Huntington's Disease Association

13/10/2026

What can help you manage your mental health when Huntington’s disease is part of your life?

There is no single strategy that will work for everyone. You may find it helpful to try calming breathing exercises, grounding techniques, guided relaxation or finding a safe place to talk.

The Huntington’s Disease Association also has videos, webinars and information exploring psychological strategies, mental wellbeing difficulties and different forms of support.

Take a look at techniques and resources you could explore.

Which approach have you found most helpful?

Clinical Psychologist, Dr Sarah Gunn answers questions from the community about mental health.

13/10/2026

Would you feel more comfortable speaking to us in another language?

Our helpline can support callers through Language Line, an interpreting service covering more than 240 languages. Language Line enables you, an interpreter and a Specialist Huntington's Disease Adviser to speak together on the same call. The interpreters do not record the call or keep notes.

Call 0151 331 5444 between 9:00am and 5:00pm, Monday to Friday and ask to use Language Line. Someone can make the initial call on your behalf with your permission.

Our specialist advisers support anyone who needs their help at any stage of the Huntington’s journey. They can help people living with the disease, people at risk of inheriting the disease, family members and carers, children and young people.

13/10/2026

There are no wrong emotions to have about Huntington’s disease.

You might feel worried about the future, angry about what is happening, guilty about your reactions or confused because your feelings keep changing. You may even experience several emotions at the same time.

Talking about what is worrying or upsetting you can help you process and understand how you feel. It is also important to share and celebrate the good moments and your successes.

You do not have to manage these feelings alone. HDYES supports young people aged 8 to 25 who have Huntington’s disease in their family.

13/10/2026

What helps you through the difficult days? When Kelly feels low, she focuses on three things: the gift of a new day, the chance to pause and breathe, and the support of her family and friends. Taking a moment to recognise what she has and the people around her helps Kelly to cope and protect her mental wellbeing. What helps you when you are struggling?

12/10/2026

We have partnered with GriefChat bereavement counselling to offer our supporters a safe place to talk about their experiences and to get the support that they need. GriefChat provides emotional support for bereaved people, access to trained bereavement counsellors and referral into other specialist bereavement services.

GriefChat was created by bereavement experts and by clicking on the GriefChat box (bottom right), you can chat directly to a specially trained bereavement counsellor. GriefChat counsellors are experienced in supporting bereaved people and will listen to your story, explore how your grief is affecting you and help you to find any additional support you might need. GriefChat is a completely free service and is available Monday-Friday, 9.00am-9.00pm (excluding Bank Holidays).

There are many forms of grief when it comes to Huntington's disease. Understanding the different types of loss and grief can help when trying to find the right support. Take a look at our infographic below to understand the different types of grief and loss someone from a Huntington's family might b...

12/10/2026

Have you experienced ethically challenging situations while caring for someone with Huntington’s disease?

Researchers at the University of Leicester are exploring moral distress among healthcare and social care workers in UK care settings.

They would like to hear from people aged 18 or over who:

• Currently work, or have recently worked, in a formal UK healthcare or social care setting
• Have provided direct care to people with Huntington’s disease
• Have at least one year of experience in that setting
• Are willing to discuss their experiences

Participants will take part in a confidential 30 to 60-minute interview by Microsoft Teams or telephone. The discussion will explore challenging situations, their personal and professional impact, and what could help reduce moral distress.

Participants will not be asked to share identifiable information about anyone they support. An Amazon voucher will be offered as a thank you.

📅 Study closes: 1 November 2026
📧 Contact Cat: [email protected]

The findings may help inform service development, staff support and organisational practice, contributing to better care and staff wellbeing.

Getting involved with current research studies is a great way to help professionals in projects that will inevitably help the Huntington's community present and future.

12/10/2026

Getting outside can offer a welcome change of scenery and support your mental wellbeing. Katie shares how fresh air and movement help her stay positive. This could mean walking, cycling or hiking, but it can also be sitting in the garden, listening to the birds or doing a little gardening. What is your favourite way to spend time outside?

12/10/2026

Do you support someone with Huntington’s disease in a care setting or in their own home?

Our free online session provides an introduction to Huntington’s and explores how the condition can affect movement, thinking, communication, mood and behaviour.

Develop your understanding of Huntington’s and learn how to provide more informed, person-centred support.

📅 Thursday 29 October
⏰ 2:00pm–3:30pm
📍 Online

Book your free place through the link:

This study session is aimed at professionals supporting someone with Huntington's disease either at home or in a care home setting.

10/10/2026

🎁 Looking for a Christmas gift that gives back?

Make a purchase with a purpose from the Huntington’s Disease Association shop. Every penny raised through our charity Christmas cards, merchandise and gifts goes directly towards supporting people affected by Huntington’s disease.

Our Christmas collection includes:

🎄 Charity Christmas cards
🌺 Amaryllis tea towels
🐾 Dog bandanas
✨ Amaryllis Christmas decorations
📚 Books written by members of the Huntington’s community
📝 Amaryllis notebooks

The amaryllis is recognised around the world as a symbol of Huntington’s disease, representing the strength and resilience of our community. Our beautiful amaryllis design was hand-drawn by a member of the Huntington’s community.

These are just a few of the gifts available. Visit our online shop to explore the full collection:

Support a cause you care about this Christmas. Charity Christmas cards are a gift that gives back.