Neuroblastoma UK

19/08/2026

It's wonderful to see all the different ways our supporters choose to fundraise for us.

Jordan recently took on an incredible challenge, cycling 80 miles from Glenrothes Via Cardenden to Ibrox, in memory of his close friend Archie. Arriving in time for the Rangers VS Hibs match, Jordan has raised a fantastic £2770 for Neuroblastoma UK. 🚴

Thank you Jordan, for your incredible dedication. We are so grateful 💛 💙

13/08/2026

Stanley was diagnosed with neuroblastoma at just 1 year old, undergoing emergency surgery and six months of chemotherapy. Stanley is now a happy healthy four-year-old, about to start School in September. Victoria, Stanley’s mum, shares his story as a story of hope for other families…

"Within hours of his diagnosis Stanley was in surgery. We didn’t even have time to think. Thankfully, within 48 hours Stanley was back crawling and didn’t seem to be in any pain or discomfort. We had one incident where his cannula slipped meaning the fluids were not going into his veins, causing his arm to swell, which left him with a little scarring. But overall the surgery was a success and the hospital was amazing.

"The chemo was more intense with him having to have a central line fitted beforehand. Seeing our little boy go through so much was incredibly difficult and emotional. Thankfully, Stanley carried on smiling throughout the whole journey. The first cycle of chemo he didn't show many side effects apart from tiredness. The second round he began to be sick causing vomiting, this was controlled with medication which kept it under control.

"One of the hardest parts was his neutrophils not being high enough for rounds of chemo to take place causing delays but once again nothing phased Stanley, which kept us going.

"We look back now and are shocked at how he lost his hair as we really didn't see it at the time.

"Stanley is now thriving, he is currently in pre-school due to start reception in September. He loves gymnastics which is brilliant considering how much Neuroblastoma affected his mobility. He loves running, riding on his scooter and just being a cheeky little four-year-old boy."

A big thank you to Victoria for sharing Stanley's story, you can read his full story here ➡️ https://www.neuroblastoma.org.uk/personal-stories/stanleys-story

07/08/2026

This summer, a group of school parents swapped their schools run for real runs, in support of an incredibly brave young student in their community who was recently diagnosed with neuroblastoma.

With the family's blessing, St David's Parents wanted to take on Run Lake Dorney to show their support. The team raised a fantastic £6,078.00 + gift aid, which will be split between Neuroblastoma UK and Real Eazy.

We would like to say a HUGE thank you to everyone who took part, it is incredibly inspiring to see so many people in the community come together to support a very brave, young girl facing neuroblastoma 💛 💙

29/07/2026

A huge thank you to Tokio Marine HCC - MIS Group, who took on the Three Peaks Challenge for Neuroblastoma UK! 🏔️💛

On 2nd July, the team conquered all three peaks, smashing their target by completing the challenge in an incredible 10 hours and 30 minutes - well ahead of their 12-hour goal! 🎉

Even more impressively, they've raised an amazing £7,113 from the challenge, which will be match by the company bringing their total to £14,226.

Congratulations to everyone involved, and thank you for your outstanding support. Every pound raised is helping to fund vital research into neuroblastoma and bring us closer to better treatments and, ultimately, a cure. 💛

20/07/2026

🎉 We’ve passed the AMRC Expert Review Audit! Meeting AMRC's six principles of expert review confirms that we use robust and rigorous research funding processes, helping us to fund the best research and driving better health outcomes for our community.

17/07/2026

This week we want to celebrate the amazing Oliver, who at just 12 years old took on the Highland Fling Swing in memory of his best friend, Archie.

Oliver completed the challenge on 11th July to mark what would have been Archie's 13th birthday, raising an incredible £1,600 for Neuroblastoma UK!

Oliver, you are an absolute fundraising superstar. Your courage, kindness and determination are truly inspiring, and we couldn't be more grateful for your support.

A huge congratulations and thank you, you should be so proud of yourself. 💛✨

15/07/2026

The 100 Miles in September Challenge is more than just a fundraising challenge 💛

It’s a chance to support the fight against neuroblastoma, raise vital awareness during Childhood Cancer Awareness Month, and share your journey with friends and family 🎗️

Every mile helps spread the word and brings us one step closer to making a difference 💛

Sign up today ➡️ https://register.enthuse.com/ps/event/100MilesinSeptemberforCCAM20261

08/07/2026

Funded by Neuroblastoma UK and Solving Kids' Cancer, the SIOPEN High-Risk Neuroblastoma 2 (HR-NBL2) Trial continues to make strong progress across Europe, with UK centres playing a leading role in this important international study.

We spoke with our Trustee, Martin Elliott, UK Principal Investigator for the trial, to learn more about the latest developments ➡️

The trial is sponsored and centrally coordinated by Institute Gustave Roussy in Paris and is currently open to recruitment in 17 countries. The trial is open and recruiting in 20 of 21 UK children’s oncology centres apart from one.

03/07/2026

Florence was just one year old when a 30cm tumour was found in her tummy and she was diagnosed with high-risk neuroblastoma. Over the last 18 months she has endured chemotherapy, major surgery, stem cell transplants, radiotherapy and immunotherapy but despite it all is still smiling and the “sunshine” for her family. Anna, Florence’s mum, shares her story…

"There is a life before Florence’s cancer diagnosis, and a life after.

"On 18th November 2024, our world didn’t just change, it stopped.

"After weeks of being told it was severe constipation, a 30cm tumour was found in Florence’s tummy, with disease in her spine. She was diagnosed with high-risk neuroblastoma.

"Since then, Florence has gone through 18 months of treatment no child should ever have to face: chemotherapy, surgery, radiotherapy, procedures under general anaesthetic, and long hospital stays that became our normal.

"Florence had a 12-hour surgery to remove her tumour, during which she also had her left kidney removed. Afterwards she was taken to intensive care and ventilated to support her recovery. One of the hardest moments for us was seeing her afterwards, so still, her tiny hands and feet cold while her body fought a high fever and infections, and trying to process just how unwell she looked, with so many tubes and wires attached to her little body after everything she had already been through..."

"Florie has now finished her frontline treatment. She was due to start DFMO, a relapse-prevention treatment, but after it was withdrawn from the UK, we're now exploring private treatment options to access it.

"Our greatest hope is that one day neuroblastoma will be just one chapter in Florence’s story, not the chapter that defines it. But high-risk neuroblastoma leaves families like ours living with uncertainty. Even when treatment ends, the fear of relapse remains.

"Every day with Florence is a gift we will never take for granted."

You can read Florence's full story here ➡️ https://www.neuroblastoma.org.uk/personal-stories/0zumhqstxs0kp3t6p5qtizys79jams

💛 A big thank you to Anna Chattaway for sharing Florence's story 💛

01/07/2026

We're in. Are you?🎗️

Since this time last year, 100 more children and families will have heard the words, "your child has neuroblastoma."

This Childhood Cancer Awareness Month, we're asking you to take on our 100 Miles in September Challenge in solidarity with every child diagnosed with neuroblastoma.

We're opening the challenge early to give you plenty of time to sign up, spread the word, and recruit your friends, family or colleagues to join your team. 💛

Walk, run, cycle, swim - however you choose to move, every mile helps raise awareness and fund vital research into more effective treatments for neuroblastoma.

Whether you're taking on the challenge or cheering someone on (we're looking at you Alan Carr 👀), you can make a difference.

Join the fight against neuroblastoma.
🔗 Sign up now: https://neuroblastoma.enthuse.com/cf/100-miles-in-september-for-ccam-2026-0cc51