Amyloidosis UK

18/06/2026

UPDATE FROM TEAM TETT:

”🎣 Taking centre stage this weekend in support of Grandad, George is tackling a grueling 12-Hour Fishing Challenge along Brewood Canal to raise vital awareness for Amyloidosis UK. It’s a massive individual effort—one man, one cause, and 12 hours on the bank to get people talking about this condition. Please share our updates with friends and family to help spread the word! Good luck George, we are right behind you! ⏱️🐟”

Visit John Tett’s JustGiving page:
https://www.justgiving.com/page/john-tett

17/06/2026

We’d like to extend a huge, heartfelt thank you to Fiona Taylor’s family and friends for their extraordinary generosity.

Set up in Fiona’s memory by her family, their fundraiser has so far raised £2,953 that will go towards improving outcomes & quality of life for people living with amyloidosis across the UK.

We are heartbroken to announce that our beautiful Wife and Mum, Fiona, passed away on Saturday 16th May 2026. Our Mum was not only the best Mum to us, but one of the most caring and kind-hearted peopl

16/06/2026

Our CEO Kate Taylor and Director of Engagement and External Affairs Karen Davies are representing our charity today at the opening event for Alnylam’s first international office in Maidenhead, UK.

Here they are with Lord Vallance, Minister of State for Science, Research and Innovation of the United Kingdom!

10/06/2026

Cutting-Edge Research in Cardiac Amyloidosis — Want to Get Involved?

Join Cardiomyopathy UK for a fascinating and important research session with Dr Andrej Corovic, BHF Research Fellow at Cambridge Cardiovascular.

📅 Date: Tuesday 16 June ⏰ Time: 2:00-3:00pm GMT 🔗 Register here: https://www.eventbrite.co.uk/e/1991045773506?aff=oddtdtcreator

About the Research: Dr Corovic will be discussing his innovative study using PET imaging to visualise inflammation in the hearts of ATTR amyloidosis patients. This research could reveal crucial insights into how immune cells contribute to the disease and help develop more targeted treatments.

Why Your Voice Matters: This session provides a unique opportunity for researchers to learn directly from patients about the real impact of ATTR cardiomyopathy on daily life. Your experiences can help shape future research directions and treatment approaches.

This informal online chat is part of Cardiomyopathy UK's Catalyst Connections program and will last approximately one hour. A link and password will be sent via email on the day of the event.

If you have any questions you can email the research team at [email protected]

Dr Andrej Corovic will be talking about 'Use of positron emission tomography (PET) for imaging inflammation in cardiac amyloidosis'

09/06/2026

REMINDER: the next Cardiac Amyloidosis Online Support Group session is in 2 days time — Thursday June 11.

Spaces are still available, reserve a spot here:

Are you affected by Cardiac Amyloidosis (ATTR-CM)? Come along and meet the community with Cardiomyopathy UK specialist nurse Jayne.

28/05/2026

FYI we currently have 3 opportunities for patients & carers that may be of interest:

1) Sharing experiences of inherited ATTR amyloidosis (or ATTR polyneuropathy
2) Familial Amyloidosis Polyneuropathy (FAP) Columnist
3) ATTR Amyloidosis Documentary

Visit our website for details:

We’re looking for advocates to help shine a light on the real-life challenges of living with different types of amyloidosis & help shape future support efforts.

25/05/2026

A heartfelt thank you to Steven, Stephanie & Michelle for their fundraiser: "In memory of our lovely Wife and Mum, Fiona Taylor.” We’re so sorry for your loss.

We are heartbroken to announce that our beautiful Wife and Mum, Fiona, passed away on Saturday 16th May 2026. Our Mum was not only the best Mum to us, but one of the most caring and kind-hearted peopl

21/05/2026

You can now reserve a space in the next Cardiac Amyloidosis (ATTR-CM) Online Support Group session on June 11. We run these sessions in collaboration with Cardiomyopathy UK.

Visit…
cardiomyopathy.org/ATTR-CM

Why not join us for this online support group for those affected by Cardiac Amyloidosis (ATTR-CM)?People with Cardiac Amyloidosis (ATTR-CM), as well as supporters, carers, family & friends are welcome.This group is co-facilitated by Cardiomyopathy UK and Amyloidosis UK.You can join the session from....

20/05/2026

Today is Clinical Trials Day!

We’re proud to spotlight the National Amyloidosis Centre for their work testing new & existing treatments for various types of . Accurate diagnosis & swift treatment are vital — outcomes depend on getting both right.

12/05/2026

We’d like to thank Lynne Street for her amazing fundraiser. In memory of her Godmother Sandra, who sadly passed away from amyloidosis, Lynne abseiled down the National Abseil Centre in Northamptonshire. She managed to raise £805, 161% beyond her £500 target!