The Duchenne Family Support Group

06/10/2026

Last month, we were delighted to receive a cheque for an incredible £1,290.10 at the Shoreham Raft Race presentation evening. The money was raised through this year’s brilliant Raft Race on the River Adur, with more than £5,600 shared between four local charities. A massive thank you to the organisers, everyone who took part, and everyone who supported the event. Your generosity means so much to us and the families we support 💙

30/09/2026

😃🙏 PLEASE SPREAD THE WORD! 🙏😃
Invite your friends to follow this page 👍
The DFSG wants to reach as many Duchenne families, in the UK, as possible.
News of our three subsidised holidays, our quarterly newsletter and numerous days out and events will all be posted here!
Simply click the 3 dots, top right on our profile page, and you can invite your friends!
Thank you 🙏

22/09/2026

🍁📖 The Autumn edition of the ‘Duchenne News’ is out NOW! 📖 🍁
With stories, advice, and news of our subsidised holidays and days out, it is an essential read for all Duchenne families. 
If you do not currently receive the newsletter and you would like to become a member of the DFSG - please follow this link: https://dfsg.org.uk/membership-page-2/  😃
Membership of the DFSG is free and without obligation 🥰

21/09/2026

🧡MDUK Northern Ireland Paediatric Information Day on Saturday 21 November🧡
A free, in-person event for parents and carers of children living with a muscle wasting condition.
Whether your child has recently been diagnosed, you need practical advice, or you’d like to connect with others with similar experiences, everyone’s welcome.
You’ll get the chance to:

• Meet the team and feel part of our community 🧡

• Hear about the latest developments in research and support 🔬

• Learn about services and resources available to families 👪
📍 Girdwood Community Hub, 10 Girdwood Avenue, Belfast, Antrim, BT14 6EG
⏱️ 10am - 3pm
MDUK NI will provide lunch and refreshments throughout the day.
Find out more: https://www.musculardystrophyuk.org/support/events/northern-ireland-paediatric-information-day/

10/09/2026

Are you aged between 16 and 25, living with Duchenne and looking for something new to get involved in?
Sarah Green needs your help to set up social groups for youngsters with DMD - initially in the Birmingham/Coventry area.
Please complete this anonymous survey so that Sarah’s charity, ‘Bradley’s Promise’, can start to provide what you want!
https://forms.gle/UvwUFLDEuuErAQoe6
Thank you 😊

08/09/2026

The booking forms for the DFSG subsidised holiday to Brickhouse Farm Cottages, in May 2027, have been sent out by email! 😊
(https://brickhousecottages.co.uk)
If you didn’t get yours, please contact Sue at [email protected] 🤔
If you would like to apply for one of our subsidised holidays, and you are not a member of the DFSG, please follow this link:
https://dfsg.org.uk/membership-page-2 🥰

07/09/2026

31/08/2026

The DFSG Holiday to Le Fosso, France 🇫🇷
The DFSG offer 3 subsidised holidays a year, to our DMD families.
If you would like to go on one of our very popular holidays, please follow this link to receive our newsletter and booking forms:
https://dfsg.org.uk/membership-page-2

29/08/2026

👍🙋🏻🙋‍♀️🗓️The DFSG AGM will be on Monday 28th September at 7.30pm🗓️🙋‍♀️🙋🏻👍
We'll arrange it online as usual, and unless we have a large attendance we'll rely on Proxy Votes to complete the official business of approving our accounts.
Please respond to the email when it arrives!
If you're not receiving our emails, please contact us! 😊

27/08/2026

The Duchenne Family Support Group in collaboration with The Muscle Help Foundation is very pleased to announce that we are offering another Men’s weekend, this time at Ramada Hotel & Suites by Wyndham, Coventry.

See the link for details. DFSG members will have received this by email.