Long Covid UK

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Long Covid UK is a charity working to reduce the impact of Long Covid and improve the lives of all affected.

Long Covid UK is a working name of Long Covid Support (Registered Charity in England and Wales: 1198938 | Company: 13422248) Our goal is to improve the futures of people with Long Covid by ensuring equitable access to high quality healthcare, employment rights and welfare services. If you have Long Covid or are a carer for someone with Long Covid please join us here - https://www.facebook.com/groups/longcovid/?ref=share

Researchers/academics, you may also wish to join Covid-19 Research Involvement Group (https://www.facebook.com/groups/2590602557864509), our sister group. Journalists, please email [email protected] in order to contact our charity or ask something of our Long Covid Support Group members. That group is private and only open to those with Long Covid or those directly taking care of them.

28/10/2026

An enormous thank you to Ben Greg, who ran the Chelmsford Marathon on the 11th of October 🏅

Ben’s partner Ellie has been living with Long Covid since 2023, and they both want to help raise awareness of the issue and help tackle the misinformation online by supporting organisations like Long Covid UK, which work to get out accurate public health messaging and engage in meaningful research.

You can still donate to Ben’s fundraiser by following the link below: https://www.justgiving.com/page/ben-greg-lcs?utm_medium=FR&utm_source=CL

For those of you who have spotted our new merch popping up in recent posts, keep an eye out for the launch of our online shop soon 👀. Thanks to Ellie and Ben for wonderfully modelling the new logo!

23/10/2026

Our friend George Brill recently sat down to talk about his experiences and motivations in fundraising for Long Covid UK.

Since recovering from his illness, George has taken on multiple challenges to help raise over £8000 with his challenge 🙏

We're incredibly grateful for George's ongoing support and dedication to helping others. If you would like to donate to George's campaign, you can follow the link below:

https://www.justgiving.com/page/george-brill-1?utm_medium=FR&utm_source=CL

If you’re interested in fundraising with us, you can email [email protected] or head to our website to learn more.

23/10/2026

Following the EGM on Tuesday 20 October 2026, we are pleased to announce that Bambos Charalambous MP has been elected as Chair of the All-Party Parliamentary Group (APPG) on Long Covid.

From Bambos Charalambous MP -

“I’m delighted to have been elected Chair of the All-Party Parliamentary Group on Long Covid, and excited to take on this role as we continue the journey towards making a real difference for people living with Long Covid.

I’d like to pay tribute to Jo Platt MP for her work and commitment as Chair, and I look forward to building on the important work already undertaken by the APPG.

Despite the impact Long Covid has on individuals, families and communities across the country, far too many people continue to face challenges in getting the recognition, support and care they need. I’m determined to work with colleagues across Parliament, Long Covid UK and the wider community to keep Long Covid firmly on the political agenda, push for meaningful progress and ensure that the voices of those affected are heard. We must not allow people living with Long Covid to be forgotten.”

From Nigel Rothband, Chair, Long Covid UK -

“I’m delighted to welcome Bambos Charalambous MP as the new Chair of the All-Party Parliamentary Group on Long Covid. I’d also like to thank Jo Platt MP for her leadership, commitment and tireless work as Chair.

I look forward to supporting Bambos in his new role and continuing to work with colleagues across Parliament, researchers, clinicians, charities and the wider Long Covid community. By bringing together expertise and lived experience, we can help ensure that policy and decision-making reflect the realities faced by people living with Long Covid.

The challenges remain significant, from improving diagnosis and access to care to strengthening research and long-term support. I will continue to advocate for sustained attention and action, so that people affected by Long Covid are not overlooked and can access the help they need.”

Information about the APPG can be found here: https://www.longcovid.org/appg
Minutes of the meeting will be provided soon.

Bambos Charalambous MP

19/10/2026

LONG COVID LIVE - join us for our next livestream on Wednesday!

📅 Wed 21 Oct
🕙️ 6pm UK

Can GLP-1 drugs help Long Covid?

talks with researcher Romina Foster-Bonds about the remote tirzepatide trial at Scripps Research. Why it's being tested, how the trial works, and why remote design matters. Questions welcome! Join us here: https://www.youtube.com//streams

16/10/2026

We loved all of your brilliant designs last year and can’t wait to see what all of your creativity brings this year 🎄. Here are all the details on how to enter, and don’t forget to look at slide two to see design examples:

Technical Design Specifications
To ensure the winning design can be perfectly printed on a Teemill organic sweatshirt, all entries must meet the following technical rules:

File Format: Entries must be submitted as a PNG file with a transparent background. If you need help with this, we can remove the background for you; just let us know when you submit.
Size: If you’re using digital software to design, please keep it to 2500x3500 px.

