MRKH Connect

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MRKH Connect

We are a registered charity (reg. 1157477) with a mission to connect and support those with MRKH MRKH Connect is a registered charity in England and Wales.

We are a non-profit, aiming to connect those with MRKH all over the world; providing a safe place to create lifelong friendships. MRKH Connect was founded in 2014 by Kelly and Janet. Their aim, which remains today, was to relieve and promote the relief of those diagnosed with Mayer Rokitansky Kuster Hauser (MRKH) Syndrome and to provide support both to them and their families. We provide a platfor

m for those with MRKH to connect and share experiences together in a safe environment whilst providing public resources for those with MRKH and their families as well as the wider community. We also work towards advancing public awareness of MRKH through education and information and we campaign for better access to medical care, reducing the time to diagnosis and therefore improving the time to get to critical support post diagnosis

22/05/2026

Day 1 of MRKH 5000 and 50 is here!!!

Our annual challenge with a big goal - to raise awareness and raise £5000 in the process.

Thank you to Claire for sharing what she is doing and why it's important to her 💜

We are a community that is stronger together. Whether you are public with your MRKH or now, whether you have MRKH or not, this challenge is for all.

Join us by following the link
https://mrkhconnect.co.uk/5000-in-50-challenge-starts-22nd-may-2026/

Don't fancy taking part but want to donate? Follow the link below 👇
https://www.justgiving.com/campaign/mrkh-5000-in-50-2026

21/05/2026

🌟 REGISTRATION IS OPEN 🌟

Join us for this year's Connect LIVE as we return to the big screen on 11th July 2026 in London.

Our annual in person peer support is an event designed to provide information, support and celebrate our MRKH community, our biggest milestones in UK and global advocacy, and most importantly, you.

Like last year the 5000 in 50 challenge fundraiser will also end at Connect LIVE, a wonderful way to celebrate together.

Our agenda is now LIVE and we are pleased to welcome speakers from across our community and beyond covering topics such as What is MRKH, coping strategies, supporter perspectives, emotional toolkit and more!

Follow the link in our bio to find out more and sign up today.

Tickets are FREE but if you wish to make a donation all proceeds will go straight back into the work we do supporting the MRKH community.

https://mrkhconnect.co.uk/connect-live-11th-july-2026/

💜

18/05/2026

5 days to go until this year's challenge kicks off!! 🙌

This is a virtual community challenge for anyone with MRKH and their friends and family. A way to come together, raise awareness and vital funds and do something focused on our physical and mental health and wellbeing.

Choose your challenge:
✨️5000m per day for 50 days (walk/jog/run)
✨️5000 steps per day for 50 days
✨️5000 minutes of mindfulness/wellbeing over 50 days
✨️5000 minutes of exercise over 50 days
✨️...want to go bigger? Let us know what you are thinking!

Join the community, come together and help us reach our goal of £5000 to continue supporting the MRKH community in the UK and beyond

Whether you have MRKH or not, this challenge is open to all with great collaborations, giveaways and a raffle.

We are stronger together - join us!

Have you signed up? Let us know what you are planning to do below 👇

Sign up now🤍
https://mrkhconnect.co.uk/5000-in-50-challenge-starts-22nd-may-2026/

16/05/2026

The team are all weekend. Come say hi 👋 at D10

Raising awareness of MRKH syndrome, connecting with other amazing organisations and you!

MRKH affects 1 in 5000 female births and leading to the absence or under development of the uterus, cervix and shortening of the va**na.

Come and chat with us, learn more and connect!

💜

15/05/2026

✨️ NEW RESEARCH ✨️

We are very excited to share this new research from Samantha Stephen who is a social scientist and an MRKHer herself, studying her PhD on the social response in the UK to emerging reproductive technologies such as artificial wombs.

Through a focus group facilitated by MRKH Connect we worked together to revise and discuss the interview questions and share perspectives from different stages, ages and cultures from our community.

This truly is community informed research where the community voices are critical to the outcome yet are often marginalised in such discussions. Favoured far below policy makers but without taking into account the view of those that such new innovations may support.

