Duchenne UK

Duchenne UK Duchenne UK has one clear aim – to end Duchenne, a devastating muscle-wasting disease. What is Duchenne? Who is Duchenne UK? What is Duchenne UK doing?

Duchenne muscular dystrophy (DMD) is devastating muscle-wasting disease that mainly affects boys. Duchenne UK is the leading charity in the UK for Duchenne Muscular Dystrophy. Our one clear aim is to end Duchenne. How are we doing it?
• We are the largest UK funder of Duchenne research
• We have created new infrastructure to deliver Duchenne clinical trials in the UK
• We have successfully campaigned to enable quicker access to new treatments
• We have established innovative ways to connect leading DMD drug developers to collaborate to speed up access to treatments
• We support families impacted by the disease, putting them at the centre of our fight to end Duchenne.

👏 A huge congratulations also goes to April Townsend who completed the Royal Parks Half Marathon in a fantastic 2 hours ...
12/10/2026

👏 A huge congratulations also goes to April Townsend who completed the Royal Parks Half Marathon in a fantastic 2 hours and 18 minutes, pictured here alongside Sam O’Shaughnessy!

April took on the 13.1 mile challenge in support of her son, Remi, who is living with Duchenne muscular dystrophy. Every mile was run to help build a better future for Remi and everyone affected by Duchenne.

April has already raised an incredible amount for Duchenne UK, helping fund vital research and support families like hers.

Thank you, April and Sam, for your amazing efforts 💚

You can support April's fundraising here: https://www.justgiving.com/page/april-rebecca

🏃‍♀️💙 A huge congratulations and thank you to everyone who ran the Royal Parks Half Marathon yesterday in support of Duc...
12/10/2026

🏃‍♀️💙 A huge congratulations and thank you to everyone who ran the Royal Parks Half Marathon yesterday in support of Duchenne UK! Including pictured: Anna Boyles, Louise Crow and our Social Media and Marketing Officer George Robbins. 🌳

We’re incredibly proud of every one of you who took on the challenge and went the distance to support the Duchenne community.

Your dedication, determination and incredible fundraising efforts will help us continue funding vital research, improving care and supporting everyone affected by Duchenne muscular dystrophy.

Thank you for every mile you ran, every pound you raised and every step you took to make a difference. We couldn’t do it without you! 💚

🎙️ Respiratory Care | Duchenne Care UK Podcast SeriesThe Duchenne Care UK Podcast Series brings trusted Duchenne care in...
28/09/2026

🎙️ Respiratory Care | Duchenne Care UK Podcast Series

The Duchenne Care UK Podcast Series brings trusted Duchenne care information together in an accessible format for families, carers and everyone living with Duchenne.

One of the episodes in the series focuses on Respiratory Care, exploring how Duchenne muscular dystrophy can affect breathing and why regular respiratory monitoring is such an important part of long-term care.

The episode covers:
🫁 Lung function testing and cough strength
😴 Sleep-disordered breathing and sleep studies
⚠️ Early signs to look out for, including morning headaches, daytime tiredness and disrupted sleep
💙 How proactive monitoring and timely support can make a difference to quality of life

Practical, reassuring and family-focused, the episode explains what respiratory care involves and why regular monitoring can help identify changes before symptoms become obvious.

📱 Scan the QR code to listen to the Respiratory Care episode now, and explore the rest of the Duchenne Care UK Podcast Series

17/09/2026

🚴‍♂️ Ready to take on the challenge?

🎥 Watch our film to see what the Duchenne Dash is all about, and why riders keep coming back year after year.

Register now and join us for the 15th Duchenne Dash in 2027.

The Duchenne Dash 2027 is now live! 🚴‍♂️ Registration is now open and in 2027 we are celebrating 15 years of turning ped...
17/09/2026

The Duchenne Dash 2027 is now live! 🚴‍♂️

Registration is now open and in 2027 we are celebrating 15 years of turning pedal power into progress for people with Duchenne!

Taking place on Friday 7- Saturday 8 May 2027, we are determined to make the 15th edition the biggest, most unforgettable Dash yet!