All artwork must be 100% original and free of copyrighted or trademarked characters, logos, or catchphrases.

Keep in mind that the winning design will be printed on Teemill base garments (usually available in colors like Navy Blue, Black, Oat, Evergreen, or Heather Grey). Ensure your design has high contrast against your intended background color.

You can submit 2 designs per person; competition is open to residents of the UK, EU, US, or Canada.

How to Submit: Email your PNG file to [email protected] along with your:
- Name
- Contact details
- Preferred sweater base colour

Deadline: All entries must be received by 8 pm GMT on the 18th of November.

Good luck!!

06/10/2026

Last weekend, 16 members of the Hollinghurst and Hole families set off on their annual family fundraising walk. This year, they very kindly decided to raise money for Long Covid UK as a member of their family has been impacted by the illness.

As part of our campaign, we have been really keen to get more friends and families of those with Long Covid involved in fundraising activities. This is the perfect example of the power of communities coming together to show their support. 💙

The family has raised an incredible £ 2,864, including Gift Aid, which will go a long way. Can we get them over the £3000 line by the end of the week? If you would like to contribute to the campaign, please follow the link below.

https://www.justgiving.com/page/nik-hole?utm_medium=FR&utm_source=CL

If your family is feeling inspired, you can check out the fundraising section on our website or email [email protected] to get started.

Thank you so much to everyone involved, and we hope you’re not feeling too sore! 🙏

05/10/2026

We're delighted to welcome Kris Prosser to our board as our new Treasurer!

Kris is a Fellow Chartered Certified Accountant (FCCA) and senior NHS finance leader, currently working as Senior Finance Business Partner and Head of Finance for Medicine at Cardiff and Vale University Health Board. He has extensive experience in strategic financial planning, financial recovery, transformation and governance, working closely with clinical, operational and executive leaders to support sustainable services and better patient outcomes. As Treasurer and Trustee of Long Covid UK, Kris brings his financial leadership experience to support the charity’s governance, sustainability and continued development.

Kris says:
“I’m delighted to join Long Covid UK and to use my financial leadership experience to support the charity’s long-term sustainability. I’m particularly looking forward to working with the Board, team and wider community to help ensure the charity can continue making a meaningful difference for people affected by Long Covid.”

05/10/2026

ONE WEEK LEFT to apply for the position of in-person peer support project assistant!

We're looking for an organised, enthusiastic and self-starting person who is keen to help us build on the success of this work and help grow attendance at our in person groups.

Find out more and apply here: https://longcoviduk.livevacancies.co.uk/ #/job/details/19

02/10/2026

📢 Help shape the future of care for Long COVID and ME/CFS!

The HERITAGE study is looking for people with lived experience of Long COVID and ME/CFS to take part in our study!

As a part of Work Packages 1 and 2, you will:

✅ Complete 5 questionnaires over 12 months
✅ Share your symptoms and experiences
✅ Help us develop a framework for better care and support for people living Long COVID and ME/CFS
✅ Contribute to research that will inform future healthcare services

Please note: Recruitment for Work Package 3 (interviews) has now closed. However, we urgently need participants to contribute by reporting their symptoms through our surveys.

👉 Your voice can help shape better care. Take part today and help build the evidence needed to improve support for people with Long COVID and ME/CFS.

🔗 heritage.leeds.ac.uk/join/

02/10/2026

For anyone that lives in Blacon, Chester and surrounding areas, please join us at the Long Covid in-person peer support group meeting next week!

Whether you're a long-hauler or a caregiver, this is a safe space to share experiences, ask questions, and connect with others facing similar challenges. Let's come together to offer each other empathy, encouragement, and understanding. No need to struggle alone - we're here for you!

🏘️ Parade Enterprise Centre, Blacon
📅 Thursday 8 October 2026 (but it also runs monthly, if you can't make it this time!)
🕙️ 10:15/30 AM (British Summer Time).
🖥️ If you prefer to join online, contact us at [email protected] for a joining link.
❤️‍🩹 We provide an air purifier in the room to support the buildings own air filtration system. The building is fully accessible.

To find out more details and to register please follow this link:
https://www.eventbrite.co.uk/e/in-person-peer-support-group-blacon-chester-uk-tickets-2002461818203

Address

London
W2 1

Website

https://www.longcovid.org/

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