Long Covid UK

Long Covid UK Long Covid UK is a charity working to reduce the impact of Long Covid and improve the lives of all affected.

Long Covid UK is a working name of Long Covid Support (Registered Charity in England and Wales: 1198938 | Company: 13422248) Our goal is to improve the futures of people with Long Covid by ensuring equitable access to high quality healthcare, employment rights and welfare services. If you have Long Covid or are a carer for someone with Long Covid please join us here - https://www.facebook.com/groups/longcovid/?ref=share

Researchers/academics, you may also wish to join Covid-19 Research Involvement Group (https://www.facebook.com/groups/2590602557864509), our sister group. Journalists, please email [email protected] in order to contact our charity or ask something of our Long Covid Support Group members. That group is private and only open to those with Long Covid or those directly taking care of them.

Last weekend, 16 members of the Hollinghurst and Hole families set off on their annual family fundraising walk. This yea...
06/10/2026

Last weekend, 16 members of the Hollinghurst and Hole families set off on their annual family fundraising walk. This year, they very kindly decided to raise money for Long Covid UK as a member of their family has been impacted by the illness.

As part of our campaign, we have been really keen to get more friends and families of those with Long Covid involved in fundraising activities. This is the perfect example of the power of communities coming together to show their support. 💙

The family has raised an incredible £ 2,864, including Gift Aid, which will go a long way. Can we get them over the £3000 line by the end of the week? If you would like to contribute to the campaign, please follow the link below.

https://www.justgiving.com/page/nik-hole?utm_medium=FR&utm_source=CL

If your family is feeling inspired, you can check out the fundraising section on our website or email [email protected] to get started.

Thank you so much to everyone involved, and we hope you’re not feeling too sore! 🙏

We're delighted to welcome Kris Prosser to our board as our new Treasurer!Kris is a Fellow Chartered Certified Accountan...
05/10/2026

We're delighted to welcome Kris Prosser to our board as our new Treasurer!

Kris is a Fellow Chartered Certified Accountant (FCCA) and senior NHS finance leader, currently working as Senior Finance Business Partner and Head of Finance for Medicine at Cardiff and Vale University Health Board. He has extensive experience in strategic financial planning, financial recovery, transformation and governance, working closely with clinical, operational and executive leaders to support sustainable services and better patient outcomes. As Treasurer and Trustee of Long Covid UK, Kris brings his financial leadership experience to support the charity’s governance, sustainability and continued development.

Kris says:
“I’m delighted to join Long Covid UK and to use my financial leadership experience to support the charity’s long-term sustainability. I’m particularly looking forward to working with the Board, team and wider community to help ensure the charity can continue making a meaningful difference for people affected by Long Covid.”

ONE WEEK LEFT to apply for the position of in-person peer support project assistant!We're looking for an organised, enth...
05/10/2026

ONE WEEK LEFT to apply for the position of in-person peer support project assistant!

We're looking for an organised, enthusiastic and self-starting person who is keen to help us build on the success of this work and help grow attendance at our in person groups.

Find out more and apply here: https://longcoviduk.livevacancies.co.uk/ #/job/details/19

📢 Help shape the future of care for Long COVID and ME/CFS!The HERITAGE study is looking for people with lived experience...
02/10/2026

📢 Help shape the future of care for Long COVID and ME/CFS!

The HERITAGE study is looking for people with lived experience of Long COVID and ME/CFS to take part in our study!

As a part of Work Packages 1 and 2, you will:

✅ Complete 5 questionnaires over 12 months
✅ Share your symptoms and experiences
✅ Help us develop a framework for better care and support for people living Long COVID and ME/CFS
✅ Contribute to research that will inform future healthcare services

Please note: Recruitment for Work Package 3 (interviews) has now closed. However, we urgently need participants to contribute by reporting their symptoms through our surveys.

👉 Your voice can help shape better care. Take part today and help build the evidence needed to improve support for people with Long COVID and ME/CFS.

🔗 heritage.leeds.ac.uk/join/

For anyone that lives in Blacon, Chester and surrounding areas, please join us at the Long Covid in-person peer support ...
02/10/2026

For anyone that lives in Blacon, Chester and surrounding areas, please join us at the Long Covid in-person peer support group meeting next week!

