Duchenne Boys

Duchenne Boys Here we’re raising awareness about, the number one genetic killer of boys in the world, Duchenne Muscular Dystrophy. We love Duchenne boys.

Join PPMD and Solid Biosciences on Tuesday, November 12 at 1 PM ET for a community webinar, “INSPIRE DUCHENNE Clinical T...
09/11/2024



Join PPMD and Solid Biosciences on Tuesday, November 12 at 1 PM ET for a community webinar, “INSPIRE DUCHENNE Clinical Trial Update and Study Expansion.” Solid will provide an update on the INSPIRE DUCHENNE clinical trial for SGT-003, a next-generation microdystrophin gene therapy for individuals living with . Included in the update will be details about the current progress in the study and efforts underway to expand eligibility criteria and participating clinical trial sites. Register today and submit questions in advance at the link in our bio.

Ski application deadline is on Monday, November 11th! We have some spots available and would love for you to join to sk...
31/10/2024



Ski application deadline is on Monday, November 11th! We have some spots available and would love for you to join to ski this winter. Visit the link in our bio to apply!

Prahan my dear sonIt's been 4 years since I found out about your illness, Duchenne Muscular Dystrophy. During this time,...
31/10/2024



Prahan my dear sonIt's been 4 years since I found out about your illness, Duchenne Muscular Dystrophy. During this time, I endured a lot of grief and sorrow. But I will never regret. I am sure that God will help us and a miracle will happen. I will stay strong until that day. Prahan, I love you very much. We will defeat this disease with your help.So I want you to stay strong and make mom's hope more than before ....

Last week, an amazing team of 15 adventurers successfully scaled Africa’s highest free-standing mountain, Kilimanjaro, r...
30/10/2024



Last week, an amazing team of 15 adventurers successfully scaled Africa’s highest free-standing mountain, Kilimanjaro, raising an impressive £86,078 so far (including £11,597 in GiftAid). ⛰

These funds will enable groundbreaking research and provide life-changing support to our community affected by muscle wasting conditions.

Thank you to this amazing team for your hard work, and to all those who contributed — their efforts are helping us take real steps toward a future with better treatments, and more support.

Congratulations and a huge thank you to the Killian family of Rockwall, TX, for another record-breaking fundraising even...
28/10/2024



Congratulations and a huge thank you to the Killian family of Rockwall, TX, for another record-breaking fundraising event last week! The 19th annual Sam’s Night event raised an impressive sum of nearly $1.5 million, and thanks to its generous supporters, Sam’s Night has raised $7.5 million to benefit PPMD since its inception in 2005. PPMD is incredibly grateful for the Killians, their family, friends, and community—THANK YOU to everyone who has supported this fantastic event over the years to help us fight for every future!

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