MRKH Connect

MRKH Connect We are a registered charity (reg. 1157477) with a mission to connect and support those with MRKH MRKH Connect is a registered charity in England and Wales.

We are a non-profit, aiming to connect those with MRKH all over the world; providing a safe place to create lifelong friendships. MRKH Connect was founded in 2014 by Kelly and Janet. Their aim, which remains today, was to relieve and promote the relief of those diagnosed with Mayer Rokitansky Kuster Hauser (MRKH) Syndrome and to provide support both to them and their families. We provide a platfor

m for those with MRKH to connect and share experiences together in a safe environment whilst providing public resources for those with MRKH and their families as well as the wider community. We also work towards advancing public awareness of MRKH through education and information and we campaign for better access to medical care, reducing the time to diagnosis and therefore improving the time to get to critical support post diagnosis

Join us for our next online peer support group Connect with Friends on Sunday 6th September 7pm BST (UK time)These event...
23/08/2026

Join us for our next online peer support group Connect with Friends on Sunday 6th September 7pm BST (UK time)

These events are designed to be relaxed and informal with the chance to chat and share, or just listen, no pressure, with friends old and new💛

As with all our Connect with Friends this is only for those with MRKH and all MRKHers over 16 are welcome regardless of where you are in your journey.

We hope to see you there 🤍

Follow the link in our bio to Events to register.

Big shout out to the lovely Kensa who has shared her story in That's Life (UK) Issue 33 released this week.Thank you Ken...
21/08/2026

Big shout out to the lovely Kensa who has shared her story in That's Life (UK) Issue 33 released this week.

Thank you Kensa for the courage to be vulnerable in sharing your story openly and her mum Holly who contacted us to share the article.

Kensa was only diagnosed last year and is navigating what this means for her. In doing so she has decided to take the power back by sharing her story, her way.

We know how isolating the diagnosis can be the "why" and "what if" and sharing publicly is not for everyone (and that is OK!) but please know that whatever stage you are at, we are here.

No pressure, no judgement and never any expectations for you to share any more than you feel comfortable in a peer setting.

💜

Are you an MRKHer in Ireland?If so, you might be interested in the upcoming   Day hosted by the  at the Spencer Hotel on...
19/08/2026

Are you an MRKHer in Ireland?

If so, you might be interested in the upcoming Day hosted by the at the Spencer Hotel on 20th November

We know how important not only connection but also finding accurate information about your diagnosis and what this means. With hospital led information days complementing peer events they are a great way to find out more or ask those questions in a safe and informative space.

We are delighted to share this upcoming event from our friends at the Rotunda Hospital open to all with MRKH in the area and their families.

Find out more at the link or email the team - [email protected].

https://mrkhconnect.co.uk/mrkh-day-2026-rotunda-hospital-ireland-20th-november/

18/08/2026

Yesterday, the MRKH community watched in awe, as MRKH advocate, Lauren Fowler, shared her story on mainstream TV! ❤️

Born without a womb, Lauren Fowler thought she’d never have a baby… until her sister Kelly offered her womb instead. Following an 11-hour operation, Kelly’s womb was successfully transplanted to Lauren in 2025. And now Lauren is 26 weeks pregnant with her miracle baby. The sisters joined ITVs , alongside Lauren’s partner David.

Again, Lauren, thank you for shining a light on MRKH and the future of what’s to come. Congratulations. ✨

Being a woman is not defined by our ability to become a mother.  We need to change the outdated narrative and the pressu...
17/08/2026

Being a woman is not defined by our ability to become a mother.

We need to change the outdated narrative and the pressure it can so often create and the unwanted questions it provokes.

Infertility affects 1 in 7 heterosexual couples in the UK. Not everyone who struggles with infertility will have children either because of choice, circumstance or other.

And do you know what? THAT'S OK

Let's normalise the conversation.

Whatever your path, know it's valid and much more importantly, it's yours. Every path is different.

✨Calling all MRKH supporters!✨Have you been looking for a space to meet and chat with others, share experiences and come...
15/08/2026

✨Calling all MRKH supporters!✨

Have you been looking for a space to meet and chat with others, share experiences and come together?

We know our supporters need support as much as we do so why not join us for our first Connect and Support.

Just for our supporters (e.g. parents, partners, friends). An event facilitated by supporters for supporters.

Our first online Connect and Support event is on 22nd September at 7pm BST (UK time) and is run by our Friends and Family team, led by Shelley.

These events are designed to be relaxed and informal with the chance to chat and share, or just listen in, no pressure 💛

All are welcome wherever you are in the world and wherever your MRKH is on their journey.

We hope to see you there 🤍

Follow the link to register - https://mrkhconnect.co.uk/connect-and-support-22nd-sept-2026/


13/08/2026

Infertility is THIS! we see you! 💜✨

Today is International Youth Day and a great chance to shout about the MRKH Youth Program. Registration is open for our ...
12/08/2026

Today is International Youth Day and a great chance to shout about the MRKH Youth Program. Registration is open for our September Program set!

Coming together in a safe space to learn from each other and find tools for our journey can be so meaningful but don't just take our word for it see some of the feedback from individuals who have been part of this program.

This is a program that may surprise you and a relaxed way to meet others in a small group setting, online.

This program is...
🤍Peer led and run online.
🤍Small group, relaxed and informal,
🤍Designed to help young MRKHers move towards a better acceptance of MRKH
🤍A way to develop strategies to help process your journey
🤍Focused on wellbeing whilst making new connections in a safe space.

Run by young MRKHers for young MRKHers aged 18-25* 🤍

Our next program will start on 9th September and runs every Wednesday evening for 6 weeks.

Find out more by following the link below, in our bio or drop us a 💜 below!

https://mrkhconnect.co.uk/youth-program-2026-from-9th-september/

Strength is more than physical it's something deep inside us.  We don't always know its there.  In fact we may think it ...
10/08/2026

Strength is more than physical it's something deep inside us.

We don't always know its there. In fact we may think it is something we don't have at all.

We may look at others and wonder how they do it and perhaps even how they make it look "so easy".

But strength doesn't have to be big and flashy. It is often subtle and unobtrusive keeping us moving even when it feels overwhelming.

Building your power your way.

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