08/06/2026
Meet David, one of our Experts by Experience (EBEs) here at Guts UK.
Our EBEs work with us to ensure that others living with and affected by digestive conditions and symptoms are always at the heart of what we do and the decisions that we make as a charity.
David was born with Hirschsprung’s disease, a rare condition where the nerves that control the bowel are missing. From life-saving stoma surgery at just a few months old to navigating school life whilst living with a digestive condition, David’s journey has been far from smooth. But today, he leads a busy, active life.
“Having a digestive condition doesn’t need to shape your life or dictate the direction of it,” David told us. “I’m not going to go camping in the middle of a field with no toilet, but I’m also not going to sit at home and do nothing.”
David shared his story with us for the Spring/Summer edition of our That Gut Feeling magazine, which you can view online here: https://gutscharity.org.uk/ss26-magazine/.
Read David’s full story: https://gutscharity.org.uk/awareness/personal-stories/davids-story-hirschsprungs-disease/ . 💚
Together, with the help of people like David, we’re getting to grips with guts.
[Image description 1: David is standing on lush green grass, taking a selfie. There is a park behind him with a lake and people enjoying the gardens too. He wears a grey hoodie, black sunglasses and smiles at the camera. Text reads ‘David shares his Hirschsprung’s Disease story… “I spent the first few days of my life vomiting a lot of bile, not being able to keep anything down. Doctors put it down to birth trauma.”'.
Image description 2: David is taking a selfie in front of the Palace of Versailles. He wears a navy jumper and black glasses. Text reads ‘In the months that followed, after his Dad pushed for tests, David was diagnosed with Hirschsprung’s disease. “My large bowel and 30cm of my small bowel were removed, then everything was joined back up. I managed to be continent from 3 years old.”
Image description 3: David is taking a selfie in front of the Palace of Versailles. He wears a light green t-shirt, red, white and blue baseball cap and black sunglasses. Text reads ‘Besides check-ups and advice for his diet, David hasn’t seen a doctor for his condition since he was discharged from children’s care at 16 years old. He shares: “Having a digestive condition doesn’t need to dictate the direction of your life. Learning to manage the condition really helps.”
Image description 4: David is taking a selfie, biking through the grounds of the Palace of Versailles. He wears a navy t-shirt and black sunglasses. Text on screen reads ‘Being part of Guts UK’s Experts by Experience panel allows me to represent the Hirschsprung’s community and to promote interest in some of the lesser-known digestive conditions.”]