The Haemophilia Society UK

The Haemophilia Society UK We are a community that makes each other feel stronger every day. Membership is completely free!

Have you experienced iron deficiency or iron deficiency anaemia alongside a bleeding disorder?We want to hear about your...
20/08/2026

Have you experienced iron deficiency or iron deficiency anaemia alongside a bleeding disorder?

We want to hear about your experience 📋

We’re running a survey to better understand what it’s like to experience iron deficiency and/or iron deficiency anaemia as someone affected by a bleeding disorder, including the care, treatment and support you’ve received.

Your experiences can help us build a clearer picture of the challenges people face and where improvements may be needed.

If this applies to you, please take a few minutes to complete our survey: https://www.surveymonkey.com/r/5JR6PZN

Our conference for everyone with a bleeding disorder is back! Join us at the Haemophilia Society Big Get-Together 2026.🗓...
19/08/2026

Our conference for everyone with a bleeding disorder is back!

Join us at the Haemophilia Society Big Get-Together 2026.

🗓️ Saturday 21 November
📍Crowne Plaza Hotel, Nottingham
🕦 9.30am - 7pm

If you or a family member live with an inherited or acquired bleeding disorder, our Big Get-Together (BGT) annual conference is for you - a chance to meet others with a bleeding disorder, share experiences and find out more about treatment and care developments.

We welcome people with von Willebrand disorder (VWD), haemophilia, Glanzmann thrombasthenia, factor VII (7) deficiency, factor V (5) deficiency, factor XIII (13) and all other rare genetic or acquired bleeding disorders.

BGT is a friendly, informal event which is free to all of our members. Whether you’re recently diagnosed or have been living with a bleeding disorder for many years, you’ll find plenty of new information about your condition.

We’ll have dedicated sessions for people with very rare bleeding disorders as well as separate workshops for people with VWD and haemophilia.

Register for your place now: https://www.eventbrite.co.uk/e/haemophilia-society-big-get-together-2026-tickets-1997965505611

Are you a woman who carries haemophilia A or B? You can help shape future research - get in touch for more information ℹ
19/08/2026

Are you a woman who carries haemophilia A or B?

You can help shape future research - get in touch for more information ℹ

Still wondering what you could do for Sports Day? 👀The best thing about Sports Day is that you don’t have to be an athle...
18/08/2026

Still wondering what you could do for Sports Day? 👀

The best thing about Sports Day is that you don’t have to be an athlete to take part!

Last year, our community got creative with their challenges, getting stuck right in with activities like badminton, golf, archery and much more.

Whether you want to take on a big personal challenge, try something completely new or simply find a fun way to move, there are so many ways that you can get involved.

So, why not take some inspiration from last year and start thinking… what will you do for Sports Day 2026?

Register now to get involved and start fundraising: https://haemophilia.org.uk/sports-day-2026/

📅 Saturday 12 September 2026

14/08/2026

Family Camp was just over two weeks ago, and we’re still reminiscing… 💖

In this video, we hear from Ellie Conway, one of the parents who joined us this year, about what Family Camp means to her family and why having the opportunity to spend time with other families living with bleeding disorders is so valuable.

🎥:

🏃‍♀️🏅 What will you be taking on at Sports Day?Whether you’re ready to run, walk, dance, stretch, cycle or try something...
11/08/2026

🏃‍♀️🏅 What will you be taking on at Sports Day?

Whether you’re ready to run, walk, dance, stretch, cycle or try something completely new, there’s plenty of ways to get moving at Sports Day 2026!

From big challenges to fun activities you can enjoy with friends and family, Sports Day is all about getting active, having fun and celebrating what we can do together.

Whatever you choose, every activity makes a difference!

📅 Saturday 12 September 2026

Join the official Facebook group: https://www.facebook.com/groups/1401446551901371/

Register for Sports Day: https://haemophilia.org.uk/sports-day-2026/

11/08/2026

What does it mean to live with von Willebrand disorder today?

In our video Past, present, possible: living with von Willebrand disorder, people with VWD share their experiences of diagnosis, treatment and life with a bleeding disorder - reflecting on how things have changed and what they hope the future will bring.

In this clip, we hear from Xan about his experience living with VWD.

Watch the full film via the link in our bio 🎥

This film was developed and produced with financial support provided by LFB Biopharmaceuticals.

Later this month, our fantastic trustee Paul will be celebrating turning 60 by taking on the 2km Night Glow Swim in Cope...
06/08/2026

Later this month, our fantastic trustee Paul will be celebrating turning 60 by taking on the 2km Night Glow Swim in Copenhagen Harbour 🏊

Living with severe haemophilia A, Paul has been training hard to prepare for the cold-water challenge, and we couldn't be more inspired by his determination.

Good luck, Paul – we'll be cheering you on every stroke of the way! 🏅

05/08/2026

There’s nothing better than hearing Family Camp through the eyes of the children who make it so special ✨

We caught up with one of our youngest campers, Leo to find out what he loved the most about the weekend – from making new friends to trying exciting new activities.

Family Camp is about more than just a weekend away. It’s a chance for children and families affected by bleeding disorders to connect, build confidence and feel part of a community that truly understands.

What was your favourite Family Camp memory?

We’d love to hear in the comments ⬇️

🎥:

This year, Sports Day isn't just about moving more and having fun - we've got some exclusive rewards waiting for you too...
04/08/2026

This year, Sports Day isn't just about moving more and having fun - we've got some exclusive rewards waiting for you too!

👕 Sign up and you'll receive an exclusive Sports Day t-shirt (while stocks last).
💙 Raise £25 and we'll send you a THS sweatband to wear with pride.
💧 Raise £125 and you'll unlock our limited edition Sports Day water bottle.

Every pound you raise helps us continue supporting the UK bleeding disorder community.

Whether you're walking, running, dancing, cycling or creating your own challenge, every step makes a difference.

Ready to earn your rewards?

Sign up today🏅

https://haemophilia.org.uk/sports-day-2026/

Address

52B Borough High Street
London
SE11XN

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+442079390780

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