The Duchenne Dash is more than a 300km London–Paris cycling challenge, it’s a movement helping to transform the future for everyone affected by Duchenne. Now in its 15th year, the Dash has raised over £9 million. It is the power behind Duchenne UK, funding groundbreaking research, clinical trials and new treatments. Every rider and every pound raised helps drive progress and moves us closer to ending Duchenne.

We’re also excited to unveil the 2027 Dash creative (above), designed by illustrator Valenti to celebrate 15 years of the Duchenne Dash and the incredible spirit of everyone who takes part.

Start your registration today to secure your place and avoid disappointment: https://www.duchenneuk.org/dash

If you’ve already completed the pre-registration form a member of our team will be in touch shortly to progress your application.

The final total is in and the Duchenne Dash 2026 raised an incredible £925,000!🎉👏🏻🚴🏻‍♂️Every mile ridden, every pound ra...
16/09/2026

The final total is in and the Duchenne Dash 2026 raised an incredible £925,000!🎉👏🏻🚴🏻‍♂️

Every mile ridden, every pound raised, and every challenge overcome reflects the strength and determination of this remarkable community.

The Duchenne Dash is the power behind Duchenne UK, and we cannot thank all our Dashers enough for their commitment, passion and support.

Now, the real impact begins.

The funds raised are already helping to drive groundbreaking research, improve care, accelerate access to life-changing treatments, and support innovative technologies that empower people living with Duchenne muscular dystrophy.

Because of you, progress is happening faster. Because of you, hope is becoming reality.

Together, we are changing the future for everyone affected by Duchenne.

In 2027, we celebrate 15 years of the Duchenne Dash, and we’re determined to make this milestone event our biggest and most unforgettable yet.

Registration for the Duchenne Dash 2027 opens tomorrow!

Will you be part of it? 👀

💙 A huge thank you to this incredible team taking on a 15km Tough Mudder for Duchenne UK! 💙On 10 October, Sophie Harding...
15/09/2026

💙 A huge thank you to this incredible team taking on a 15km Tough Mudder for Duchenne UK! 💙

On 10 October, Sophie Harding and her team of five will be crawling through mud, tackling obstacles and pushing themselves well outside their comfort zones, all to raise vital funds for people and families living with Duchenne muscular dystrophy.

They’ve already raised an amazing £845, and we’d love to help them reach their fundraising goal! 🙌

Every donation, big or small, helps support Duchenne UK’s work to fund research, improve care and ultimately end the devastating impact of Duchenne.

If you can, please show them your support and donate today:
🔗 https://www.justgiving.com/team/duchenne-teamjustgiving

📢 Introducing the Duchenne Care UK podcast series 🎙️These easy-to-listen conversations, which feel more like a discussio...
07/09/2026

📢 Introducing the Duchenne Care UK podcast series 🎙️

These easy-to-listen conversations, which feel more like a discussion between two friends, bring the guidance developed through Duchenne Care UK to life. They aim to help families understand key aspects of care and navigate important health decisions with greater confidence.
 
Based on the existing Duchenne Care UK patient and family guides and developed with input from the Duchenne Care UK working groups, the podcasts break down the information into accessible, short episodes, making it even easier to absorb, revisit before appointments, and refer back to when care needs change or new treatments begin.
 
You can find and listen to the podcasts via the QR code above on Spotify or on our website here https://www.duchenneuk.org/support/care/podcast-guidelines

26/08/2026

📣 Opportunity for adults living with Duchenne

The University of Hertfordshire is looking for an adult living with Duchenne muscular dystrophy to share their experiences with 2nd year Physiotherapy students as part of a teaching session.

The session will take place on Monday 2 November, between 11am and 2pm, and will involve answering questions about experiences of living with DMD and experiences of physiotherapy.

Full information about the session would be provided before agreeing to take part.

The session will take place at the University of Hertfordshire in Hatfield. Travel expenses may be reimbursed for volunteers living relatively locally, and there is also an option to be paid for your time.

If this opportunity is of interest, or you would like to find out more, please contact [email protected] directly.

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Unit G24, Shepherd’s Building, Charecroft Way
London
W140EE

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