Cystic Fibrosis Trust

05/10/2026

"To anyone thinking of applying, I’d say just go for it! You’ve got absolutely nothing to lose and so much to gain. It gave me the confidence to believe not only in my business, but in myself."

Abi is the founder of princess party business Fairytales and Tiaras and a recent winner of our Helen Barrett Bright Idea Awards, which provides financial support for people with CF who want to turn their business dreams into a reality. 💡

🗓️ Applications close at 11.59pm on Sunday 11 October.

So if you have a bright business idea like Abi, visit our website and apply today!

➡️ https://ow.ly/rpLM50ZUnuR

02/10/2026

✨Fundraiser Friday✨

This Fundraiser Friday, we’re celebrating Daniel Whittle’s ‘Breath of Hope’ challenge with friend Ricky Southam, travelling 1,000 miles in a Reliant Robin and stopping at windmills along the way 🚖

Inspired by Daniel’s daughter, Darcie, who has cystic fibrosis, each windmill symbolised the breath turning its sails, something people with cystic fibrosis can struggle with.

Despite overheating, burst brake pipes, broken suspension and a deafeningly noisy car, the pair kept going and smashed their £1,000 target. The total now stands at £2,969 💛

Daniel said, "I have been completely humbled and astounded by the support, both locally and from those we met along the journey. We even had people flagging us down to donate!"

If you want to take on a challenge and help make a difference, head to the TeamCF page on our website 🫶

➡️ https://ow.ly/SupV50ZTQii

01/10/2026

What does it take to tackle some of the biggest challenges in CF lung health?

Over the past two years, the Translational Innovation Hub Network for CF Lung Health and Infection – or the CF Lung Health Network for short – has brought together researchers, clinicians, people with CF and partners across the UK and beyond to make real progress against CF lung infections.

Swipe through to explore some of the numbers behind the network’s first two years 👉

Visit our website to read more about the CF Lung Health Network on our website.

➡️ www.cysticfibrosis.org.uk/network

01/10/2026

This Gift Aid Awareness Day, boost your past and future donations in just a few clicks.

Every year, charities miss out on an estimated £560 million in unclaimed Gift Aid tax relief.

By registering for Gift Aid today, you can give people affected by cystic fibrosis, like Sumaiyah, even more support. 💛

"Living with CF can bring so many extra pressures and unexpected costs, so knowing there is somewhere you can turn for practical support makes such a difference," Sumaiyah said.

➡️ https://ow.ly/lXOr50ZSAv3

30/09/2026

Need a little extra focus, motivation, or accountability to tackle your to-do list?

If you are part of the CF Community and aged 18+, why not join our relaxed virtual co-working session for the CF community!

Bring along whatever you're working on, whether it's work, study, life admin, or a personal project, and spend time alongside others in a supportive, understanding environment.

🗓️ Wednesday 14 October at 10am.

Come as you are. Focus your way. Work alongside people who get it 👏

➡️ https://ow.ly/ceux50ZSZEE

Microsoft Virtual Events Powered by Teams

29/09/2026

The Autumn edition of CF Life magazine is out now!

Here are some of the things you can read about:

🟡 We hear from Nicole about her experience on Channel 4 show First Dates and her top tips for dating with CF

🟡 We explore phage therapy – what it is, how it could be used as a potential treatment for CF lung infections, and the research we’re funding to find out more

🟡 CF dietitian Darren Sills answers questions from the community on everything from gut symptoms to healthy eating

🟡 We spotlight our new resources on school and CF.

Plus lots more!

Visit our website to get your digital copy today.

➡️ https://ow.ly/Fk5850ZSy9u

29/09/2026

We're delighted to share that the UK physiotherapy standards for cystic fibrosis has just been published, updating the previous version from 2020.

Specialist CF physiotherapists Catherine Brown and Nicky Mills explain what has changed and why the changes matter for people with CF. 🫁

Wherever you receive your CF care in the UK, these standards help ensure that the physiotherapy support you receive is safe, consistent and based on the best available evidence.

Read more on our blog.

➡️ https://ow.ly/M1IO50ZSwTT

28/09/2026

A new study is looking at an alternative pancreatic enzyme replacement therapy - or ‘enzyme’ therapy.

ANG003 is a new enzyme therapy being studied by a company called Anagram that is made using highly purified enzymes produced by microorganisms.

Researchers want to understand how well it helps people with CF digest and absorb nutrients compared with current enzyme therapies that are made from pig pancreases.

To find out more about who can take part and what’s involved, head to our Trials Tracker.

➡️ https://ow.ly/hMBo50ZQ32F

28/09/2026

Your child is invited to join Verity, a model sculpturer with CF, for a free online Halloween-themed clay making workshop!

Learn how to create a spooky model in polymer oven-bake clay in this fun and creative workshop that will get your imagination flowing!

For children aged 10–14 who have CF (or who have a sibling or a parent with CF).

🗓️ Thursday 15 October, 4.30–6pm on Zoom.

✉️ Email [email protected] to sign up.

25/09/2026

Fundraiser Friday ✨

Geoff recently completed the Richmond Marathon for Cystic Fibrosis Trust. 🙌 What started as personal marathon training quickly turned into an impactful fundraising effort inspired by his godson, with an unforgettable highlight being a high-five from him at mile 25.

To date, Geoff has raised a phenomenal £17,300!

Fundraising is vital to ensure everyone with gets the support and care they need. When Geoff took on his challenge, he realised just how close CF is to so many of us – and how powerful it is when people step forward to support the cause.

If you want to take on a challenge and help make a difference, sign up for a running event near you and join today.