MRKH Connect

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MRKH Connect

We are a registered charity (reg. 1157477) with a mission to connect and support those with MRKH MRKH Connect is a registered charity in England and Wales.

We are a non-profit, aiming to connect those with MRKH all over the world; providing a safe place to create lifelong friendships. MRKH Connect was founded in 2014 by Kelly and Janet. Their aim, which remains today, was to relieve and promote the relief of those diagnosed with Mayer Rokitansky Kuster Hauser (MRKH) Syndrome and to provide support both to them and their families. We provide a platform for those with MRKH to connect and share experiences together in a safe environment whilst providing public resources for those with MRKH and their families as well as the wider community. We also work towards advancing public awareness of MRKH through education and information and we campaign for better access to medical care, reducing the time to diagnosis and therefore improving the time to get to critical support post diagnosis

26/09/2026

An MRKH diagnosis can feel like hitting a literal brick wall.

It stops us in our tracks, it's unexpected and unexplainable and can leave us feeling lonely and isolated.

Randomly seeing M R K H scrawled on a brick wall felt like a reminder of that time, those feelings and the emotion that followed.

Yet those letters written out of context can be as much a reminder of how far we have come as it is one of those first utterings of MRKH and what that means for us.

We hope that whoever scrawled those letters has found support and community to help them on their journey.

You are not alone💜

25/09/2026

Join us for our next online peer support group Connect with Friends on Sunday 18th October 7pm BST (UK time)

These events are designed to be relaxed and informal with the chance to chat and share, or just listen, no pressure, with friends old and new💛

As with all our Connect with Friends this is only for those with MRKH and all MRKHers over 16 are welcome regardless of where you are in your journey.

We hope to see you there 🤍

Follow the link to register https://mrkhconnect.co.uk/connect-with-friends-18th-oct-2026/

24/09/2026

Three months ago, we asked our community to write for us and share a submission based on the theme: A day in my life as a person with MRKH. ❤️

We are super excited to share our fourth submission: a deeply personal and moving essay exposing the disparity between knowing and learning about MRKH, and the impact of voicelessness when you crave it the most. ✍️

An essay by Ginnie Arielle Raharison, titled:nA story of medical inequality: How MRKH found me before medicine did! 🩷

“ I was eighteen the first time a doctor was confused by my body.

My mother had noticed I still hadn’t started my periods, and my mother was concerned why I hadn’t. She took me to see a gynaecologist back home in Madagascar. That appointment turned into years of tests, blood draws, more waiting rooms than I can count. And every time, the same answer, nothing.

The gap in African healthcare isn’t a lack of women that can’t change our reality but a lack of people who believe we will change.” ❤️

Thank you so much, for sharing such a powerful, honest, and courageous piece of writing. You are an inspiration to so many. ✨

22/09/2026

You have no idea how brave you are. The weight you carry is back-breaking. You’re navigating more as a teenager than most have to in an entire lifetime. There is so much magic in you. What a woman you are. ❤️

20/09/2026

We are proud to support the national Walk & Talks for anyone affected by infertility 🧡

The first walk will be 27th September at various locations nationally and open to all. Look out for a future one where we will host one of these walks ourselves and hopefully our friends MRKH Community, Storytelling, Wellbeing & Advocacy NFP too :)

These events are a relaxed space, no pressure, no judgement, no advice just simply the chance for some fresh air and a chance to chat and share with others navigating their own fertility journeys despite the different paths that got them there.

