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Neuroblastoma UK

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Neuroblastoma UK

Funding innovative research to develop new, more effective treatments for children Neuroblastoma is a rare and aggressive childhood cancer.

About 100 children in the UK are diagnosed each year. We fund research to develop new, more effective & kinder treatment for children with neuroblastoma. Join our fight against childhood cancer today.

30/09/2026

We’re so excited to introduce our new Parents’ Journal 💛
A place for real conversations and shared experiences, parent to parent, family to family.

While our charity is focused on fundraising for the very best neuroblastoma research - to find better treatments and, ultimately, a cure as soon as possible - we also have so many meaningful conversations with many of our wonderful supporters who have been through a neuroblastoma journey, full of love, learnings and advice.

For a while now, we’ve wanted to find a way to share these with those in our community who need them most. And now, we’re delighted to do just that. 💛

Recently, we had a wonderful phone call with our long-term supporter, Jenny, chatting about many aspects of her and her daughter Harper’s neuroblastoma journey now she has finished treatment.

There were so many honest, powerful and beautifully moving moments in our chat that we knew it was the perfect time to open up this conversation.

We hope you’ll join us. ✒️

Thank you so much to Jenny for writing our first entry. If you’d like to contribute to the journal, we’d love to hear from you - (you don’t need to film!) Just drop us a message and we’ll have a quick chat.

👉 Swipe to learn more
➡️ Read Jenny’s Journal entry via the link in our bio.

25/09/2026

If you're thinking 'Why hasn't this existed already?' - we're with you 💛

Bioportal is a long awaited step forward for neuroblastoma research, and we're really excited for the impact it can have across our research portfolio, and neuroblastoma research internationally. We are so grateful to our Patron and Bioportal Principal Investigator Professor Deb Tweddle who has been championing this progress for a long time, and will be leading the initiative with her team in Newcastle for the UK. Deb always speaks so passionately about our work, so here are some snippets from our recent catch up discussing the impact of Bioportal, funded in partnership by Neuroblastoma UK and Solving Kids' Cancer .

23/09/2026

We have great news! Announcing a big step forward in neuroblastoma data...

Every neuroblastoma diagnosis generates valuable information. But so far, it hasn’t been gathered all together in one place. What if we could bring more of that information together, connect the dots and use it to help answer some of the biggest questions in neuroblastoma research? Now, we can take a major step towards doing exactly that.

Neuroblastoma UK and Solving Kids' Cancer are proud to have jointly awarded £50,827 over five years to fund UK participation in SIOPEN Bioportal - a pioneering international resource designed to bring together all the important information surrounding neuroblastoma diagnoses which, together with the existing UK infrastructure collecting biological samples within Vivo biobank, has the potential to significantly advance neuroblastoma research.

Data underpins all our neuroblastoma research, and with this new funding, we are unlocking access to a lot more of it.

Better data. Better research. Better treatments. Better outcomes, from every diagnosis💛

Read more on our website: https://www.neuroblastoma.org.uk/news/a-big-step-forward-for-neuroblastoma-data

18/09/2026

We’ve seen so many amazing families, friends and communities come together to support our 100 Miles in September Challenge this month. 💛

Every mile has a personal story behind it, and we’ve been so grateful to see people walking in honour of loved ones, in support of families facing neuroblastoma, and in memory.

Today, we want to give a very special shoutout to Team Baby Muireann, led by Muireann’s mum and dad, Jenna and Thomas. 💛

Muireann was diagnosed with High-Risk Neuroblastoma at just four weeks old.

As her parents shared:

“In April this year, our beautiful daughter, Muireann, was diagnosed with stage 4 MS Neuroblastoma at just 4 weeks old. Our world changed in an instant, and since then we have witnessed incredible strength and courage from such a tiny little girl.”

