Duchenne UK

21/08/2026

👏An incredible achievement from Ryan Saul and everyone involved in Henry's Hills 79!

Completing a 79 mile Ultra-Hike along the Wayfarers path and around Hayling Island, together, they've raised over £11,000 to support Duchenne UK and help fund vital research and care for everyone affected by Duchenne muscular dystrophy.

A huge thank you to Ryan and everyone who donated, took part and supported this amazing fundraising effort. Every pound raised brings us one step closer to ending Duchenne.

If you'd still like to support the fundraiser, there's still time to donate: https://www.justgiving.com/page/hh79 💙

19/08/2026

On 18 October, Adam Chidgey will take on the Yorkshire Marathon to raise money for Duchenne UK, and he’s doing it for someone very close to his heart. 💙

Adam’s partner’s nephew, Cody, was diagnosed with Duchenne muscular dystrophy aged four. Seeing the impact Duchenne has on Cody and his loved ones has inspired Adam to take on his first marathon and help make a difference.

Every mile Adam runs will help support Duchenne UK’s work funding vital research, supporting families and driving progress towards better treatments.

👏 We’re incredibly grateful to Adam for taking on this challenge for Cody and the wider Duchenne community.

Please show Adam your support and donate if you can: https://www.justgiving.com/page/adam-chidgey-1?utm_medium=FR&utm_source=WA

18/08/2026

🎉 Duchenne UK passes AMRC Expert Review Audit!

We’re proud to announce that Duchenne UK has successfully passed the Association of Medical Research Charities (AMRC) Expert Review Audit.

The audit recognises charities that have robust, fair and transparent processes for making research funding decisions, ensuring the highest-quality research is supported.

This is an important milestone as we continue to strengthen our research funding through the Duchenne UK Breakthrough Innovations Fund, supporting ambitious and innovative research with the potential to accelerate progress towards effective treatments and improved outcomes for the Duchenne community.

We’re proud to continue investing in research that has the potential to make a real difference. 💙

🔗 Find out more about the Breakthrough Innovations Fund: https://www.duchenneuk.org/what-we-do/accelerating-research/duchenne-uk-breakthrough-innovations-fund

17/08/2026

Supporting every child to thrive in education 💙

We are proud to fund Decipha, providing free specialist educational support for families living with Duchenne muscular dystrophy.

Run by experts with first-hand experience of Duchenne, Decipha helps families navigate Special Educational Needs (SEN), Education, Health and Care Plans (EHCPs), school support, assessments and much more.

🎓 Whether your child is starting school, moving to college or university, or simply needs extra support along the way, help is available.

👉 Find out more about the free support available through Decipha and our education resources: https://duchenne-uk.webflow.io/support/navigating-your-journey/school-and-university

11/08/2026

Physiotherapy and occupational therapy play an important role in supporting people with Duchenne to maintain function, minimise complications and maximise independence.

The Duchenne Care UK Physiotherapy and Occupational Therapy Guidelines provide evidence-based recommendations to support high-quality, consistent care for people living with Duchenne. 📚

Developed by expert clinicians and endorsed by the paediatric and adult North Star Networks, the guidelines are an important resource for professionals supporting people with Duchenne.

📖 Read the Physiotherapy and Occupational Therapy Guidelines:
duchenneuk.org/support/care/guides-for-clinicians

Duchenne Care UK is a collaborative initiative between the John Walton Muscular Dystrophy Research Centre at Newcastle University and Duchenne UK, embedded in the UK North Star Network. It is funded by Duchenne UK, Duchenne Research Fund and Joining Jack.

Duchenne Hub UK was established in 2016 as a partnership between Duchenne UK and the John Walton Muscular Dystrophy Research Centre at Newcastle University.

Duchenne Hub UK brings together a group of clinical trial sites that have dedicated, trained staff, funded to carry out clinical research for Duchenne muscular dystrophy.

07/08/2026

07/08/2026

Five new care guides in 2025! 📚

Duchenne Care UK released five brand-new care guides in 2025 designed to support people living with Duchenne muscular dystrophy, their families and the healthcare professionals who care for them.

Last year, Duchenne Care UK released:

📘 Physiotherapy and Occupational Therapy Guidance for DMD

🚑 Emergency Care Advice

🦴 Orthopaedic Guidance (for patients and families with DMD)

💊 Corticosteroids in DMD

💙 Psychosocial Guideline Recommendations

These evidence-based resources provide practical, accessible guidance to help improve care, support informed decision-making and empower families throughout every stage of the Duchenne journey.

Read our full 2025 Impact Report to discover more about the progress we've made together.

🔗https://www.duchenneuk.org/about-duchenne-uk/our-impact/reports

Duchenne Care UK is a collaborative initiative between the John Walton Muscular Dystrophy Research Centre at Newcastle University and Duchenne UK, embedded in the UK North Star Network. It is funded by Duchenne UK, The Duchenne Research Fund and Joining Jack.

Duchenne Hub UK was established in 2016 as a partnership between Duchenne UK and the John Walton Muscular Dystrophy Research Centre at Newcastle University.

Duchenne Hub UK brings together a group of clinical trial sites that have dedicated, trained staff, funded to carry out clinical research for Duchenne muscular dystrophy.

05/08/2026

📊 Our 2025 Impact Report is here.

💙 Together, we're driving progress towards a future free from Duchenne.

Last year your support helped us make meaningful strides for everyone affected by Duchenne muscular dystrophy. From investing millions into pioneering research and supporting clinical trials, to providing trusted resources for families and bringing our incredible community together through fundraising events, every achievement has been made possible because of you.

We're also pleased to share that our 2025 Impact Report is now available on our new website, making it even easier to explore the difference your support is making.

Thank you to every family, fundraiser, researcher, volunteer, healthcare professional, partner and supporter who has been part of this journey. Your commitment is helping to create real momentum for the Duchenne community.
Read our full 2025 Impact Report on our new website and see what we've achieved together:

🔗https://www.duchenneuk.org/about-duchenne-uk/our-impact/reports

04/08/2026

🏃‍♀️ Our amazing supporter Michelle Adams is taking on The Big Half Marathon 2026 in support of Duchenne UK, inspired by eight-year-old Luca, who was diagnosed with Duchenne muscular dystrophy three years ago.

Having been Luca's nanny for the past eight years, she's witnessed first-hand the courage, resilience and determination he shows every day. Luca continues to inspire everyone around him.

Now she's taking on this challenge to help fund the vital research and support that families affected by Duchenne rely on. Every donation will help us continue our mission to end Duchenne.

If you're able to support her incredible fundraising effort, we'd be so grateful. Every contribution, big or small, makes a difference. 💙

🔗 Donate here: https://www.justgiving.com/page/michelle-adams-1769103698353?utm_medium=FA&utm_source=CL

31/07/2026

💙 A huge thank you to and everyone involved in this fantastic community fundraising event in Huddersfield in aid of Duchenne UK!

The fundraiser was held in support of Chay and Jenson, who are living with Duchenne muscular dystrophy. The day featured an ever-popular balloon tombola, a favourite with children, with thoughtful adaptations ensuring Chay and Jenson could join in the fun too. Thanks to the incredible generosity of everyone who attended, the event raised an amazing £2,114.

👏 Thank you to everyone who donated, volunteered and took part.

👉 If you'd like to support Zoe's fundraising, you can still donate here: https://www.justgiving.com/page/zoe-dalby-3?utm_medium=FR&utm_source=CL