The Patients Association

19/08/2026

Improving awareness around medicine safety starts with understanding patient experience.

Our research explored the factors contributing to unregulated online medicine purchasing and highlighted that access challenges can leave people feeling they have limited options. Patients also emphasised the importance of clear, patient-informed information on medicine safety.

Those insights, alongside patient feedback on campaign materials, helped inform Lilly’s Counterfeit Medicines Campaign.

Find out more about the campaign at Lilly's website: ProtectYourHealth.co.uk

This campaign was developed and funded by Eli Lilly and Company. The Patients Association has reviewed and supports the campaign.

22/07/2026

Understanding new technology in healthcare should be clear and accessible. A new video from for patients explains ambient voice technology (AVT), how it may support appointments and how it keeps clinicians at the centre of care.

Watch the video here - https://eur01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fhealthinnovation-kss.com%2Fhelping-patients-understand-ambient-voice-technology-a-new-video-to-support-digital-inclusion%2F&data=05%7C02%7COrla.Fitzsimmons%40patients-association.org.uk%7Cfba052a89f2b48576b6008dee7e27947%7Ce88e364082fd4b4bb7a12367d7eb8e3f%7C0%7C0%7C639203157057550801%7CUnknown%7CTWFpbGZsb3d8eyJFbXB0eU1hcGkiOnRydWUsIlYiOiIwLjAuMDAwMCIsIlAiOiJXaW4zMiIsIkFOIjoiTWFpbCIsIldUIjoyfQ%3D%3D%7C0%7C%7C%7C&sdata=J95hU%2BXJXwZxmYn%2FLxN5JD8Np7QeV7Jjv8qlvyMxDNc%3D&reserved=0

01/07/2026

Have you received, or previously received, home enteral feeding (HEF) and used homecare services? Or do you care for someone who has?

We’re looking for patients and carers to share their experiences and help shape understanding of what’s working well, what could be improved, and what matters most.

We’re working with Abbott to better understand the experiences of adults who receive, or have previously received, home enteral feeding and have used homecare services.

Home enteral feeding (HEF) provides nutrition through a feeding tube for people who cannot eat or drink enough by mouth. Homecare services provide support in the community through multidisciplinary teams, helping people access medical nutrition, equipment, training and ongoing care.

We’re looking for 20 participants with a range of backgrounds, conditions and experiences of homecare services, including current and former users. We’re particularly keen to hear from:
• People affected by cancer
• Those with experience of HEF alongside oral nutritional supplements (ONS)
• People from marginalised communities or affected by health inequalities
• Individuals with diverse healthcare experiences

If selected, you’ll be invited to join one virtual focus group lasting around 2.5–3 hours.

As a thank you for your time, participants will receive an £80 voucher.

Register your interest here: https://www.patients-association.org.uk/understanding-home-enterally-fed-patients-experience-of-homecare-services?utm_term=patientsassociation&utm_source=facebook&utm_medium=social

27/06/2026

Patient Partnership Week begins on Monday but there’s still time to register!

Across seven free webinars, we’ll explore some of the biggest questions facing health and care today.

Book now: https://www.patients-association.org.uk/patient-partnership-week-2026?utm_term=patientsassociation&utm_source=facebook&utm_medium=social

26/06/2026

Why do many patients still feel unheard, confused, or excluded when communicating with the NHS?

Our webinar next week will explore whether NHS communication is truly designed with patients, or simply delivered to them, alongside the growing balance between digital efficiency and meaningful human interaction.

Book now: https://www.patients-association.org.uk/Event/getting-through-fixing-how-nhs-communicates-with-patients?utm_term=patientsassociation&utm_source=facebook&utm_medium=social

24/06/2026

What progress has been made on the 10 Year Health Plan’s commitment to give “power to the people” by amplifying patient voice, expanding patient choice and reprioritising people’s experiences of care?

Join our free webinar next week with Picker to discuss: https://www.patients-association.org.uk/Event/power-to-the-people-the-10-year-health-plan-one-year-on?utm_term=patientsassociation&utm_source=facebook&utm_medium=social

23/06/2026

"I'm struggling to eat without it making me unwell… This is impacting my home life, work life and my mental health. Yet there is no rush."

When delays in care lead to worsening mental and physical health and difficulties in living their lives to the fullest, it impacts trust, confidence, and hope in future interactions with the health system.

Find out more in Patient Experience Survey May 2026 report: https://www.patients-association.org.uk/blog/patient-experience-survey-may-2026?utm_term=patientsassociation&utm_source=facebook&utm_medium=social

20/06/2026

We're delighted to have Vivienne Parry OBE, journalist and author, chairing our session on Why prioritising patient trust increases the value of using technology and data to improve research and care at

Book your free place: https://www.patients-association.org.uk/Event/why-prioritising-patient-trust-increases-the-value-of-using-technology-and-data-to-improve-research-and-care?utm_term=patientsassociation&utm_source=facebook&utm_medium=social

19/06/2026

Know your rights as a patient and understand what help you can get in our guide - now translated into Arabic, Bengali, Portuguese, Romanian and Urdu!

We also translated our animation voiceover into Punjabi: https://www.youtube.com/watch?v=84djTqgIWDw&feature=youtu.be

Thank you to Novartis UK for funding the translation of this work.

18/06/2026

Where you live, who you are, and how the system works can all shape whether you get timely access to treatment and care. It shouldn’t.

Join our free webinar, Equity in access: tackling barriers to treatment and care during Patient Partnership Week 2026

We’ll explore why inequities persist, why innovations can take so long to reach patients, and what practical changes could help create fairer access and better outcomes for everyone.

📅 3 July | 10–11am
🎟️ Register:

This webinar will explore the inequities that shape patients’ access to treatment and care, and why many people still face barriers to receiving timely, effective support.