Team Baby Muireann originally set out with a fundraising target of £300. We’re completely blown away to share that they have now raised over £3,800 and counting! 🎉

We are so incredibly thankful to Jenna, Thomas, their family and all their friends and, of course, baby Muireann (who may be a youngest challenger) for every mile walked, every pound raised and every bit of love and support they’ve shown.💛

15/09/2026

💛 Knowing the signs of neuroblastoma could make a difference.💛

The symptoms of neuroblastoma can be difficult to spot and may be mistaken for other common childhood illnesses. That’s why it’s important to know what to look out for.

Swipe through to learn about some of the more common symptoms that can occur with neuroblastoma. 👈

If you’re concerned about your child’s health or notice symptoms that are unusual, persistent or worrying, please speak to a healthcare professional.

If you’re worried, get it checked. 💛

11/09/2026

𝗥𝗲𝗺𝘆 𝘄𝗮𝘀 𝗱𝗶𝗮𝗴𝗻𝗼𝘀𝗲𝗱 𝘄𝗶𝘁𝗵 𝗦𝘁𝗮𝗴𝗲 𝗙𝗼𝘂𝗿 𝗛𝗶𝗴𝗵-𝗥𝗶𝘀𝗸 𝗻𝗲𝘂𝗿𝗼𝗯𝗹𝗮𝘀𝘁𝗼𝗺𝗮 𝗮𝘁 𝗷𝘂𝘀𝘁 𝗼𝗻𝗲 𝘆𝗲𝗮𝗿 𝗼𝗹𝗱. 𝗔𝗳𝘁𝗲𝗿 𝗰𝗼𝗺𝗽𝗹𝗶𝗰𝗮𝘁𝗶𝗼𝗻𝘀 𝗽𝗼𝘀𝘁 𝘀𝘂𝗿𝗴𝗲𝗿𝘆 𝘁𝗵𝗮𝘁 𝗹𝗲𝗱 𝘁𝗼 𝗘-𝗖𝗼𝗹𝗶 𝗮𝗻𝗱 𝗦𝗲𝗽𝘀𝗶𝘀, 𝗥𝗲𝗺𝘆 𝘀𝗮𝗱𝗹𝘆 𝗱𝗶𝗲𝗱. 𝗞𝗮𝘁𝘆, 𝗥𝗲𝗺𝘆’𝘀 𝗠𝘂𝗺, 𝘀𝗵𝗮𝗿𝗲𝘀 𝗵𝗶𝘀 𝘀𝘁𝗼𝗿𝘆…

"Remy was the kind of child who changed every room he walked into. He was funny, cheeky, loving, and full of life, a little boy with the biggest personality and the brightest smile. When he was diagnosed with metastatic high risk neuroblastoma at just one year old, our world shattered, but Remy faced everything with a strength that didn’t seem possible for someone so small.

"Since birth we had been taking Remy in to see his GP for chronic diarrhoea, and then sudden severe constipation, however we were turned away by each Dr. We never heard results back from his stool sample about the chronic diarrhoea, and he was prescribed lactulose for his constipation and sent home. It was only when Remy developed bruising around both of his eyes, that major concern was raised.

"Remy’s primary tumour was located in his left abdomen, it was a large tumour measuring 11cm x 10cm, around the size of a small melon. Remy’s primary tumour had complete encasement of his aorta, alongside a few other vital veins and arteries, as well as involvement with both adrenal glands. Remy’s cancer was metastatic, it had spread to many of his bone areas, including his femurs, tibias, pelvis, spine, frontal skull bones, and the bones surrounding his eyes, the cancer had also spread to his bone marrow by 5%...

"There is not enough funding, nor awareness towards childhood cancer. I will continue to be Remy’s voice, I will continue to advocate for him, and to raise as much awareness as I possibly can."

