Brompton Awareness

Brompton Awareness This page is run by The Brompton Fountain (Charity 1110339)

Highlighting the fantastic work of Royal Brompton and Harefield hospitals, the patients treated here and the incredible teams who work tirelessly to provide 24 hour world class care. This page has been set up by The Brompton Fountain charity (No 1110339) to share up to date news and information on Royal Brompton and Harefield Hospitals (part of Guys and St Thomas NHS Foundation Trust).

We've had so many people telling us what an incredible film 'Something the lord made' is.Starring the late Alan Rickman,...
07/10/2026

We've had so many people telling us what an incredible film 'Something the lord made' is.

Starring the late Alan Rickman, its based on the real-life partnership between Dr. Alfred Blalock, a white surgeon, and Vivien Thomas, a Black lab technician. Together, they worked at Johns Hopkins Hospital in the 1940s and pioneered modern heart surgery (BT shunt), specifically the "Blue Baby" operation. (Film bio text via Wikipedia)

Has anyone seen it?

On World Heart Day ❤️ we once again celebrate two of the most eminent, legendary (and best dressed) cardiac clinicians o...
29/09/2026

On World Heart Day ❤️ we once again celebrate two of the most eminent, legendary (and best dressed) cardiac clinicians on the planet.

Dr Michael Rigby - renowned consultant cardiologist and chairman of The Brompton Fountain children’s charity and pioneering heart surgeon Professor Sir Magdi Yacoub - President and Founder of the Chain of Hope and Magdi Yacoub Global Heart Foundation + Magdi Yacoub Heart Foundation

We don’t really have the words to do justice for these two GIANTS of the cardiac world who have made a difference to thousands of people with heart conditions throughout the UK and across the world for over six decades!! ❤️❤️

📷 Image taken at Chain of Hope Gala.

More than 300 patients, supporters, local residents and colleagues joined Harefield Hospital for their theatres and cath...
24/09/2026

More than 300 patients, supporters, local residents and colleagues joined Harefield Hospital for their theatres and cath labs Open Day, getting a unique behind-the-scenes look at the specialist care delivered every day by their teams.

Visitors explored their operating theatres and catheter laboratories, met staff from across the hospital and took part in hands-on activities designed to bring the world of heart and lung care to life. From trying surgical stitching techniques to learning more about the technology used in specialist procedures, there was something for everyone.

The day showcased not only the innovation and expertise that underpin care at Harefield Hospital, but also the teamwork that makes it possible, with colleagues from across clinical and non-clinical services coming together to support the event.

They were delighted to welcome the community through their doors and share more about the life-changing work that takes place at Harefield Hospital every day.

📷I Image and information credit - Royal Brompton and Harefield LinkedIn

Fraser was born with a complex heart condition (TGA) and had three major surgeries at Royal Brompton Hospital. He didn't...
23/09/2026

Fraser was born with a complex heart condition (TGA) and had three major surgeries at Royal Brompton Hospital. He didn't let his condition hold him back from taking on an epic fundraising challenge - riding 874 MILES from Lands End to John O'Groats. We are delighted to say he completed the ride and raised an incredible £6128 for The Brompton Fountain children’s charity.

Our heartfelt thanks and congratulations go to Fraser for his fantastic fundraising to support children with heart conditions ❤️

DAVE'S HEART STORY ❤️ 'I first discovered I had a heart condition in my late twenties, after going to my GP because my h...
22/09/2026

DAVE'S HEART STORY ❤️

'I first discovered I had a heart condition in my late twenties, after going to my GP because my heart had started beating irregularly.

I was diagnosed with hypertrophic cardiomyopathy (HCM), an inherited condition that can cause the heart muscle to become thickened. It wasn't entirely unexpected news — my older brother had already been diagnosed with the same condition several years earlier.

For many years, medication and certain procedures helped keep things under control. But gradually, my condition continued to progress.

I knew where that progression could lead, as I had watched my brother become increasingly unwell. In 2016, his heart failure became so severe that he was told a transplant was his only option. After spending several months in hospital being supported and prepared for transplant, thankfully a donor heart was found for him.

Three years later, incredibly, I found myself following the same path.

During 2018, my own heart began struggling badly. I was increasingly breathless, experiencing ongoing rhythm problems and spending more time in hospital. Eventually, I was referred to a specialist heart-failure team and, by January 2019, I too was told that a heart transplant was my only option. Without one, I didn't have much more time.

The following month, I was admitted to Harefield Hospital and placed on the urgent transplant list. Medication supported my failing heart as the wait for a donor began.

I was incredibly fortunate. After just four weeks, I was told that a suitable donor heart had become available.

That heart changed everything.

Seven years later, I'm still here thanks to my donor.

I've travelled, returned to work, made music, competed at the British Transplant Games, written a book, celebrated more birthdays, and spoken to hundreds of young people about organ donation.

But my donor also gave me something every bit as precious. Time with family and friends. Laughter. Meals out. Walks. Holidays. Life.

That's what organ donation gave back to me: time, and the chance to keep living it.

And remarkably, it has happened twice in our family.

Two brothers. Two heart transplants. Two donors. Two families who, at unimaginably difficult moments, helped give us the chance to keep living.

That's why Organ Donation Week matters so much to me.

In England, we have an opt-out system, but families are always involved in organ donation. Making your wishes known really matters.

Whatever your decision, please record it on the NHS Organ Donor Register and, just as importantly, talk about it with the people closest to you.

Think about your wishes. Record your decision. Tell your family.

I will never be able to thank my donor or their family for everything their decision has given me.

But I can spend the life I've been given being grateful for it, honouring that decision by living it to the full — and doing what I can to raise awareness about the difference organ donation makes'.

