SCN8A UK & Ireland

SCN8A UK & Ireland SCN8A UK & Ireland is a charity supporting families and research for SCN8A related disorders.

SCN8A is a rare genetic disorder, causing neurological problems such as severe epilepsy, movement disorders and other medical challenges.

πŸ’œ Remembering our beautiful Holly today, and always, three years ago today she gained her Angel wings πŸ‘Ό πŸ’œ Sending so muc...
12/04/2026

πŸ’œ Remembering our beautiful Holly today, and always, three years ago today she gained her Angel wings πŸ‘Ό

πŸ’œ Sending so much love to her amazing Mum, Dad, 2 sisters and their family ###

Please join us in wishing our beautiful Erin and Ruby a very happy 16th birthday πŸŽ‰ πŸ₯³πŸŽ‚πŸŽˆπŸŽ###
08/04/2026

Please join us in wishing our beautiful Erin and Ruby a very happy 16th birthday πŸŽ‰ πŸ₯³πŸŽ‚πŸŽˆπŸŽ###

Please join us in wishing our beautiful Henry a very happy 5th birthday πŸŽ‰ πŸ₯³πŸŽ‚πŸŽˆπŸŽ###
29/03/2026

Please join us in wishing our beautiful Henry a very happy 5th birthday πŸŽ‰ πŸ₯³πŸŽ‚πŸŽˆπŸŽ###

πŸ’œ Today is the 4th anniversary of Bens death.πŸ’œ Sending all our love to Bens family and friends and remembering Ben, Isaa...
05/03/2026

πŸ’œ Today is the 4th anniversary of Bens death.

πŸ’œ Sending all our love to Bens family and friends and remembering Ben, Isaac and Tilly’s Dad, our founder, advocate and wonderful friend ###

Please join us in wishing our beautiful Harris a very happy 5th birthday πŸŽ‰ πŸŽπŸŽ‚πŸŽˆπŸ₯³###
04/03/2026

Please join us in wishing our beautiful Harris a very happy 5th birthday πŸŽ‰ πŸŽπŸŽ‚πŸŽˆπŸ₯³###

Please join us in wishing our beautiful Jubran a very happy 7th birthday πŸŽ‰ 🎈🎁πŸ₯³πŸŽ‚###
15/02/2026

Please join us in wishing our beautiful Jubran a very happy 7th birthday πŸŽ‰ 🎈🎁πŸ₯³πŸŽ‚###

Please join us in wishing our beautiful Henry a very happy 7th birthday πŸŽ‰ πŸŽˆπŸŽπŸŽ‚πŸ₯³###
10/02/2026

Please join us in wishing our beautiful Henry a very happy 7th birthday πŸŽ‰ πŸŽˆπŸŽπŸŽ‚πŸ₯³###

09/02/2026

πŸ’œπŸ’œπŸ’œ

πŸ’œ today is SCN8A Awareness Day, here are some of our unstoppable warriors πŸ’œπŸ’œ the International SCN8A Alliance will hold ...
09/02/2026

πŸ’œ today is SCN8A Awareness Day, here are some of our unstoppable warriors πŸ’œ

πŸ’œ the International SCN8A Alliance will hold a live virtual Awareness Day event, 3-5pm EST, you can join here : https://scn8a.info/event/2026-scn8a-awareness-day/

πŸ’œ To help spread awareness the SCN8A Alliance have created SCN8A Awareness Day social media profile frames, you can get one here : https://www.twibbonize.com/scn8a

πŸ’œ we also have our own SCN8A Uk and Ireland merchandise which you can purchase, just comment below or send us a message ###

Please join us in wishing our beautiful Jaxon a very happy 7th birthday πŸŽ‰ πŸŽˆπŸŽπŸŽ‚πŸ₯³###
07/02/2026

Please join us in wishing our beautiful Jaxon a very happy 7th birthday πŸŽ‰ πŸŽˆπŸŽπŸŽ‚πŸ₯³###

Please join us in wishing our handsome Thomas a very happy 16th birthday πŸŽˆπŸŽ‚πŸŽπŸ₯³πŸŽ‰###
01/02/2026

Please join us in wishing our handsome Thomas a very happy 16th birthday πŸŽˆπŸŽ‚πŸŽπŸ₯³πŸŽ‰###

Address

Liverpool
L157LE

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