Albinism Fellowship UK & Ireland

Albinism Fellowship UK & Ireland Providing information, advice and support for people with Albinism and their families. Please note: We are not a casting or modelling agency.

Albinism Fellowship is a positive and sociable volunteer-run organisation that aims to provide information, advice and support for people with albinism and their families. We also provide information about the condition to professionals working with people with albinism, and other appropriate interested parties.

19/08/2026

Are there any cures for albinism? 🤔

At the moment, there is no cure for albinism — but research into possible treatments, is taking place. Particularly Gift of Sight

So here’s an interesting question for people with albinism…

If there were a cure, would you take it?

Would your answer be different if it could improve your vision or reduce photophobia, but didn’t change the way you look?

Or is albinism simply part of who you are?

We’d love to hear what you think. 👇🤍



New event - Zoom Call for adults with Albinism from the Black and Minority Ethnic (BAME) community. Date: Tuesday 22 Sep...
18/08/2026

New event - Zoom Call for adults with Albinism from the Black and Minority Ethnic (BAME) community.
Date: Tuesday 22 September
Time: 8:00 - 9:00pm
Hosted by Naseem Akhtar Shuker, an experienced facilitator and Albinism Fellowship member.
See link in the first comment for booking details.

18/08/2026

You sometimes hear people describe themselves as having “partial albinism.” It’s an older term that has been used to describe people with albinism who have more pigmentation — rather than the very pale skin, white hair and minimal pigment associated with OCA1A.

But albinism isn’t something you have partly.

Albinism is genetic. You can have a type of albinism, or you can carry a genetic variant associated with albinism without having the condition.

What does vary enormously is how albinism looks and affects someone. Different types — and even different people with the same type — can have very different amounts of pigmentation and different visual characteristics.

So having darker hair, more skin pigment or a different appearance doesn’t make someone have “partial” albinism.





17/08/2026

Fred is 5 years old he and his brother both have OCA, he absolutely loves playimg pool. At 5 months old, Fred’s parents were incorrectly told that he would be blind. He wouldn’t ride a bike, play sports or cope in a “mainstream “ school environment.

He has proved everyone, including his parents , very very wrong.

He has just taken part in a Pool Marathon, where he played consistent pool for over 13 hours in a 24 hour period and raised over £1k for Albinism Fellowship. Jane Cadman

THANK YOU SO MUCH 🤍

16/08/2026

Sometimes it’s the simple things that are surprisingly tricky when you’re visually impaired.

Putting a plug into a socket is one of mine. Finding the socket, getting the angle right, lining up all three pins… while ideally not electrocuting myself in the process. 😂

It’s a tiny everyday task most people probably never think twice about. For me, it’s a combination of touch, patience, muscle memory and a bit of “yep, that feels about right.”

Another glamorous moment in the life of a legally blind person. 😂





14/08/2026

Albinism isn’t just one condition that looks the same for everyone. There are two main types — oculocutaneous albinism (OCA), which affects the eyes, skin and hair, and ocular albinism (OA), which mainly affects the eyes. Within these are different genetic subtypes, and they can affect pigmentation and vision in different ways.

So even two people with albinism can look very different from each other.





Looking for some Bank Holiday fun? Want to meet other people with albinism?Then we would love to see you at our next in...
12/08/2026

Looking for some Bank Holiday fun? Want to meet other people with albinism?

Then we would love to see you at our next in-person AF event in Hertford on Saturday 29th August!

Join us in Hertford this August......
🤝 Meet other families and adults with albinism and get to know each other
☕ Teas and coffees provided - please bring a picnic
🎨 Pottery Painting (for adults and kids) from Manic Ceramics
🫧 Sensory play, bubble machine & ball pit.....and more!
🎮 Dedicated teen hangout space

This is a free event!
Visit the events page on our website to register: https://www.albinism.org.uk/event-details/bank-holiday-family-fun

12/08/2026

Does everyone with albinism have white hair? No. That’s actually the minority. People with albinism can have a whole range of hair, skin and eye colours. Some start off very light and their hair darkens as they get older. Others have blonde, brown or deeper tones. The media often shows just one look, but albinism is a spectrum. It’s about reduced pigment, not one single appearance. Help bust the myth. Every person’s experience and appearance is unique.




11/08/2026

Using everyday electrical appliances can be a bit of a guessing game when you can’t read the dials, buttons, tiny text or touchscreens.

Washing machines, tumble dryers, ovens, air fryers… they might have loads of clever settings, but I tend to stick to the same couple because I’ve memorised where they are. As for what all the other settings do? Your guess is probably as good as mine! 😂

Lighting makes a huge difference too. Glare and reflections from shiny surfaces or screens can make already difficult-to-read text even harder to see, and constantly straining to work things out can be really tiring on your eyes.

But this is just my normal. You adapt. I memorise the settings I use most, count clicks or button presses, get really close when I need to, or use my phone or a magnifier to help me read something.

It might take me a little longer, and I’m probably not getting the full benefit of all those fancy settings I paid for, but there’s usually a way to make it work.

It’s one of those everyday things you probably don’t think about until you try doing it when you can’t actually read what the appliance is telling you. 👀

10/08/2026

If I had a penny for every time someone told me I was holding things too close, I’d be a millionaire. It might look unusual—yes, sometimes things are right up to my eye—but that’s how I see. If it’s further away, I just see colours and shapes. People say things like, ‘You’ll damage your eyes’ or, ‘That’s bad for you.’ But with albinism, that’s not true. Holding things close doesn’t cause damage—it’s just how I access detail. So if you or someone you know needs to hold things super close, that’s not wrong. It’s valid. It’s practical. It’s ours. If someone tells you otherwise, just ignore them.




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