Nerve Tumours UK

08/10/2026

We love all the amazing stories from our ! Today's story is from Megan, who has NF1, who told us about her diagnoses, procedures and surgeries, but also how she has still pursued her passion and dreams. "NF1 is part of me, but it doesn't define me." 💙 https://nervetumours.org.uk/news/Megan-and-nf1/

Got your own story? Tell us it here: https://nervetumours.org.uk/get-involved/share-your-story/

08/10/2026

Refer a friend to support us via One Lottery and you could win £200! That's on top of weekly cash prizes and monthly Super Draws. 🎫

Every ticket helps fund our support services to the 26,500+ with NF in the UK. This year we're on course to raise between £4-5,000. Can you help us raise even more?

Play now 👉 https://bit.ly/3dc4Gjj for this week's draw on Saturday, just £1 a ticket.

07/10/2026

DYK we have a whole section of our website full of dedicated NF resources (webinars, lectures, guidelines, documentation and more) for healthcare professionals? 🏥🧑‍⚕️

Whether you work in health, know someone who does, or just want to point those involved in your care towards this area, get started at 👉 https://nervetumours.org.uk/medical-information

06/10/2026

The new school term is well underway but the Contact - For families with disabled children team say many disabled children who are entitled to free school meals may still be missing out, for a variety of reasons.

They've pulled together information and resources to help families with this, with factsheets, a legal guide and template letters available for your school or local authority: https://contact.org.uk/help-for-families/campaigns-and-research/free-school-meals-for-disabled-children/if-your-child-missing-out-on-free-school-meals/

05/10/2026

Did you know October is Free Wills Month? It's one of many occasions through the year which aim to encourage people to think about making a Will and supporting a charity through a legacy gift. https://freewillsmonth.org.uk/

We know that none of us particularly want to think about not being here anymore, but having a Will is an important part of planning for the future and leaving a charity legacy could mean you'll continue to support your NF Community for many more years.

Find out more about supporting us through a legacy here: https://nervetumours.org.uk/get-involved/legacies/

05/10/2026

Congratulations to Ms H, you're this week's winner! 🎉

It's new Super Draw prize time and this one is pretty exclusive...it's your chance to win the 2026 brand-new iPhone 18 Pro Max 512GB or cash alternative. Fancy an upgrade? 📱

Each weekly ticket gets you one entry into the Super Draw, so why not help fund our support services with every ticket you buy? Get your tickets before Saturday 31 October for your chance to win big! 🎫

https://bit.ly/3dc4Gjj

04/10/2026

There's just over a week to go to join The Neurological Alliance by adding your voice to their call for a national neuro plan. They are asking the Government to commit to and implement a national plan for neurological conditions. Millions are waiting for the care and services they need.

Over 8,600 people have already signed their open letter and each new signature strengthens the case for change. Please add your support too if you are able. Thank you. https://campaigns.mssociety.org.uk/page/194554/petition/1

I’m calling on the government to make a national plan for neurological conditions. Millions of people are waiting for us to create this change together. Neuro plan now!

03/10/2026

The NeuroFibromatosis Association of Ireland team are inviting everyone, whether you are living with NF, a family member or carer, healthcare professional, student, or are simply interested in learning more, to their 2026 Open Day on Sat 24 Oct at Croke Park, Dublin.

Places are free but have to be booked in advance. For more details and to register, head to: https://www.tickettailor.com/events/theneurofibromatosisassociationofirelandclg/2392371

NF Ireland Open Day 2026 – Croke Park, Jones Road, Dublin 3, Sat 24 Oct 2026 - NF Ireland Open Day 2026 We are delighted to invite you to the NF Ireland Open Day 2026, taking place on Saturday 24th October 2026 at Croke Park, Dublin. Join us for a day of expert talks, information, help and support...

02/10/2026

Don't forget that even if you missed out on a place for the 2027 London Marathon, you still have plenty of options! Not only do we have loads of other events on our Challenge Hub which you can take on instead, there's also the London Marathon My Way.

My Way gives you the chance to run the famous 26.2 miles, still on Saturday 24 or Sunday 25 April, but at another location of your choice that might even suit you better. To find out more or to enter, head to: https://www.londonmarathonevents.co.uk/london-marathon/tcs-london-marathon-myway

01/10/2026

We love all the amazing stories from our ! Today's story is from David, who has NF1, who told us all about his NF journey and how he first found out about our work through seeing our digital ads at a train station and how encouraged and empowered he felt by them. https://nervetumours.org.uk/news/davids-story/

Got your own story? Tell us it here: https://nervetumours.org.uk/get-involved/share-your-story/