Follow the link to sign up and check out the list of walks below 👇

https://www.eventbrite.com/cc/fertility-walk-and-talk-4871843/?just_published=true

In London

📍Hyde Park with Yulia | Women’s Hormonal Health, Fertility & Loss Coach & Too Much Information, the women’s health podcast

📍Peckham with Amy The Evewell | IVF | Fertility

📍Greenwich with

📍Tooting with Fertility Acupuncture | IVF | Hannah Pearn

📍 Kingston with Fertility Acupuncture Surbiton

📍 Regents Park with PCOS Endometriosis Fertility Nutritionist

📍 Wimbledon Common with IVF BFF Podcast

📍 Hampstead Health with Alison Hall | Fertility & Miscarriage Nutritionist

South West

📍 Bristol with Fire & Light Coaching

📍 Taunton with Debbie Davidson

South Coast

📍 Worthing with Sadie Goddard BSc (Hons), Lic.Ac, BaCc & Dr Grace Lee-Brindle. Clinical Psychologist. Infertility & Loss

📍 Brighton with testhim | male fertility

South East

📍 Deal with Sarah Vaughan

📍 Gravesend with Registered Fertility & Women’s Health Nutritionist

📍 Harpenden with Fertility Nutrition Specialist & Sophie Sulehria

📍Colchester with Becky Grimwood 🔸 Yoga🔸Coaching 🔸Rewind Technique🔸Acupuncture Alex O’Connor Certified & Registered Fertility Nutritionist (mBANT, rCNHC)

📍 Hitchin with Andrea | Fertility Acupuncture Hitchin

Midlands

📍Northampton

📍 Sutton Coldfield with Heather| Fertility Strategist. Midwife.Nutritionist

📍Banbury with Danielle Croft | Fertility Acupuncture Banbury

📍Headington with Milena Mastroianni | Certified Fertility Nutritionist | BANT Reg

North East & Scotland

📍 Sunderland with Laura Bicker BSc(Hons)TCM, BM

📍 Edinburgh with Karen | Hormone & Fertility Specialist

18/09/2026

Are you supporting someone with MRKH?

Have you been looking for a space to meet and chat with others, share experiences and come together?

We know our supporters need support as much as we do so why not join us for our first Connect and Support.

Just for our supporters (e.g. parents, partners, friends). An event facilitated by supporters for supporters.

Our first online Connect and Support event is on 22nd September at 7pm BST (UK time) and is run by our Friends and Family team, led by Shelley.

These events are designed to be relaxed and informal with the chance to chat and share, or just listen in, no pressure 💛

All are welcome wherever you are in the world and wherever your MRKHer is on their journey.

We hope to see you there 🤍

https://mrkhconnect.co.uk/connect-and-support-22nd-sept-2026/

15/09/2026

If anyone ever questions or doubts your “enoughness”, they’re not your people. Full stop. 💜✨

14/09/2026

Today is the start of World Childless Week. A week to share, acknowledge and learn.

A week that also acknowledges many in our community whose path wasn't quite as imagined. It's a week to share sadness and grief as much as joy and happiness of a path unexpected but also what it can bring.

Most of all its about sharing real experiences and knowing that you aren't alone - whilst also raising awareness more widely to a society that still has children at it's fore.

For a wide range of resources check out , for MRKH specific stories check out our page.

11/09/2026

Our Director Charlie is not shy of a challenge having completed a couple of them over the years with the aim of raising awareness of MRKH and vital funds for MRKH Connect and tomorrow she takes on the Thames Path 100km Ultra Challenge!

This year she is doing this challenge for two special causes.

"I'm inspired to do another 100km not just because I like a challenge but because this year I had another motivation. My best friends daughter is 15 and was diagnosed with epilepsy a couple of years ago. Facing something life changing at any age is hard but as a teen when you just want to be "normal" is difficult to comprehend and explain to others, something I can also relate to despite our experiences being very different. Yet I am astounded by her courage and bravery despite her age and all she is going through.

So this year I'm doing this for her, and for everyone like us affected by life changing diagnoses that make you question why, how and what does this mean for me. Especially when faced with something massive at a young age.

No one should feel alone in their diagnosis, whatever it is and at whatever age it comes"

Charlie has chosen to raise money for both MRKH Connect as well as for Young Epilepsy for her challenge and we, and the Young Epilepsy team will be cheering her on every step of the way!

Go Charlie! She is bib number 1126 if you want to track how she's doing 💜

If you have any pennies spare or want to read more about her story - follow the fundraising link: https://www.justgiving.com/team/charlie-bishop-thamespath100km

Address

London

Website

http://www.mrkhconnect.org/

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