The Duchenne Family Support Group

19/06/2026

☀️🍗 🚤 👩‍🦼SAVE THE DATE!🧑🏻‍🦼‍➡️🚤🍗☀️
Bewl Water in Kent, Saturday 25th July.
A fabulous day out for all the family with a BBQ and trips out on the water. Having a go at driving the ‘Wheelyboat’ is an absolute must for all our lads! No need to book, just turn up on the day. Please see the email with instructions for the visit.
If you are not a member of the Duchenne Family Support Group, please follow this link:
https://dfsg.org.uk/membership-page-2/

17/06/2026

☀️🌳🧺☀️!DATE CONFIRMED!☀️🧺🌳☀️
Tilgate Park, West Sussex, Thursday 30th July.
Join other DMD families for a picnic in the park at this beautiful and varied scenic area with its own fantastic zoo, which is home to over 100 animals. There are cafés, a walled garden, and a maze. A very popular Day Out with our DMD families. No need to book, just follow the instructions on the email you will receive nearer the time 😃

15/06/2026

🚙 🐒 🦁🦒☀️SAVE THE DATE!☀️🦒🦁🐒 🚙
Sunday, 26th July LONGLEAT SAFARI PARK 
Longleat in Wiltshire was opened in 1966 as the world‘s first drive-through safari park outside Africa. The park is home to over 120 species, which you can see by car, foot, train, bus or boat, all in the grounds of Longleat House
The booking forms for our DFSG subsidised Day Out to Longleat Park will be emailed soon!
If you are not a member of the Duchenne Family Support Group, please follow this link: https://dfsg.org.uk/membership-page-2/

12/06/2026

🌳🧺☀️!DATE TO BE CONFIRMED!☀️🧺🌳
Tilgate Park, West Sussex
THE DATE WILL BE POSTED ON FB SOON!
Join other DMD families for a picnic in the park at this beautiful and varied scenic area with its own fantastic zoo, which is home to over 100 animals. There are cafés, a walled garden, and a maze. A very popular Day Out with our DMD families. No need to book, just follow the instructions on the email you will receive nearer the time 😃

26/05/2026

🌼 📖 The Summer edition of the ‘Duchenne News’ is out now! 📖🌼
With stories, advice, and news of our subsidised holidays and days out, it is an essential read for all Duchenne families. 
If you do not currently receive the newsletter and you would like to become a member of the DFSG - please follow this link: https://dfsg.org.uk/membership-page-2/  😃
Membership of the DFSG is free and without obligation 🥰

15/05/2026

Bit of a long shot!
But does anyone have any of these long straws that we used to sell?
One of our families is trying to get hold of some, and we can no longer supply them.
Thank you 🙏 

13/05/2026

A couple of rooms at the DFSG subsidised Le Fosso (https://lefosso.fr/) holiday in August have become available. We'll send out another copy of the invitation email as a reminder. If you're not receiving these please check we have your correct email address or register for membership via our website: https://dfsg.org.uk/membership-page-2/.

Apply for membership to the Duchenne Family Support Group Family membership of the Duchenne Family Support Group is open to individuals affected by Duchenne muscular dystrophy and their parents, guardians, and siblings. Membership is free, and you will receive our quarterly newsletter, occasional em...

26/04/2026

24/04/2026

Please help our fabulous runners to reach their £2,000 fundraising targets! 🙏
They are getting SO close! 🏃 🎉 🏃🏻‍♂️
Click the ‘How you can help’ link under the London Marathon logo on our website homepage at https://dfsg.org.uk/dev/
Thank you!! 🙏❤️ 🙏

17/04/2026

If you become our supporter on easyfundraising.org.uk, you'll raise free funds for the DFSG simply by shopping online. And if you join by Sunday, you can help us WIN 1 of 8 £250 donation prizes in easyfundraising's giveaway! We will get a FREE entry each time a new supporter signs up! It only takes a moment, and it's completely free, so please get involved if you haven't already - this would really boost our fundraising:

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