Sickle Cell Society UK

13/08/2026

Where do you go for information on your condition?

We know that patients are experts in their condition and there are many resources available to support you as advocates in your own care for sickle cell and thalassaemia. NHS England would like to understand more about where you go to find out more information, how easy it is to find resources and what you would like to see improved.

Please complete this short survey to share your views and experiences. Your responses will be used to shape the development of a new education project to improve the accessibility of patient information and resources.

Scan the attached QR code attached to complete the survey and share with friends and family!

Any questions, please contact: [email protected]

11/08/2026

⛳ A huge thank you to everyone involved in the Windrush Trophy Charity Golf Day at Woolston Manor Golf Club, which raised an incredible £2,000 for the Sickle Cell Society.

Special thanks to Charles Sam, Windrush Trophy and Woolston Manor for making it such a success. 💙

05/08/2026

Share Your Voice! Sickle Cell Research Participants Wanted!

We're looking for young people aged 13-24 living with sickle cell and parents/caregivers to share their experiences of healthcare transition.

Moving from children's to adult healthcare can be challenging. We want to understand your experiences so we can create better support and resources for healthcare practitioners to use when helping young people in their health transition journey.

We are looking for:
• Young people (13-24 years) living with sickle cell
• Parents and caregivers of young people (aged 13-24) living with sickle cell

What's involved: Taking part in one online focus group where you'll share your experiences with other participants in your age group who have had similar experiences
Who can take part: Anyone living in England or Wales who is preparing for, going through, or has been through the move from children's to adult healthcare.

Why it matters: Your experiences will help us create better support and resources for healthcare transition.

Interested? Contact us at: [email protected] or 07587970965

23/07/2026

This Saturday, create something from nothing. ✂️📖

Join us for "In the Age of Everything. How do we Create from Nothing?" – a free Zines & Collage workshop designed for people living with Sickle Cell Disorder.

In a world full of constant noise, take time to slow down, get creative, connect with others, and express yourself in a relaxed, supportive space. No experience needed.

🗓 Saturday 25th July
⏰ 1:00pm–5:00pm
📍 Bay20 Community Centre, Ladbroke Grove, W10 6JG

✨ Free to attend
✨ Free lunch included
✨ Community-led creative workshop
✨Ages 10+ living with Sickle Cell Disorder (plus one family member or friend)

Last chance to register: bit.ly/createfromnothing

22/07/2026

📢 Invitation to Tender

The Sickle Cell Society is seeking an experienced provider to deliver a secure, reliable and fully managed VoIP telephone system to support our confidential helpline and organisational communications.

We're looking for providers with expertise in telephony, CRM integration, data security, accessibility and ongoing support.

🗓️ Tender deadline: Monday 7 September 2026, 5pm

Download the full Invitation to Tender and response template here: https://buff.ly/6UkMyht

20/07/2026

🚨 We're hiring! 🚨

Want to use your admin skills to make a real difference?

The Sickle Cell Society is looking for a Part-Time Mentor Administrator to support our Children & Young People's Peer Mentoring Programme, helping improve the health and wellbeing of young people (aged 10–24) living with sickle cell across North-West England (Liverpool & Manchester) and South Yorkshire (Sheffield).

✨ Flexible home working within the programme area
🕒 Part-time (17.5 hours per week)
📅 12-month fixed-term contract

This role is ideal for an experienced administrator with Sickle Cell Disorder (SCD) who is passionate about supporting young people and strengthening their communities.

📅 Apply by 5 August 2026, 12pm.

Find out more and apply at: buff.ly/b8W79rI

06/07/2026

We're recruiting for an exciting role that will help tackle health inequalities within London's prison estate.

We're looking for a Prison Estate Training & Development Lead to lead an innovative NHS-funded programme improving care for people living with sickle cell disorder while in custody.

We would also welcome applications/secondments from NHS England, Health and Justice staff.

Working with prison healthcare teams, NHS England, clinical specialists and people with lived experience, you'll develop and deliver training, build partnerships and help improve health outcomes across nine London prisons.

The role is home based with travel across London and regular visits to our Willesden Junction office.

🕒 14 hours per week
💷 £28,560 pro rata plus pension
📅 Fixed-term for two years

If you're an experienced programme manager with excellent stakeholder engagement skills and a passion for reducing health inequalities, we'd love to hear from you.

Find out more and apply:
https://buff.ly/XH3Rp6X

06/07/2026

🏺✨ Join us for the next session in our Creative Workshop Series: The Ancestral Spine – Intro to Coil Pottery.

Discover the art of coil pottery and create your own unique piece while exploring creativity, culture and connection in a relaxed and welcoming space.

📅 18 July 2026
📍 Bay20 Community Centre, Ladbroke Grove

🎟️ Limited spaces available!

👉 To book your free place, please scan the QR code on the next poster.

We look forward to creating with you.

03/07/2026

We're hiring! Join the Sickle Cell Society as our Fundraising and Database Officer.

Are you passionate about fundraising, building great supporter relationships and using data to make a difference?

We're looking for someone who can help grow our fundraising, support community events, deliver excellent donor care and use our CRM system to help us understand and engage our supporters.

This is a fantastic opportunity to develop your fundraising career while helping improve the lives of people affected by sickle cell disorder.

📍 London based hybrid role (minimum one day a week in our Willesden Junction office)
🕒 Full time – 35 hours per week
💷 £29,500–£31,000 plus pension

Find out more and apply on our website:
https://buff.ly/qsc3BHX

We are looking for a Fundraising and Database Officer to join the Sickle Cell Society’s small, friendly and committed team. This is an exciting and varied role supporting the delivery of our fundraising strategy, with a particular focus on community fundraising, supporter care and CRM database man...

29/06/2026

🌿🎨 Join us for the next session in our Creative Workshop Series!

Discover the natural beauty of the world around us in Colours of the Earth – Pigment to Paint, where we'll explore how natural pigments can be transformed into art through creativity, connection and self-expression.

📅 4 July 2026
📍 Bay20 Community Centre, Ladbroke Grove

Open to people living with sickle cell, their families and supporters. Free to attend.

👉 To book your free place, scan the QR code on the nextposter.

We can't wait to create with you!