Dave Webb

NHS Organ Donation The Brompton Fountain

On 4 January 2023, my life changed in a way I could never have imagined.For several months, I had been experiencing sign...
14/09/2026

On 4 January 2023, my life changed in a way I could never have imagined.

For several months, I had been experiencing significant pain. I had previously undergone a hernia operation, so initially I thought the pain might be connected to that. But in September 2022, it became so severe that my wife, Hazel, took me to A&E.

The doctors could not immediately identify the cause, but they recommended that I complete a Faecal Immunochemical Test, commonly known as a FIT test. When the result came back positive, I was referred for a colonoscopy.

Although I was sedated, I remained conscious enough to watch the procedure on a screen. I could tell from the reactions of the medical team that they had found something serious.

Biopsies, MRI scans and CT scans followed. Then came the news none of us was prepared for: I had stage 4 bowel cancer. It had already spread to my liver and lungs.

The cancer was treatable, but I was told it was not curable. Doctors estimated that I had between two and three years to live.

In that moment, everything changed—my plans, my assumptions and the way I viewed the future. Like many people receiving such a diagnosis, my first question was, “Why me?”

As a Christian and a pastor, I also found myself asking where God was in all of this. Yet, alongside the shock and fear, I experienced a peace that made no logical sense. I came to realise that the diagnosis belonged to the doctors, but the prognosis belonged to God. I believed that God had numbered my days, not cancer.

Treatment began with chemotherapy, intended to shrink the tumours in my bowel so that surgeons could remove them. Soon after starting treatment, my Fitbit alerted me that my heart rate had risen dramatically. The chemotherapy had triggered a heart arrhythmia, and I needed cardioversion—an electric shock to restore my heart to its normal rhythm.

Once my heart had stabilised, surgeons attempted to remove the bowel tumours through keyhole surgery. Unfortunately, the join in my bowel began to leak, causing extraordinary pain. I needed emergency open surgery which, although successful, left me with a colostomy.

Of everything I experienced, adjusting to life with a colostomy was one of the hardest things to accept.

More chemotherapy followed. Surgeons then attempted to remove the cancer from my liver, but when they began the operation, they discovered that it was more extensive than expected. They could not proceed as planned, although my gallbladder was removed during the operation.

There were moments when it felt as though every hopeful step forward was followed by another setback.

I went on to receive immunotherapy, and a later operation to remove the cancer from my liver was successful. The final liver metastasis was removed in December 2024.

Attention then turned to the cancer in my lungs. I underwent ablation procedures at the Brompton in April and August 2025 to target several lung tumours. When some of the cancer continued to grow, surgeons removed a metastasis from my left lung in March 2026.

The remaining tumour in my right lung was treated with highly targeted SABR radiotherapy, completed in May 2026. Shortly afterwards, I became seriously unwell with a temperature of 39.6°C and was admitted to hospital with an infection.

Then, in August 2026, three and a half years after being told that I might have only two or three years to live, I received news I had hardly dared to imagine.

My latest scan showed that the radiotherapy had destroyed the final visible tumour. There were no signs of cancer currently showing in my body, and I was told that I was no longer considered terminal or under palliative care.

My treatment port, which had been surgically implanted years earlier, could finally be removed. I am also being assessed to see whether my colostomy can be reversed.

Cancer has taken me through chemotherapy, immunotherapy, radiotherapy, heart treatment, repeated operations, a colostomy and more hospital corridors than I care to remember. It has affected every part of life—not only for me, but for Hazel, our sons and our wider family.

There have been dark days, fear, exhaustion and uncertainty. There have also been moments of laughter, extraordinary peace and overwhelming kindness.

Throughout it all, my prayer has been that I would receive the best of Jesus and the best of medicine. I am deeply grateful for the skill, care and persistence of the NHS doctors, nurses, surgeons and oncology teams who continued treating me when one approach after another presented new complications.

My questions have changed along the way. “Why me?” became “Why not me?” Eventually, it became a much more helpful question: “What now?”

That question led me to write my book, The Big C in Me (link in comments), and to create a community for people living with cancer and those walking alongside them. The proceeds from the book are helping WayMaker International work towards providing medical care for communities in Africa where people do not have access to the treatment that helped save my life.

Cancer is big. I would never pretend otherwise. But it is not the biggest thing in my life, and it does not get the final word.

Every morning I wake up with one simple thought:

I’m still here—so what are we going to do with today?

— Andy Robinson

Amazing ❤️
09/09/2026

Amazing ❤️

Leo sadly passed away a few months ago from an extremely rare heart condition (only 80 cases reported worldwide). We sen...
07/09/2026

Leo sadly passed away a few months ago from an extremely rare heart condition (only 80 cases reported worldwide). We send our love to his parents, big brother and family ❤️

Make a difference for heart and lung care 💙Volunteering is a great way to get involved with The Brompton Fountain charit...
28/07/2026

Make a difference for heart and lung care 💙

Volunteering is a great way to get involved with The Brompton Fountain charity. You’ll work alongside their staff team to make a meaningful difference for children and young adults with heart and lung conditions and their families.

They are seeking volunteers to support their in-hospital activities at Royal Brompton Hospital, Harefield Hospital, St Thomas' Hospital and Evelina London Children’s Hospital, as well as their fundraising and community engagement events throughout London and the South East.

There are opportunities for those who would like to commit regularly, as well as tasks or activities for those that prefer to help on a more adhoc basis. Voluntary work is also valuable for building a CV, especially during or after a break from paid work, whilst studying, or during a gap year.

Interested in finding out more? They would love to hear from you. Please call 07864 772262 or email [email protected] ❤️💙

Address

Royal Brompton Hospital, Sydney Street
London
SW36NP

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