Help Little Harper Take His First Steps.

Help Little Harper Take His First Steps. See link for more info: https://tuberous-sclerosis.org/

This page was set up to provide updates to everyone who has donated to Harpers fund.Harper has Tuberous Sclerosis Complex which can cause epilepsy,learning disabilities and behavioral problems.

Thank you to these amazing ladies , Karen Leslie and Siobhan Farrell, Ciara Power, who all went above and beyond,with th...
01/06/2026

Thank you to these amazing ladies , Karen Leslie and Siobhan Farrell, Ciara Power, who all went above and beyond,with their own events, to raise amazing funds towards Harper's charity to help towards his therapies. Thank you all again so much.x

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Harper and all his family send  Karen Leslie all the very best of luck tomorrow. Come on Karen! You can do itπŸ…πŸ†β˜˜οΈπŸƒβ€β™€οΈβ€βž‘οΈ...
30/05/2026

Harper and all his family send Karen Leslie all the very best of luck tomorrow. Come on Karen! You can do itπŸ…πŸ†β˜˜οΈπŸƒβ€β™€οΈβ€βž‘οΈ.
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Harper was enjoying the beautiful weather while at Nursery this week. 🌞🩡🩡🩡Things just eventually got to much and he nodd...
30/05/2026

Harper was enjoying the beautiful weather while at Nursery this week. 🌞

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Things just eventually got to much and he nodded of for a wee snooze in his walker.πŸ˜†β˜€οΈ

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17/05/2026

WEEK 3: NAPA
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Its the final week! And what a 3 weeks it has been!
We spoke to Lauren and she updated us on the progress that Harper has made in just the 3 weeks due to his intensive therapies.
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His core strength has improved immensely, helping him to support his own weight. He is now attempting to climb into his bed from a standing position. He has been walking on his knees, and been taking steps with the help of the bars as well as gaining better control of his steps. He has learned how to use his eye gaze with the help of an AAC device to play games and ask for his favourite toy. Very importantly, we also had his first word.. Bubbles!
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Again, thank you to all of you who continue to support Harper on his journey. We continue to remain amazed and humbled by the efforts of our friends and family who carry on with their fundraising events and their generous donations to make all this happen for Harper. Thank you.xx
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We will leave you with the wee video below, which we find very amusing but very fitting of the effort made by Harper in the last 3 weeks. NAPA is no easy task!! I would say it felt like bootcamp every day,lol. Lauren said that Harper was exhausted at the end of every day, so is it any wonder that when he was presented with his badge,t-shirt and certificate at his wee leaving ceremony,by all his therapists involved in his treatment, they couldn't wake him up.πŸ˜…πŸ«£πŸ˜…
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https://napacentre.co.uk/locations/napa-center-london/?utm_source=google&utm_medium=gbp&utm_campaign=london_gbp
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Thank you Great Uncle Adrian, from Harper.🩡🩡🩡
15/05/2026

Thank you Great Uncle Adrian, from Harper.
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15/05/2026

Today is TSC(Tuberous Sclerosis Complex) awareness day. Multiple landmarks across the UK will be lighting up in blue,the official colour of TSC,to bring vital awareness of the conditiin to the greater public, and drive for further research and funding for better treatment and outcomes.
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To mark this special day we have posted a clip below of Dr Sam Amin talking about TSC. Dr Amin is an amazing Consultant Neurologist who specialises in TSC. He is based in Bristol and Harper is very fortunate to be under his care.
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Address

Liverpool
L23 2

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