Jamie’s SDR Journey

Jamie’s SDR Journey Raising money for a life changing operation

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Liverpool

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Jamies SDR Journey

Jamie is 4 years old from Liverpool. He suffered two significant bleeds on his brain after being born at 30 weeks and was subsequently diagnosed with cerebral palsy. As a result, Jamie suffers from extreme muscle tightness in his legs and cannot stand or walk unaided.

We have been advised that Jamie is a good candidate for a life changing operation called SDR (Selective Dorsal Rhizotomy) which would greatly reduce this tightness, but this is not currently funded by the NHS. This procedure would immeasurably improve Jamie’s quality of life and may even allow him to stand on his own two feet in future. To ensure that the benefits of this operation are fully realised, he would also need at least two years of intensive physiotherapy afterwards.

Despite the health problems Jamie has suffered from since birth, he has rarely complained about what life has dealt him, and he has endured all his treatment like a trooper. However, the tightness in his legs will grow more painful and difficult to treat as he gets older, and we are now in the perfect window for the SDR operation.

Any donation would be greatly appreciated and would help Jamie fulfil the potential we know he has.