The Haemophilia Society UK

The Haemophilia Society UK We are a community that makes each other feel stronger every day. Membership is completely free!

What do you get when you introduce two elite athletes and two budding sport superstars who all have a bleeding disorder?...
08/10/2026

What do you get when you introduce two elite athletes and two budding sport superstars who all have a bleeding disorder?

For Ella, Archie, Alex & Ed, sport has been about more than competition. It’s been about finding confidence, pushing boundaries and having people around them who believe in what they can achieve - a reminder that sport is for everyone.

Watch the full video here 🎬: https://www.youtube.com/watch?v=vNsqs6e6JSQ

When Archie and Ella met Ed Fuller and Alex Dowsett, they found out that they had a lot in common.A love for sport, big ...
02/10/2026

When Archie and Ella met Ed Fuller and Alex Dowsett, they found out that they had a lot in common.

A love for sport, big ambitions and, with the support of those around them, had already achieved so much.

They also all live with a bleeding disorder...

Watch the full film now on our YouTube channel: https://www.youtube.com/watch?v=vNsqs6e6JSQ

What can we do to get health professionals to listen and act when women and girls ask for help with their heavy periods?...
29/09/2026

What can we do to get health professionals to listen and act when women and girls ask for help with their heavy periods?

This was the question at an event organised by the Haemophilia Society at the Labour Party Conference in Liverpool today, which brought together some of the leading voices in women’s health.

The event, called ‘Menstrual health: Time to listen, time to change’, discussed how we can improve the healthcare system so that women and girls are listened to and are able to access the care that they need.

The panellists were Olivia Bailey MP, Chair of Women and Equalities Committee, Dame Lesley Regan, Women’s Health Ambassador for England, Dr Jo Traunter, THS trustee who lives with von Willebrand disorder and Dr Nikki Curry, Associate Professor of Haematology and Consultant Haematologist.

The event was designed to raise awareness that one in five women with heavy menstrual bleeding may have an under-diagnosed bleeding disorder. Panellists were concerned that women’s health research — including the potential link between bleeding disorders and endometriosis — is inadequate.

The discussion picked up on themes raised in a report on the treatment and care of women and girls with a bleeding disorder which was published by THS last year.

Two weeks on, and we’re still thinking about Sports Day!From getting active with friends and family to taking on persona...
29/09/2026

Two weeks on, and we’re still thinking about Sports Day!

From getting active with friends and family to taking on personal challenges, our community found so many different ways to get involved and raise vital funds for the UK bleeding disorder community.

Ivy’s sponsored swim is just one brilliant example of this 🏊‍♀️

A keen swimmer and dancer living with Haemophilia A, Ivy has been 'empowered to strive for and promote a healthy, happy and fulfilled life for those with a bleeding disorder in 2026, with both positivity and determination'.

Together with the help of her friends, Ivy completed more than 240 lengths - covering a distance greater than the width of the River Mersey and raising £1,630! 🌊

Well done Ivy & co!

Today at the Labour Party Conference in Liverpool, we raised the vital issue of tackling state injustices at a debate at...
28/09/2026

Today at the Labour Party Conference in Liverpool, we raised the vital issue of tackling state injustices at a debate attended by MPs, campaigners and policy-makers.

The event, called ‘After the Hillsborough law, how can we tackle state injustices’ was organised by the Haemophilia Society, the Hillsborough Law Now campaign and the New Statesman.

It brought together campaigners and politicians, including Dame Diana Johnson MP, Deborah Coles, from the support group INQUEST and Clive Efford, Chair of the All Party Parliamentary Group on Haemophilia and Contaminated Blood to discuss what more can be done to tackle state injustices.

Our chief executive Kate Burt explored the lessons learnt from the infected blood scandal and its compensation process.

Ideas from the panel included creating a permanent compensation body and a national oversight board to ensure that public inquiry recommendations are implemented.

🏃 Come cheer on Team THS! Our runners are taking on the Royal Parks Half Marathon on Sunday 11 October, and we’re lookin...
25/09/2026

🏃 Come cheer on Team THS!

Our runners are taking on the Royal Parks Half Marathon on Sunday 11 October, and we’re looking for volunteers to help us cheer them on!

Come along, make some noise and help our runners get to the finish line 📣

📅 Sunday 11 October
🕐 1-3pm�
👉 Want to volunteer?

Get in touch with our fundraising team: [email protected]

🇲🇹 A weekend in Malta with an important milestone to celebrate!This weekend we met with Malta’s Minister for Health and ...
21/09/2026

🇲🇹 A weekend in Malta with an important milestone to celebrate!

This weekend we met with Malta’s Minister for Health and Deputy Prime Minister to thank him for the licensing of Emicizumab (Hemlibra).

For people living with haemophilia A, access to new treatment options can make a meaningful difference to how they manage their condition and their everyday lives.

A big thank you to everyone who continues to champion better access and choice for the bleeding disorders community.

18/09/2026

Missed out on the London Landmarks Walk last Saturday?

Here’s what we got up to with our friends over at to mark Sports Day 2026 ✨

On Saturday, a group of our members, staff, young ambassadors and representatives of the Asociación Andaluza de Hemofili...
15/09/2026

On Saturday, a group of our members, staff, young ambassadors and representatives of the Asociación Andaluza de Hemofilia (ASANHEMO) took on our Sports Day London Landmarks Walk.

As well as taking in the sights, we had egg and spoon races by Tower Bridge, three-legged races by Grant's Quay and sack races outside the Globe.

Massive thanks to everyone who took part!

Address

52B Borough High Street
London
SE11XN

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+442079390780

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