Nerve Tumours UK

Nerve Tumours UK We seek to be the UK’s authoritative voice on Neurofibromatosis.

The UK’s Voice for NF (NF1, NF2 & SWN) 💙

Support & Empowerment 🤝
Helpline & Resources 📞
Raising Awareness 🗣👥👥
Fundraising & Campaigning 🏃‍♀️📣🚴‍♂️

💪 For over 45 years, Nerve Tumours UK has provided support and information to the 26,500+ people in the UK who have Neurofibromatosis (NF), the medical name for a set of genetic conditions that cause tumours to grow

on nerve endings: Neurofibromatosis Type 1, NF2-related-Schwannomatosis and Schwannomatosis. Nerve Tumours UK sees a future in which the needs of everyone within the NF community are met, so our mission is to improve, serve and celebrate the lives of anyone affected by NF, as well as their wider support network. We’re here to improve lives for people with NF, by ensuring they have access to all the help they require, while campaigning and raising awareness and understanding of the conditions.

We are delighted to hear that Professor Dafydd Gareth Evans, one of our Patrons, Chair of our Medical Advisory Board and...
15/06/2026

We are delighted to hear that Professor Dafydd Gareth Evans, one of our Patrons, Chair of our Medical Advisory Board and National Lead NF2-related-Schwannomatosis, has been recognised with an MBE in the King's Birthday Honours 2026. This is incredibly well deserved, recognising all his support to the NF Community, his work with us, his outstanding career in medical research and more.

Congratulations Professor Evans! 🎉💙

https://nervetumours.org.uk/about-us/medical-advisory-board/ / https://nervetumours.org.uk/about-us/patrons/

Congratulations to Mx L, you're this week's winner! 🎉Ready to book your next getaway, beach break, cosy cottage or city ...
15/06/2026

Congratulations to Mx L, you're this week's winner! 🎉

Ready to book your next getaway, beach break, cosy cottage or city trip? 🏖️🏡🏙️ Well the June Super Draw prize is your chance to win a £1,000 Airbnb getaway or equivalent cash prize. Each weekly ticket gets you one entry into the Super Draw, so why not help fund our support services with every ticket you buy? Get your tickets before Saturday 27 June for your chance to win big! 🎫

https://bit.ly/3dc4Gjj

Stay up-to-date with Nerve Tumours UK with our monthly newsletter!Be the first to hear about:📰 Our latest news and updat...
14/06/2026

Stay up-to-date with Nerve Tumours UK with our monthly newsletter!

Be the first to hear about:
📰 Our latest news and updates
🎉 Fundraising events + opportunities
💙 Inspiring community stories
🔬 Brand-new NF research + Information Days
🛍️ Shop deals & lottery updates

Don’t miss out, next edition will be out this coming week, so make sure you stay by signing up today! 📨

👉 https://nervetumoursuk.typeform.com/to/ApmWAJ3w

Cupcakes, craft, lunches and light-ups, Laura and her mum Isabel have been doing an amazing job fundraising and awarenes...
12/06/2026

Cupcakes, craft, lunches and light-ups, Laura and her mum Isabel have been doing an amazing job fundraising and awareness raising for our work with the NF Community! 💙

You can see what they've been up to here: https://nervetumours.org.uk/news/lauras-fundraising-for-shine-a-light-2026/ or read Laura's NF1 Story here: https://nervetumours.org.uk/news/lauras-nf1-awareness-story/

There are so many ways you can support our work, but if you need some more ideas to help you get started: https://nervetumours.org.uk/get-involved/fundraising-ideas/fundraising-ideas-a-z/

In just under a month's time, Rebecca, Deputy Master of the Worshipful Company of Horners, will be defying gravity in an...
12/06/2026

In just under a month's time, Rebecca, Deputy Master of the Worshipful Company of Horners, will be defying gravity in an aerobatic wing walk challenge, to help fundraise for our work with the NF Community! 🛩️☁️💙

You can find out more about what this heart-pounding challenge will involve on her fundraising page: https://www.justgiving.com/page/horners-for-nerve-tumours-uk-charity

Whether you like your fundraising that adrenalin-filled or if you'd prefer something more grounded, we've got loads more ideas to help you get started: https://nervetumours.org.uk/get-involved/fundraising-ideas/fundraising-ideas-a-z/

Refer a friend to support us via One Lottery and you could win £200! That's on top of weekly cash prizes and monthly Sup...
11/06/2026

Refer a friend to support us via One Lottery and you could win £200! That's on top of weekly cash prizes and monthly Super Draws. 🎫

Every ticket helps fund our support services to the 26,500+ with NF in the UK. This year we're on course to raise between £4-5,000. Can you help us raise even more?

Play now 👉 https://bit.ly/3dc4Gjj for this week's draw on Saturday, just £1 a ticket.

With the World Cup kicking off tomorrow, there are lots of ways you could use it as a great reason for a fundraiser with...
10/06/2026

With the World Cup kicking off tomorrow, there are lots of ways you could use it as a great reason for a fundraiser with your friends, family, colleagues, school, club or community!

You could:
🎫 organise a sweepstake
🦶 ⚽ take on a keepy-uppy challenge
📺 host a watch party
🥅 set up a fundraiser match, penalty shoot out or tournament
📝❓ run a football-themed quiz night
🍔🌮🍲 arrange a World Cup-themed meal (foods from across the world!)
🎽 have a 'wear your kit' day

Whatever you do, every bit of support raised goes a long way in supporting the NF Community. For more fundraising ideas, head to: https://nervetumours.org.uk/get-involved/fundraising-ideas/fundraising-ideas-a-z/

How about supporting us by attending a fabulous concert? Sacred Heart Chorus and Orchestra have very kindly chosen to su...
09/06/2026

How about supporting us by attending a fabulous concert? Sacred Heart Chorus and Orchestra have very kindly chosen to support us through their summer concert!
🎶 Mozart Requiem | Overture to The Magic Flute
🎺 Haydn Trumpet Concerto
📆 Saturday 20th June 8pm
Taking place at Sacred Heart Church Wimbledon and performed by full chorus and orchestra, the evening promises an unforgettable musical experience.

Find out more and book your concert tickets today: https://nervetumours.org.uk/news/sacred-heart-music-quiz-night-and-summer-concert/

Several members of the Nerve Tumours UK Head Office in Raynes Park are parishioners at Sacred Heart Church, including Karen Cockburn, Charity Director; Alison Lobo, Rosalie Ryce and Emily Corea.

The church recently lit up for our awareness campaign, one of 230 buildings lighting up around the UK and Ireland.

Sacred Heart Music

Address

1st Floor, 44 Coombe Lane, Raynes Park
London
SW200LA

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+442084391234

Website

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