Young Dementia Network

Young Dementia Network Young Dementia Network is a collaboration between people affected by & working in the field of young onset dementia.

We are united in our purpose to improve the lives of people with young onset & their families now & create positive change for the future. The Young Dementia Network

• is focused on the needs and wishes of the person living with young onset dementia and their family.

• connects and informs people - empowering and enabling members by sharing knowledge, creating resources and providing a welcomi

ng community.

• campaigns for change to policy and practice to provide high quality tailored support and provision for young onset dementia.

• works to increase knowledge, understanding and awareness of young onset dementia.

• has a growing membership that includes people living with young onset dementia, family and friends, as well as people working in health and social care, the voluntary and dementia research sectors.

• is free to join and inclusive. Members may choose to join simply to keep informed, or to get actively involved in our campaigns, activities and in research opportunities.

• is a digital community. Every member receives a regular e-news update, and access to free young onset dementia resources.

• is led by a Steering Group of people living with young onset dementia and family members, senior specialist health care clinicians and academic researchers, and leaders of related voluntary and provider organisations.

• is hosted by Dementia UK.

Theatre Re's 'The Nature of Forgetting' tells the story of Tom, a middle-aged father who is living with young onset deme...
13/08/2026

Theatre Re's 'The Nature of Forgetting' tells the story of Tom, a middle-aged father who is living with young onset dementia. Described as "profoundly moving," the play begins as Tom prepares for his 55th birthday party and memories come flooding back.

The play will be performed at the Hackney Empire, London on Thursday 8th October 2026: https://www.hackneyempire.co.uk/events/the-nature-of-forgetting

The Curve, Leicester on Monday 9th and Tuesday 10th November 2026: https://www.curveonline.co.uk/whats-on/shows/the-nature-of-forgetting/

And at BEAM, Hertford on Wednesday 11th and Thursday 12th November 2026: https://beamhertford.co.uk/whats-on/Zkc-the-nature-of-forgetting/

People with young onset dementia are disproportionately represented within mental health inpatient services, yet support...
12/08/2026

People with young onset dementia are disproportionately represented within mental health inpatient services, yet support for these people on mental health wards remains one of the least understood areas of dementia care.

Our webinar taking place on Wednesday 21st October 2026 at 12.30-1.30pm will provide a unique insight into who is admitted into mental health wards, what leads up to their admission, the aims of admission, how long younger people with dementia typically stay, and what happens when they leave.

Sign-up today: https://www.youngdementianetwork.org/news-and-events/our-webinars/young-onset-dementia-within-mental-health-wards/

10/08/2026

The UK Government has recently launched a consultation on new workplace rights for unpaid carers.

Participation is sought from a variety of individuals which include unpaid carers, employers, workers and members of the public.

Find out more and take part here before the end of August 2026:

The Department for Business and Trade's consultation on employment rights for unpaid carers and parents of seriously ill children.

NHS continuing healthcare (CHC) funding can be a lifeline for people living with young onset dementia in England. But to...
07/08/2026

NHS continuing healthcare (CHC) funding can be a lifeline for people living with young onset dementia in England. But too often, families face complex assessments, delayed decisions and lengthy appeals, resulting in many missing out on vital care funding.

At a time when people may already be balancing their caring responsibilities with work, family life and the challenges of a diagnosis, no one should have to fight for the support they need.

That’s why Dementia UK has joined 11 other charities to launch a petition calling on the Health Secretary to urgently review CHC. Nearly 20,000 people have already signed. 🖊️

Please join them by adding your name and sharing the petition today: https://action.dementiauk.org/fix-nhs-continuing-healthcare

Paul's wife was diagnosed with young onset dementia in 2020, and he has gradually seen all aspects of their previous liv...
05/08/2026

Paul's wife was diagnosed with young onset dementia in 2020, and he has gradually seen all aspects of their previous lives slip away.

He was forced to quit the job he loved as a manager at a tyre company to care for his wife, Sandra, when they were in their early 50s.

You can read more about their story in the article below.

Andy Burnham has pledged to reform the social care system which has left so many without support

03/08/2026

Our personal checklist is intended for use by people experiencing symptoms of young onset dementia, or by their family members or friends.

The easy-to-use checklist records information about symptoms which can then be used to provide prompts for a conversation with a GP or health professional.

Download or request yours today: https://www.youngdementianetwork.org/resources/personal-checklist/

A video of Gary Young, who was diagnosed with young‑onset dementia at 51, has gone viral. His wife, Natasha, shared a cl...
24/07/2026

A video of Gary Young, who was diagnosed with young‑onset dementia at 51, has gone viral. His wife, Natasha, shared a clip of him singing along to the lyrics at a Take That concert, and it has now been viewed more than 2.3 million times. 🎵 🎤

You can watch the full interview with Gary and Natasha on Good Morning Britain here:

A dad living with early-onset dementia after being diagnosed 5 year...

Address

Dementia UK, 7th Floor, One Aldgate
London
EC3N1RE

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