SCN8A UK & Ireland

SCN8A UK & Ireland SCN8A UK & Ireland is a charity supporting families and research for SCN8A related disorders.

SCN8A is a rare genetic disorder, causing neurological problems such as severe epilepsy, movement disorders and other medical challenges.

💜 Remembering our beautiful Holly today, and always, three years ago today she gained her Angel wings 👼 💜 Sending so muc...
12/04/2026

💜 Remembering our beautiful Holly today, and always, three years ago today she gained her Angel wings 👼

💜 Sending so much love to her amazing Mum, Dad, 2 sisters and their family ###

Please join us in wishing our beautiful Erin and Ruby a very happy 16th birthday 🎉 🥳🎂🎈🎁###
08/04/2026

Please join us in wishing our beautiful Erin and Ruby a very happy 16th birthday 🎉 🥳🎂🎈🎁###

Please join us in wishing our beautiful Henry a very happy 5th birthday 🎉 🥳🎂🎈🎁###
29/03/2026

Please join us in wishing our beautiful Henry a very happy 5th birthday 🎉 🥳🎂🎈🎁###

💜 Today is the 4th anniversary of Bens death.💜 Sending all our love to Bens family and friends and remembering Ben, Isaa...
05/03/2026

💜 Today is the 4th anniversary of Bens death.

💜 Sending all our love to Bens family and friends and remembering Ben, Isaac and Tilly’s Dad, our founder, advocate and wonderful friend ###

Please join us in wishing our beautiful Harris a very happy 5th birthday 🎉 🎁🎂🎈🥳###
04/03/2026

Please join us in wishing our beautiful Harris a very happy 5th birthday 🎉 🎁🎂🎈🥳###

Please join us in wishing our beautiful Jubran a very happy 7th birthday 🎉 🎈🎁🥳🎂###
15/02/2026

Please join us in wishing our beautiful Jubran a very happy 7th birthday 🎉 🎈🎁🥳🎂###

Please join us in wishing our beautiful Henry a very happy 7th birthday 🎉 🎈🎁🎂🥳###
10/02/2026

Please join us in wishing our beautiful Henry a very happy 7th birthday 🎉 🎈🎁🎂🥳###

09/02/2026

💜💜💜

💜 today is SCN8A Awareness Day, here are some of our unstoppable warriors 💜💜 the International SCN8A Alliance will hold ...
09/02/2026

💜 today is SCN8A Awareness Day, here are some of our unstoppable warriors 💜

💜 the International SCN8A Alliance will hold a live virtual Awareness Day event, 3-5pm EST, you can join here : https://scn8a.info/event/2026-scn8a-awareness-day/

💜 To help spread awareness the SCN8A Alliance have created SCN8A Awareness Day social media profile frames, you can get one here : https://www.twibbonize.com/scn8a

💜 we also have our own SCN8A Uk and Ireland merchandise which you can purchase, just comment below or send us a message ###

Please join us in wishing our beautiful Jaxon a very happy 7th birthday 🎉 🎈🎁🎂🥳###
07/02/2026

Please join us in wishing our beautiful Jaxon a very happy 7th birthday 🎉 🎈🎁🎂🥳###

Please join us in wishing our handsome Thomas a very happy 16th birthday 🎈🎂🎁🥳🎉###
01/02/2026

Please join us in wishing our handsome Thomas a very happy 16th birthday 🎈🎂🎁🥳🎉###

Address

Liverpool
L157LE

Website

Alerts

Be the first to know and let us send you an email when SCN8A UK & Ireland posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organisation

Send a message to SCN8A UK & Ireland:

Shortcuts

Share

Category