Whether you're a long-hauler or a caregiver, this is a safe space to share experiences, ask questions, and connect with others facing similar challenges. Let's come together to offer each other empathy, encouragement, and understanding. No need to struggle alone - we're here for you!

🏘️ Parade Enterprise Centre, Blacon
📅 Thursday 8 October 2026 (but it also runs monthly, if you can't make it this time!)
🕙️ 10:15/30 AM (British Summer Time).
🖥️ If you prefer to join online, contact us at [email protected] for a joining link.
❤️‍🩹 We provide an air purifier in the room to support the buildings own air filtration system. The building is fully accessible.

To find out more details and to register please follow this link:
https://www.eventbrite.co.uk/e/in-person-peer-support-group-blacon-chester-uk-tickets-2002461818203

📢 Important Update from the APPG on Long Covid:Following Jo Platt MP stepping down from her role as Chair, the APPG on L...
29/09/2026

📢 Important Update from the APPG on Long Covid:

Following Jo Platt MP stepping down from her role as Chair, the APPG on Long Covid will hold an Extraordinary General Meeting (EGM) to elect a new Chair on Tuesday 20 October at 2pm.

Jo will remain an active member of the APPG, but as she has been appointed as a Parliamentary Private Secretary (PPS), she is no longer able to hold an officer position within the group.

📝 Please support the APPG if you can by writing to your MP and encouraging them to attend this important meeting!

We recently ran an online peer support group session, facilitated by the wonderful Rebecca Logan, who brought together a...
23/09/2026

We recently ran an online peer support group session, facilitated by the wonderful Rebecca Logan, who brought together a small group of people from Northern Ireland to share support, solidarity and experiences in NI.

We've published a summary blog about the session here: https://www.longcovid.org/blog/northern-ireland-support-group - huge thanks to Rebecca for so carefully holding the space, and also to Richard Sullivan from the Sunday World who interviewed Rebecca about her experience.

Are you based in Northern Ireland and want to join us next time? Sign up via our Facebook Support Group, which you can join here: https://www.longcovid.org/support-services

We're recruiting! Apply today to join us as our first ever in-person peer support project assistant 🥳 This is a new role...
23/09/2026

We're recruiting! Apply today to join us as our first ever in-person peer support project assistant 🥳

This is a new role, supporting our groups which run monthly in Chester and Birmingham. You'll be working across event management and administration; publicity and information sharing; and widening participation in our support groups by reaching new potential attendees.

This is a paid role on a fixed-term contract, subject to renewal.

Interested? Apply now! https://longcoviduk.livevacancies.co.uk/ #/job/details/19

Long Covid UK is proud to stand with the Overlapping Illness Alliance to represent our community. The OIA has issued a j...
21/09/2026

Long Covid UK is proud to stand with the Overlapping Illness Alliance to represent our community. The OIA has issued a joint letter in response to an article recently published in The Telegraph entitled ‘How having a disability became cool’.

“The article raises serious concerns about the way complex chronic illness and disability are framed, particularly around fashion, identity, and social contagion, and the credibility of people living with poorly understood conditions.

We believe these issues deserve scrutiny, but that scrutiny must be accurate, evidence-based, and grounded in the experiences of people directly affected”

The response calls for recognition of the challenges faced by people living with complex chronic illness and disability. Some of these challenges that members of our community face include, but are not limited to, “years of uncertainty, delayed diagnosis, limited access to specialist care, and underfunded research are commonplace, while stigma and disbelief are experienced all too often.

For many of the people represented by our member organisations, disability has cost them careers, education, relationships, independence and the lives they expected to lead. There is nothing cool about that.”

If you would like to read the full open letter, please follow the link below.

https://www.overlappingillnessalliance.org.uk/resources/ -letter

We know the contents of this article may directly impact members of our community and your families. If you would like to take action, we recommend writing a respectful response directly to The Telegraph or to contact your MP.

Share your personal story about how your condition affects your life, the obstacles faced on a daily basis, and the impact that the stigma and disbelief regarding your condition or symptoms can have in real-world interactions. Together, we can challenge these outdated beliefs around disability and ensure fair and accurate representation.

Action for ME Ehlers-Danlos Support UK Long Covid Kids Mast Cell Action POTS UK

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