24/09/2026

🏃‍♀️ EDINBURGH MARATHON CHARITY PLACES AVAILABLE! 🏃‍♂️

We’re excited to share that a limited number of charity places have become available for the Edinburgh Marathon in May 2027! 🎉

If you’re looking for a challenge and would like to run while raising vital funds and awareness for people affected by scoliosis, we’d love to hear from you.

We also have charity places available across a huge range of running events throughout the UK, from fun family-friendly distances to 10Ks, half marathons and marathons:

✨ Men’s & Women’s 10Ks – Glasgow & Edinburgh
✨ Scottish 10K & Scottish Half Marathon
✨ Edinburgh Marathon Festival – 5K, 10K, Half Marathon, Marathon & Junior races
✨ Run Bournemouth – Kids’ Mile, 1.5K, 2K, 5K, 10K & Half Marathon
✨ Supernova Runs – Forth Road Bridge & Kelpies
✨ Kilomathon – Mini, 6.5K & 13.1K
✨ Big Fun Run & Dog Jog

Interested in running for SSR? 📩

Get in touch with our fundraising team at [email protected] to find out more and secure your place.

Every step helps us support people affected by scoliosis. 💜🙌

📢 This is not an Scoliosis Support & Research-led event. We’re sharing it as an opportunity that may be of interest to o...
24/09/2026

📢 This is not an Scoliosis Support & Research-led event. We’re sharing it as an opportunity that may be of interest to our community.

Curves in our Spines with Fused not Fragile 🦴

Join anatomist F***y Simpson from Fused not Fragile for an afternoon and evening of connection, conversation and learning for people living with scoliosis and spinal fusion.

📅 14 November 2026
🕟 4:30–7:30pm
📍 Hunterian Museum, London
🎟️ Free, but places are limited

Explore spinal anatomy from both a scientific and lived perspective, learn more about how scoliosis affects the spine and body, and connect with others living with scoliosis and spinal fusion.

The event will also include a private view of the Hunterian Museum, including a 200-year-old human spine with kyphoscoliosis from the Museum’s collections.

The event is exclusively for people with scoliosis and/or spinal fusion.

👉 Book your free place: https://www.eventbrite.co.uk/e/curves-in-our-spines-tickets-2001536852606

Find out more about Fused not Fragile: https://fusednotfragile.co.uk/

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Ground Floor, 329 Latimer Road
London
W106RA

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

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