Multiple System Atrophy Trust

Multiple System Atrophy Trust The UK and Ireland's only charity dedicated to providing specialist support for Multiple System Atrophy.

Multiple System Atrophy (MSA) is a rare neurodegenerative disorder with no known cause or cure, affecting various bodily functions and leading to symptoms such as difficulty with movement, balance, and autonomic functions. As a charity reliant solely on donations we strive to provide free support services for people with MSA, their carers, friends and family member- in fact, anybody whose life is

affected by MSA. We provide:

- MSA Nurse Specialists to provide individual care and support
- Social Welfare support to help people face their practical problems
- Voice Bank funding- for people to continue communicating with their loved ones even when their speech is gone
- In-person and digital support groups to bring people together to prevent isolation
- Funding innovative research so that we can find a cure

Visit our website, www.msatrust.org.uk, to find out about our support services and ongoing research projects.

Stella is our Sarah’s Wood and Ambassador Volunteer. "We started the original tree planting, with tiny plants at the Sum...
05/06/2026

Stella is our Sarah’s Wood and Ambassador Volunteer.

"We started the original tree planting, with tiny plants at the Summer Socials, to the larger saplings in the winter months. As I lived so close, I was often able to help greet and es**rt tree planters and their families to Sarah’s Wood, and be able to chat to them about our MSA journeys with understanding and compassion".

You can read her story here- https://www.msatrust.org.uk/get-involved/volunteer/volunteer-stories/

If her story inspires you to get involved at a Sarah's Wood event drop us an email at [email protected]

Thank you to Teresa for taking on the Wi******er 2026 Novice Triathlon."What an amazing day, conquering my fears, being ...
05/06/2026

Thank you to Teresa for taking on the Wi******er 2026 Novice Triathlon.

"What an amazing day, conquering my fears, being joined by my brother Kelvin, whilst raising awareness and funds for this amazing charity. My target was to raise £200, and we raised £770, hoping to reach £800. So grateful for those who contributed financially, but also for sharing my JustGiving page and raising awareness of this condition. Good luck to everyone fundraising — Kelvin & Teresa."

Did you know our Board of Trustees are all volunteers, giving their skills and advice to guide the Trust? We are looking...
04/06/2026

Did you know our Board of Trustees are all volunteers, giving their skills and advice to guide the Trust? We are looking for new volunteer trustees who have a diagnosis of MSA. Could you be the person who brings your lived experience and knowledge to the team?

More information in the next edition of MSA News, but if you can’t wait to find out more email [email protected].

If you have a diagnosis of MSA, or are a carer or family member, you could volunteer for our Involvement Network? If you...
03/06/2026

If you have a diagnosis of MSA, or are a carer or family member, you could volunteer for our Involvement Network? If you've got a positive attitude, an email account, and a willingness to give your time and opinion, then we’d love to hear from you! You help us to design our new strategy, sit on a focus group or advise on our new professionals training.

Find out more and apply through our volunteer pages https://www.msatrust.org.uk/get-involved/volunteer/

We’re excited to share that we’ve been awarded a grant from the The Arsenal Foundation Gunners FundThis support will hel...
02/06/2026

We’re excited to share that we’ve been awarded a grant from the The Arsenal Foundation Gunners Fund

This support will help us continue our work across Hackney, Islington and Camden, providing vital support for people affected by multiple system atrophy (MSA) 💙

Huge thank you to The Arsenal Foundation for backing our mission and helping us make a difference.

Our newest volunteer venture is our Involvement Network, launched 4 months ago. MSA community members volunteer their ex...
02/06/2026

Our newest volunteer venture is our Involvement Network, launched 4 months ago. MSA community members volunteer their experience and insight on a range of projects. Projects so far have included advising on the volunteer induction process, reviewing new website pages, contributing to a Hospice UK survey and helping clinical researchers.

Welcome to Volunteers’ Week - a UK-Wide Celebration and recognition of how volunteers make a difference. We’re so lucky ...
01/06/2026

Welcome to Volunteers’ Week - a UK-Wide Celebration and recognition of how volunteers make a difference. We’re so lucky to have over 80 volunteers supporting us in a multitude of roles. Over the week we’ll be celebrating the work of our volunteers and sharing ways for you to get involved.

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128B Business Design Centre, 52 Upper Street
London
N10QH

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