You can read Remy's Full Story here: www.neuroblastoma.org.uk/personal-stories/remys-story 💛🎗️

10/09/2026

🏃𝗚𝗼𝗼𝗱 𝗹𝘂𝗰𝗸 𝘁𝗼 𝗮𝗹𝗹 𝗼𝘂𝗿 𝗮𝗺𝗮𝘇𝗶𝗻𝗴 𝗚𝗿𝗲𝗮𝘁 𝗡𝗼𝗿𝘁𝗵 𝗥𝘂𝗻 𝗿𝘂𝗻𝗻𝗲𝗿𝘀 𝘁𝗵𝗶𝘀 𝘄𝗲𝗲𝗸𝗲𝗻𝗱! 🏃

Among them will be Tony, who is taking on the Great North Run for someone incredibly close to his heart - his three-year-old granddaughter, Ayla.💛💛

Last year, Tony’s world was turned upside down when Ayla was diagnosed with high-risk Stage 4 neuroblastoma.

In just six months, Ayla has faced an unimaginable amount: multiple rounds of chemotherapy, bone marrow aspirations, blood transfusions, major abdominal surgery, infections, MRI scans, a stem cell harvest and high-dose chemotherapy followed by a stem cell transplant.

But through it all, this small but mighty girl has continued to amaze everyone around her. 💛

“No child should face what Ayla has experienced over the last six months...After a tough start, Ayla continues to amaze everyone. Her bright, bubbly personality has not dimmed, no matter what has been thrown her way!”

So, as a grandparent who wishes he could do more, Tony decided to take action:

“As a helpless grandparent, I plan to raise funds.”

And he certainly has! 🎉 Tony has already raised more than £6,000 for Neuroblastoma UK and he’s still going!

Thank you so much Tony and best of luck! We’ll be cheering you on every step of the way!

07/09/2026

Since last September around 100 more families would have heard the dreaded words 'your child has neuroblastoma'. Nothing can prepare a family for such devastating news.

Childhood cancer deserves to be seen, heard and understood. Yet it remains vastly underrepresented in public awareness. For many families the first time they hear the words neuroblastoma is when their child is being diagnosed.

This September join us in shining a light on neuroblastoma. We're going gold, raising awareness and reminding every family facing childhood cancer they are not alone 🎗️💛

04/09/2026

Theo was diagnosed with Stage 4 neuroblastoma at just four years old. A tumour was found in his kidneys with secondary tumours in his skull, shoulders, chest, hip bones, thigh bones as well as spreading to his bone marrow. Theo’s Mum, Jess share’s his story…

"Theo is a kind, caring, funny, loving and sweetest little boy ever. My heart is absolutely broken that this is happening to him and I would do anything in the world to trade places...

"He is a MIRACLE , the strongest, bravest, biggest fighter. He is the definition of having hope, even when you’re being presented with all this evidence of only one outcome..."

You can read Theo's full story here ➡️www.neuroblastoma.org.uk/personal-stories/theos-story 💛

03/09/2026

It's so wonderful seeing everyone Go Gold already for CCAM this September! 🎗️💛

Kids Get Cancer Too have developed some fab tools to make it so easy to Go Gold online! Turn your profile picture gold to stand with the 4,000+ children and young people diagnosed with cancer in the UK every year.

Childhood cancer deserves to be seen, heard and understood. Yet it remains vastly underrepresented in public awareness.

This September, we can change that.

Let’s fill social media with gold and shine a light on childhood cancers, including neuroblastoma. Together, we can make sure more people know, care and take action so we can fund📣more📣research📣

𝗛𝗼𝘄 𝗰𝗮𝗻 𝘆𝗼𝘂 𝗵𝗲𝗹𝗽?
💛Share our posts (including this one!) across September
💛Turn your profile picture Gold ➡️www.kidsgetcancertoo.co.uk/tools
💛Sign up for our Walking Challenge (it's not too late to start!)

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Canopi 82 Tanner Street
London
SE13GN

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Website

http://www.neuroblastoma.org.uk/, https://bit.ly/BigGiveNBUK

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