Multiple System Atrophy Trust

Multiple System Atrophy Trust The UK and Ireland's only charity dedicated to providing specialist support for Multiple System Atrophy.

Multiple System Atrophy (MSA) is a rare neurodegenerative disorder with no known cause or cure, affecting various bodily functions and leading to symptoms such as difficulty with movement, balance, and autonomic functions. As a charity reliant solely on donations we strive to provide free support services for people with MSA, their carers, friends and family member- in fact, anybody whose life is affected by MSA. We provide:

- MSA Nurse Specialists to provide individual care and support
- Social Welfare support to help people face their practical problems
- Voice Bank funding- for people to continue communicating with their loved ones even when their speech is gone
- In-person and digital support groups to bring people together to prevent isolation
- Funding innovative research so that we can find a cure

Visit our website, www.msatrust.org.uk, to find out about our support services and ongoing research projects.

"My wife Esther was diagnosed with MSA in May 2025 after it became apparent that she was not responding well to Parkinso...
05/10/2026

"My wife Esther was diagnosed with MSA in May 2025 after it became apparent that she was not responding well to Parkinson's medication and other symptoms were worsening.

We were put in touch with the MSA Trust, who immediately provided support to us, particularly in identifying which benefits we could claim and how the MSA Trust could help us obtain them. Our local hospice, St Michael's at Hereford, was also quick to offer support to us. It was overwhelming just how much help was immediately offered, including how to make our families aware of this devastating disease and how it would affect Esther.

Doing a skydive was something I had wanted to do for some time, and it was also something my eldest son, Michael, and daughter-in-law, Naomi, wanted to do, so we decided to arrange a jump when we were together on a family holiday in Yorkshire.

Unfortunately, the fine weather chose to break the week we were away, so we could not do the tandem skydive. When we returned home, we looked to rebook it. We managed to book our jumps at Salisbury, but Naomi was unable to join us, so Michael and I went ahead on our own.

Neither of us had done a tandem skydive before, so it was a new experience, and as we had chosen to jump from 15,000ft, we really had thrown ourselves in at the deep end!

The weather on the day was glorious, and the day was very well organised from start to finish, with inductions and training so that we knew what to expect and what to do when we exited the aircraft and just prior to landing.

The views were spectacular, as can be seen from the photographs taken by another instructor.
When we reached approximately 6,000ft, the main parachute was deployed, and we rapidly slowed to about 20mph and then glided down to land, doing spirals as we slowly headed towards the ground.

I loved the experience and would definitely do it again, and we are already planning to do so in 2027. The icing on the cake was that we raised over £2,000, which we split between the MSA Trust and our local hospice."

Thank you so much, Kevin, for your wonderful support.

It is . A chance to highlight all the amazing work of hospices around the country. Many people with MSA and their famil...
05/10/2026

It is . A chance to highlight all the amazing work of hospices around the country. Many people with MSA and their families get a huge amount of support from hospices.

Hospices do more than you may think, If you would like to find hospices in your area you can use Hospice UK's Hospice finder tool - https://www.hospiceuk.org/hospice-care-finder

Hospice UK have also launched a new resource for healthcare professionals to help support those involved in the care of people with progressive neurological conditions - https://tinyurl.com/yh4uefzm

Hospice UK have also written an article in the upcoming edition of MSA News, so keep an eye out when it arrives in inboxes and doorsteps at the end of this month.

Last Thursday was Gift Aid Awareness Day, a great reminder of the difference Gift Aid can make to charities like the MSA...
04/10/2026

Last Thursday was Gift Aid Awareness Day, a great reminder of the difference Gift Aid can make to charities like the MSA Trust. If you're a UK taxpayer, please remember to tick the Gift Aid box when making a donation, as this allows us to claim an extra 25p for every £1 donated at no additional cost to you, helping us support even more people affected by MSA.

https://www.msatrust.org.uk/get-involved/donate/gift-aid/

Today is World MSA Day, and we want to use this opportunity to raise awareness of multiple system atrophy (MSA) and high...
03/10/2026

Today is World MSA Day, and we want to use this opportunity to raise awareness of multiple system atrophy (MSA) and highlight the support services we provide to everyone affected by MSA.

We rely entirely on voluntary donations to fund our work. We are not part of the NHS, and we raise money to ensure that our support services remain available and free to all those who need them.

Please share this post to help raise awareness of MSA. And if you feel able to do so, please consider making a donation to support our work and help us continue providing vital services to people living with MSA, their families and carers - https://www.msatrust.org.uk/get-involved/donate/

Today is . A day to raise awareness of multiple system atrophy worldwide.MSA is a progressive neurological disorder tha...
03/10/2026

Today is . A day to raise awareness of multiple system atrophy worldwide.

MSA is a progressive neurological disorder that affects adult men and women. It is a rare disease with around 3,500 people in the UK and Ireland currently living with it.

At the MSA Trust we are here to support everyone affected by MSA. We have a range of services for you to explore and access free of charge - https://www.msatrust.org.uk/support/support-services/.

We also lead the way in funding research into MSA. Read all about this on our website - https://www.msatrust.org.uk/research/.

Please share this post to raise awareness of MSA and help ensure no one has to face MSA alone.

Tomorrow is World MSA Day, MSA Trust, Mission MSA and Combat MSA - Ezard Foundation join the global MSA community in rai...
02/10/2026

Tomorrow is World MSA Day, MSA Trust, Mission MSA and Combat MSA - Ezard Foundation join the global MSA community in raising awareness of multiple system atrophy (MSA) and recognising its impact on people living with MSA, carers, families and loved ones around the world.

Over the past three weeks, we have shared stories from people living with MSA, carers and bereaved families across the UK, US and Australia. These stories have highlighted the impact of MSA and the experiences that connect our communities across borders.

By sharing these voices, we can raise awareness, increase understanding of MSA and highlight the importance of working together to improve support, advocacy and research.

Together, we are connecting the global MSA community.

02/10/2026

We're honoured to share the story of Katie, from Australia, who has experienced the sad loss of a loved one to MSA.

Stories like these help raise awareness of MSA and highlight the experiences of people affected by the condition across the US, UK and Australia as we approach World MSA Day on 3rd of October.

This week, we're honoured to share the story of Siân, from the United Kingdom (UK), who has experienced the sad loss of ...
30/09/2026

This week, we're honoured to share the story of Siân, from the United Kingdom (UK), who has experienced the sad loss of a loved one to MSA.

Siân shares her experience of her Mother Michaela being diagnosed with MSA, the changes it caused in both their lives and her experience of caring for someone you love; learning so much in a short amount of time to ensure her mother was comfortable and cared for.

The importance of making memories and times filled with laughter are also given importance.

Read Sian's story here - https://www.msatrust.org.uk/your-stories/life-with-msa-sians-story/

Stories like these help raise awareness of MSA and highlight the experiences of people affected by the condition across the US, UK and Australia as we approach World MSA Day on 3rd of October.

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