Multiple System Atrophy Trust

Multiple System Atrophy Trust The UK and Ireland's only charity dedicated to providing specialist support for Multiple System Atrophy.

Multiple System Atrophy (MSA) is a rare neurodegenerative disorder with no known cause or cure, affecting various bodily functions and leading to symptoms such as difficulty with movement, balance, and autonomic functions. As a charity reliant solely on donations we strive to provide free support services for people with MSA, their carers, friends and family member- in fact, anybody whose life is

affected by MSA. We provide:

- MSA Nurse Specialists to provide individual care and support
- Social Welfare support to help people face their practical problems
- Voice Bank funding- for people to continue communicating with their loved ones even when their speech is gone
- In-person and digital support groups to bring people together to prevent isolation
- Funding innovative research so that we can find a cure

Visit our website, www.msatrust.org.uk, to find out about our support services and ongoing research projects.

The government has established an independent commission, called the Casey Commission, to undertake a review of adult so...
22/08/2026

The government has established an independent commission, called the Casey Commission, to undertake a review of adult social care. The Commission is keen to hear people’s views and/or experiences of adult social care, and what is important to you.

The ‘Big Conversation on Social Care’ is an opportunity for everyone in England to have their say on the future of adult social care. You can join The Big Conversation online here - https://caseycommission.co.uk/bigconversation/take-part/

A huge thank you to long term friends, Sue, Sue and Emma for organising a fundraising event in support of Sue's sister, ...
21/08/2026

A huge thank you to long term friends, Sue, Sue and Emma for organising a fundraising event in support of Sue's sister, who is living with MSA.

They brought their community together and raised an incredible £1,750. Thank you for your generosity, support and for helping to raise awareness of MSA.

20/08/2026

Calling healthcare professionals working in England: Share your expertise in a focus group - run by the University of Hertfordshire - to help identify what works, where gaps remain, and how services for people living with Atypical Parkinsonian Syndromes (MSA, PSP and CBD) can become more coordinated, responsive, and person-centred.

Register your interest and date you can attend here - https://doodle.com/group-poll/participate/b2q37qAa

Information on the study - https://arc-eoe.nihr.ac.uk/research-implementation/research-themes/social-care-dementia-and-ageing/co-designing-improvements

MSA is a life-limiting condition that impacts not only the person living with it, but also their family and loved ones. ...
19/08/2026

MSA is a life-limiting condition that impacts not only the person living with it, but also their family and loved ones.

Join the and help shine a light on multiple system atrophy (MSA). Every day, find something orange, take a photo and share it on social media.

https://www.justgiving.com/campaign/msat-bright-side-challenge

In May, MSA Trust in collaboration were delighted to host MSA Symposium 2026. The Symposium welcomed researchers, pharma...
19/08/2026

In May, MSA Trust in collaboration were delighted to host MSA Symposium 2026. The Symposium welcomed researchers, pharma companies and associated parties from across the UK, Europe and beyond who attended in person and online to share the latest advances in MSA research, clinical care and therapeutic development.

You can read more about MSA Symposium 2026 here:

https://www.ucl.ac.uk/brain-sciences/news/2026/aug/world-leaders-multiple-system-atrophy-research-brought-together-fourth-annual-msa-symposium

18/08/2026

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128B Business Design Centre, 52 Upper Street
London
N10QH

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