Discussions matter.

Whether you are not sure if this is for you, never heard of it (but curious) or very interested to learn more, all perspectives are valid.

Research will be in the form on one to one online interviews with anyone in the UK with MRKH. All outcomes will be anonymised. This research has been granted the appropriate ethical approval.

If you are interested to learn more then please email Sam directly where she will share more information also check out the link below 👇
[email protected]

💜

https://mrkhconnect.co.uk/research-on-artificial-wombs-and-mrkh/

14/05/2026

Hands down, ‘disclosure’ is one of the most popular topics within the MRKH community. And this makes sense — it’s a huge part of our lives. Ironically, support is key in healing and recovery, yet, talking about it is equally confronting and scary. Drilling further down, it can be super helpful to ask a set of questions to understand, evaluate, and determine the “right” time to disclose an MRKH diagnosis.

Here are 7 questions, prompts even, to help with the process of an MRKH disclosure. Scroll 👉👉👉to read more.

What have we missed? Comment below - we’d love to hear from you. 💜✨

13/05/2026

Have you ever wanted to connect with others and find a path forward, answers to your questions but not known where to start?

The MRKH Youth Program might be for you! A program that may surprise you and a perfect and relaxed way to meet others in a small group setting, online.

This program is...
🤍Peer led and run online.
🤍They are small group, relaxed and informal,
🤍Designed to help young MRKHers move towards a better acceptance of MRKH
🤍There to help develop strategies to help process your journey
🤍Focused on wellbeing whilst making new connections in a safe space.

Run by young MRKHers for young MRKHers aged 18-25* 🤍

Our next program will start on 9th June and runs every Tuesday evening for 6 weeks.

Find out more by following the link - https://mrkhconnect.co.uk/mrkh-youth-program/

*if you are under 18 (but over 16) or over 25 and interested in this program please don't hesitate to DM us so we can have a chat if this program may be suitable for you.

12/05/2026

Do you know where you can shatter the belief that you’re not good enough? MRKH Connect hosts a Youth Program, designed to help a person navigate early diagnosis, challenge beliefs around self-worth, and navigate a kinder path towards acceptance.

This isn’t just an emotive reel with a strong message: it’s a promise.

For more information, head to the link in our bio!

11/05/2026

In less than 2 weeks we are kick off this year's challenge. This is a virtual community challenge for anyone with MRKH and their friends and family.

A way to come together, raise awareness and vital funds and do something focused on our physical and mental health and wellbeing.

Choose your challenge:
✨️5000m per day for 50 days (walk/jog/run)
✨️5000 steps per day for 50 days
✨️5000 minutes of mindfulness/wellbeing over 50 days
✨️5000 minutes of exercise over 50 days
✨️...want to go bigger? Let us know what you are thinking!

Join the community, come together and help us reach our goal of £5000 to continue supporting the MRKH community across the world.

Whether you have MRKH or not, this challenge is open to all with great collaborations and giveaways along the way.

Have you signed up? Let us know what you are planning to do below 👇

Sign up is open! 🤍
https://mrkhconnect.co.uk/5000-in-50-challenge-starts-22nd-may-2026/

09/05/2026

1 week to go until we will be back at the Fertility Show in London! Come to stand D10 to say hi to Charlie, Ally and Shelley💜

This is an opportunity for us to raise awareness of MRKH and infertility whilst also connecting with our peers.

Helping us to ensure that the resources and signposting we provide for all future paths, regardless of the outcome, is up to date and relevant.

For 30% off tickets head over to the Fertility Show and use code EXHIB30👇

https://www.fertilityshow.co.uk/

We hope to see you there! 💜

07/05/2026

We so often experience trust as something we search for in someone else. But what if trust starts with us? What if we are nailing our hardest days? What if we tuned into our inner intuition rather than outsourcing it to a random algorithm?

We’re doing it!
We’re showing up!
No matter what.

Proud of you.

Address

London

Website

http://www.mrkhconnect.org/

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