The Hepatitis C Trust

01/10/2026

It's encouraging to hear hepatitis C recognised as one of the major public health success stories within reach in the Health Secretary's speech at the Labour Party conference yesterday.

The UK has the tools to eliminate hepatitis C as a public health threat and a world-leading NHS elimination programme. With continued commitment to testing, treatment and reaching underserved communities, we can finish the job.

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01/10/2026

UK Prime Minister Andy Burnham You are a hero to so many infected blood victims. Now they are waiting for you to finish their fight for justice. Will you meet with the infected blood community?

Please share far and wide.

29/09/2026

We want Andy Burnham to know the infected blood community are waiting for him to act. If you have X, please retweet our post and tag Andy Burnham and 10 Downing Street as we've done. Thank you!

28/09/2026

Last week Baroness Twycross, the new Minister responsible for infected blood, came to our offices to discuss the issues so many of you are facing. We gave her a duplicate book of the handwritten letters you wrote to Andy Burnham so she could read the unforgiveable toll it has taken on you all.

We spoke about delays with compensation, intolerable evidence burdens claims are being subjected to, injustices within the regulations and the wider ways in which the community want the Government held accountable so this can never happen again.

She accepted the huge challenges many of you are facing and we spoke about practical solutions she could put in place with IBCA to make it easier to claim.

She said she had received a large number of letters from MPs raising your concerns so your pressure is working! Please keep writing to your MP and ask them to write to the Minister - the more she receives, the more likely she is to act.

We won't stop fighting for the justice you all deserve.

25/09/2026

Yesterday's episode of EastEnders featured a storyline where a character discusses how a loved one received contaminated blood through a transfusion. If this storyline has affected you, our helpline is open to talk and able to signpost to further support.

It's open on weekdays from 10.30am to 4.30pm and you can get in touch on 020 7089 6221 or [email protected]

Lauren faces an impossible choice. Jack struggles to keep his frustrations under control. Ned searches for a solution to the Hawkins family's financial troubles.

25/09/2026

Last week, alongside BDP - Bristol Drugs Project, we brought people from across harm reduction together for the National Harm Reduction Summit.

Over the course of the Summit, we heard from people working across the sector, people with lived experience and others involved in harm reduction about where things stand now, what isn't working, and what needs to change.

We want to give a massive thanks to everyone who attended and made it a truly brilliant couple of days. Keep an eye on our and BDP’s channels for more follow-up, including a write-up covering the valuable discussions that were had!

24/09/2026

Our next online support group session for those specifically in the “affected” community (partners, parents, children, siblings and carers of those infected with hepatitis B, C or HIV through blood and blood products) will be held on Monday 28 September from 5-6.30pm.

This group provides a safe, friendly and confidential space for all those in the “affected” community to come together, feel connected and share their experiences, perspectives and get support and information.

If you would like to attend (or register your interest for future groups), please email us at [email protected] or call on 020 7089 6221 so we can add you to our confidential mailing list for further information.

24/09/2026

🔍 New report: 'Declining Access to Needle and Syringe Programmes and the Threat to Public Health.

Needle and Syringe Programmes (NSP) are one of the most effective public health interventions for preventing the transmission of infections, including hepatitis C, hepatitis B and HIV, among people who inject drugs. But despite this, our frontline staff and networks have been raising increased concern about the closure of NSP services. To investigate this, we conducted a mapping exercise of pharmacy-based NSP, the most common form of provision across England. Our findings point to:

1️⃣ a system with no clear ownership, little accurate data and limited understanding of local provision.

2️⃣ services closing, but the absence of a national or local reporting framework makes this difficult to clearly evidence.

3️⃣ significant quality challenges, with provision in many instances not meeting national quality guidelines.

If these issues aren’t resolved, we will struggle to maintain the successes we’ve achieved in eliminating hepatitis C. To see what we found in more detail, and what we’re calling for to get NSP back on track, read our new report here ⬇️ ⬇️⬇️

https://www.hepctrust.org.uk/publication/out-of-reach-declining-access-to-needle-and-syringe-programmes-and-the-threat-to-public-health/

17/09/2026

Thank you to all of you who've written to us about the problems you're facing with IBCA. On Tuesday we met with David Foley, CEO, and Hannah Probert, Director of Policy and Strategy, to relay the concerns so many of you have.

We wanted to share the briefing notes we gave to them so you can see what we raised. They have promised to formally write back to us to explain how they're addressing these points which we'll share with you.

They were keen to hear any more examples of issues you're facing so please do email us at [email protected] and if you're happy for us to, we will continue to collate these to share with them. As always, we are here to help support you with any issues you're facing regardless of whether you want to share them with IBCA or not.

09/09/2026

Our next Information and Support Group for the Infected Blood Community will be held on Monday 14 September from 5pm – 6.30pm.

This is a safe, friendly, informal and confidential space to meet with others infected and affected in the community, ask questions, share experiences and keep up to date with news around the Infected Blood Inquiry, the payment schemes and compensation.

Everyone from the infected/ affected community is welcome to join.
PLEASE NOTE: If you would like to attend, you will need to register directly by emailing [email protected] to confirm a place, as there is a maximum limit of 12 per group.