Nerve Tumours UK

13/08/2026

We love hearing all the amazing stories from our ! Today's story is from Charlotte, who has NF1, who talks about how her diagnosis led to both her brother and dad also being diagnosed, and how that led her onto fundraising to raise support and awareness of NF. https://nervetumours.org.uk/news/charlottes-nf1-story/

Got your own story? Tell us it here: https://bit.ly/3Il7nRJ

13/08/2026

Refer a friend to support us via One Lottery and you could win £200! That's on top of weekly cash prizes and monthly Super Draws. 🎫

Every ticket helps fund our support services to the 26,500+ with NF in the UK. This year we're on course to raise between £4-5,000. Can you help us raise even more?

Play now 👉 https://bit.ly/3dc4Gjj for this week's draw on Saturday, just £1 a ticket.

12/08/2026

🗨️ Need someone to talk to about NF? 💬

The Nerve Tumours UK Helpline is here for you. Whether you’re looking for information, advice, or just a listening ear, our team is ready to help Mon-Wed-Fri, 9-5.

📞 Freephone: 0300 102 1722 📱 Mobile: 07939 046030 ✉️ Email: [email protected]

Or find out more here: https://nervetumours.org.uk/help/line/

Give our Support Specialists a call on Mondays, Wednesdays & Fridays 9am-5pm. Find out more here.

11/08/2026

We can help our NF Community in lots of ways, but know that there may also be other areas you find difficult which aren't what we specialise in. That's why we put together our Helpful Charities page, with lots more info on, and links to, other useful charities.

Head to: https://nervetumours.org.uk/help-hub/helpful-charities

Find some other helpful charities that may be able to support you here

10/08/2026

A reminder that we have a number of free places available for those with NF2 to study and learn British Sign Language (BSL) online. The course is provided by the excellent British Sign Language and you can find out more about them, their free online BSL dictionary, sign of the day and BSL memory games on their website: https://www.british-sign.co.uk/what-is-british-sign-language/

Or for more info about registering your interest in taking one of the free places, which must be done via the four UK NF2 Units, you can head to our website: https://nervetumours.org.uk/news/bsl-course-places-for-those-with-nf2/

10/08/2026

Congratulations to Ms W, you're this week's winner! 🎉

Who's up for a fancy holiday? 🏖️🏡🏙️ Well the summer Super Draw prize is your chance to win a £2,000 luxury holiday or cash alternative. Each weekly ticket gets you one entry into the Super Draw, so why not help fund our support services with every ticket you buy? Get your tickets before Saturday 29 August for your chance to win big! 🎫

https://bit.ly/3dc4Gjj

09/08/2026

💙 Join our community by becoming a Nerve Tumours UK Member and support over 26,500 people living with NF across the UK. 💙

As a member, you’ll receive our biannual Nerve Tumours UK Magazine filled with inspiring stories, news, research updates and much more. Plus, enjoy a supporter pack with a brand-new tote bag!

🔹 Standard Membership: £30/year
🔹 Concessionary Membership: £15/year

Stay connected by signing up today 👉 https://nervetumours.org.uk/get-involved/become-a-supporter

Become a member today and you'll be helping the 26,500 people affected by NF in the UK.

08/08/2026

Stay up-to-date with Nerve Tumours UK by signing up for our monthly newsletter!

Be the first to hear about:
📰 Our latest news and updates
🎉 Fundraising events + opportunities
💙 Inspiring community stories
🔬 Brand-new NF research + Information Days
🛍️ Shop deals & lottery updates

Don’t miss out, with the next edition coming soon, there's no better time to make sure it's landing in your inbox! 📨

👉 https://nervetumoursuk.typeform.com/to/ApmWAJ3w

07/08/2026

A big Funders Friday thank you to the amazing team at Toad Hall Nursery Limited, who recently held their annual fundraising day, in support of our work. They chose us because of 3 year-old Lily, who has NF1 and attends the nursery. https://nervetumours.org.uk/news/toad-hall-nursery-fundraising-day/

If you similarly want to support our work with the NF Community but need some inspiration, our BIG Fundraising Ideas A-Z is for you! It's jam-packed with all sorts of ideas to get you started and we're here to support you throughout. Take a look today and get in touch when you've picked what you want to do!

https://nervetumours.org.uk/get-involved/fundraising-ideas/fundraising-ideas-a-z/

06/08/2026

Good to see more NF stories in the news recently! 💙

This Mum of a little girl with NF1 in Weston-Super-Mare is calling on the government for more support for those with NF and their families: https://www.lbc.co.uk/article/andy-burnham-social-care-disability-5HjdfKn_2/

While Emily, our wonderful NF2 Ambassador, is quoted in this article: https://www.christiandaily.com/news/uk-charity-launches-hearing-loss-training-for-churches

Each NF story that gets shared helps more people to find out about and better understand NF.

https://nervetumours.org.uk/get-involved/share-your-story