Young Dementia Network

14/06/2026

Congratulations to Ian Carter who was the worthy winner of the Young Onset Dementia Award at the recent UK Dementia Awards 2026. 🎉

Ian, who is living with young onset frontotemporal , founded No Tier Snooker following his diagnosis to create a supportive playing environment for others in his situation.

No Tier Snooker meets every Wednesday from 2-4pm at Congleton Snooker Club; at 12-2pm on Tuesdays at Hazel Grove Snooker Club and on Wednesdays from 11.30am-1.30pm at Longton Snooker and Pool Club.

For more information email [email protected]. Please note: you must register your interest before attending any No Tier Snooker session.

12/06/2026

As Carers Week, the annual campaign to raise awareness of caring, comes to an end, we're sharing some of our resources that anyone supporting a person living with young onset dementia may find useful.

The Young Dementia Network website has a Resources section which contains a range of resources for people affected by young onset dementia as well as professionals, service providers, commissioners and service developers.

Our leaflets and resources such as our ID cards, Personal checklist (which can be used to record symptoms) and Decision-making guide for GPs (to aid the recognition of the symptoms of dementia in younger people) can be downloaded or requested for free, in paper format.

Check them out here: https://www.youngdementianetwork.org/resources

11/06/2026

Our next webinar, on Wednesday 17th June 2026 at 12.30-1.30pm, will share emerging evidence from three research projects currently underway by the Working With Dementia Network Plus Research Team exploring and employment.

Presentations will cover priorities for improving work experiences, the economic impacts of young onset dementia, and how employment law is applied in practice.

Sign-up here: https://www.youngdementianetwork.org/news-and-events/our-webinars/new-insights-on-working-with-dementia/

10/06/2026

This recent Guardian article discussing the damaging stereotypes a dementia diagnosis brings, includes interviews with Julie Hayden, George Rook and Kate Swaffer, who are all living with young onset . They are all valued members of the Young Dementia Network.

Read more here:

Few things are more feared than a dementia diagnosis. Now people living with the condition are fighting against damaging stereotypes and demanding proper medical support

09/06/2026

Lorenzo's House is a global organisation dedicated to empowering young people and their families who are affected by young onset dementia.

It is hosting its sixth annual free virtual global youth SUMMIT on Friday 12th and Saturday 13th June 2026.

SUMMIT is designed specifically for young children, children, teens and young adults, and brings together families from around the world for connection, collective tool building and shared lived experience.

Learn more here: https://www.lorenzoshouse.org/summit

02/06/2026

This episode of the ‘Defy dementia’ podcast explores how to talk to children and young people about dementia in an age-appropriate, stigma-reducing way. 🎤

Angeleta Cox shares how she talked about her late mother’s young onset Alzheimer's disease diagnosis to her children.

And Hannah Gardner, Consultant Admiral Nurse for Children and Young People at Dementia UK, discusses improving support and awareness for children and young people living in families affected by dementia.

Listen to the podcast here: https://open.spotify.com/episode/0gniujtfHbr3Hydj4r0fgQ

30/05/2026

A researcher at University of the West of England is starting a research project focused on improving support for people after a dementia diagnosis.

They are setting up a group for people living with young onset dementia who are willing to share their thoughts and ideas to help shape and develop a new 'LivDem' course.

Find out more here: https://www.youngdementianetwork.org/wp-content/uploads/2026/04/YOD-PAG-flyer-2026_01_22ntitled-2.png

29/05/2026

Julie Hayden’s book, 'Living with young onset dementia,' is an accessible coffee table style book. 📖

Told through a combination of poetry and prose, Julie’s words are brought to life through imagery by digital artist Daisy Vest.

To purchase a copy, please email Julie at [email protected]. ✉️

28/05/2026

A Bristol and South Gloucestershire initiative for people living with young onset has grown from a small walking group set up during the pandemic into a wide-ranging programme of social and activity-based meetups.

Known as YODA, the group's programme has expanded over time to also include a skittles session, a lunchtime social group and a badminton group, which has evolved into pickleball.

For more information, click here: https://www.youngdementianetwork.org/about-the-network/our-members/member-and-service-showcase/member-showcase-young-onset-dementia-activities-groups-gloucester

(Stock image)

27/05/2026

It's not too late to get involved with Operation Ouch! 📹

The team is hoping to film a family in which a parent or grandparent is living with dementia and where a child or young person aged 7-15, who has a relationship with them, would feel comfortable sharing their experience on camera.

In particular, they would love to hear from families from ethnic minority backgrounds.

If you or your family might be interested in taking part, email Rebecca King at [email protected] or click the link for more information: 👇

https://www.youngdementianetwork.org/wp-content/uploads/2026/05/Operation-Ouch-Dementia-Special-Young-Person-and-Family-Call-Out-22.5.26-Final.pdf

(Photo credit: BBC)