Young Epilepsy

Young Epilepsy Epilepsy can be one of the most frightening and isolating conditions a child can experience.

10/06/2026

“How do you even start the process for epilepsy surgery?”

In this episode of the Let’s Talk About Epilepsy podcast, Dr Lara Carr is joined by Professor Helen Cross and Tanisha from the Youth Voice Network to talk through what the journey can look like.

One of the first steps is speaking to your child’s neurologist about a referral. From there, families may be referred to a specialist centre for further assessment and support. Epilepsy is different for everyone, and this process won’t be the same for every child.

It’s important to speak to a healthcare professional about what’s right for your child and family.

Watch or listen to the full episode of the Let’s Talk About Epilepsy podcast wherever you get your podcasts, including YouTube, Spotify and Apple Podcasts.

If you’re child is feeling sad, worried or lonely, they can text ‘PURPLE’ to 85258 to reach Shout for free, confidential support.

Is your child heading into exam season feeling overwhelmed, anxious or just a little run down? 💜For young people living ...
10/06/2026

Is your child heading into exam season feeling overwhelmed, anxious or just a little run down? 💜

For young people living with epilepsy, the pressure of exam time can feel particularly full on. As a parent or carer, it can be hard to know how best to support them.

That's where our youth support services come in.

Swipe below to explore the support options available to your child this exam season.

📲 Visit this link to find out more: https://ow.ly/laI150Z6wkc

09/06/2026

Your child could shape the future of epilepsy research 🔬

We're collaborating with Loughborough University on the PACE Prime study, which looks into how epilepsy can affect physical activity in children. But to do it, we need your help.

We're looking for children aged 6-10 years old, with or without epilepsy, to take part. They also must not have any other conditions that limit physical activity.

It's a brilliant opportunity to contribute to research that could make a real difference to children living with epilepsy. Plus, all participants will get a £15 Amazon voucher as a thank you 💜

Interested? Sign up here: https://ow.ly/AJnG50Z6cVx

👉 And if you know a parent whose child might want to get involved, pass this post on to them.

09/06/2026

The Channel is a space for young people living with epilepsy 💜

It brings together real stories, information and support about life with epilepsy — not just the medical side.
You’ll find content on things like:

🚸 school and exams
🧑‍🤝‍🧑 friendships and relationships
🪴 growing up and independence
📆 everyday experiences people don’t always talk about

The Channel is built with young people, for young people - so it reflects real life, in a way that feels relatable and honest.

Whether you’re looking to understand something better, hear from others, or just feel less alone, this space is here for you.

👉 Explore The Channel: https://www.youngepilepsy.org.uk/i-have-epilepsy/the-channel

We’ve relaunched The Channel 💜It’s your space for real stories and support around life with epilepsy — not just the medi...
08/06/2026

We’ve relaunched The Channel 💜
It’s your space for real stories and support around life with epilepsy — not just the medical side.
Built with young people, for young people, you’ll find content on everything from school and friendships to growing up and independence.
👉 Explore The Channel: https://www.youngepilepsy.org.uk/i-have-epilepsy/the-channel

08/06/2026

This , we're thinking about the boys and young men in our community living with epilepsy 💜

Living with epilepsy can take a real toll on a young person's mental health. The uncertainty, the worry, the feeling of being different. It's a lot to carry. And for so many young men, opening up about how they're feeling doesn't come naturally.

If your child is struggling, you're not alone in trying to figure out how to help.

We've put together an honest reel about why this can be so hard for young men, along with some simple tips on how to start those conversations. It might be a helpful watch for you, or something worth sharing with your child directly 👆

And if they're ready to talk to someone, support is available from:
And if you're ready to talk, support is available from:
- Online groups and one-to-one chats with a Youth Coordinator
- Or free, confidential text support with Shout when you text PURPLE to 85258

Visit the link to explore what's available: https://ow.ly/gyHe50Z6wgx

06/06/2026

“Brain surgery can be a really effective option for some young people.” In this episode of the Let’s Talk About Epilepsy podcast, host Dr Lara Carr, is joined by Professor Helen Cross and Tanisha from the Youth Voice Network.

Together, they explore when surgery might be considered and what the process involves, alongside Tanisha sharing her own journey from diagnosis to becoming seizure free.

Epilepsy is different for everyone. The experiences shared here won’t be the same for everyone, so it’s important to speak to a healthcare professional about what’s right for you and your child.

Watch or listen to the full episode of the Let’s Talk About Epilepsy podcast wherever you get your podcasts, including YouTube, Spotify and Apple Podcasts.

If you’re child is feeling sad, worried or lonely, they can text ‘PURPLE’ to 85258 to reach Shout for free, confidential support.

Meet Roman. Eight years old, football fan, trampoline lover and living with epilepsy ⚽️A year ago, Roman's family woke u...
03/06/2026

Meet Roman. Eight years old, football fan, trampoline lover and living with epilepsy ⚽️

A year ago, Roman's family woke up to find him having a seizure in bed.

Within days, he was diagnosed with focal onset epilepsy after a tonic-clonic seizure. For his parents Gem and Paul, those first weeks were overwhelming, scary, and full of questions.

But as epilepsy entered their lives, Roman just kept going. And watching his energy, bravery and absolute refusal to slow down has made his family incredibly proud 💜

If you're a parent or carer navigating a new diagnosis, or simply looking for a story that reminds you what's possible, Roman's is one worth reading: https://ow.ly/qMHP50Z6cT7

03/06/2026

In this episode of the Let’s Talk About Epilepsy podcast, Dr Lara Carr is joined by Professor Helen Cross and Tanisha from the Youth Voice Network to talk about epilepsy brain surgery.

They share when surgery might be considered, what the process involves, and what it can mean for young people and their families.

Epilepsy is different for everyone. Always speak to a healthcare professional for advice that’s right for you.

Watch or listen to the full episode wherever you get your podcasts, including YouTube, Spotify and Apple Podcasts.

If you’re child is feeling sad, worried or lonely, they can text ‘PURPLE’ to 85258 to reach Shout for free, confidential support.

Exam season is stressful for any young person. But for those living with epilepsy, it can bring a whole set of extra wor...
02/06/2026

Exam season is stressful for any young person.

But for those living with epilepsy, it can bring a whole set of extra worries, for them and for you.

A young person in our community reflected on their experience of navigating exams with epilepsy 💜

From the fear of having a seizure mid-exam to simply trying to hold it all together, it's a real story that many families will find familiar.

The great news is, they came out the other side with some really practical tips to share with other young people facing the same thing. Check them out below 👇

If you think your child could do with a little extra support this exam season, we're here to help. Visit the link to find out how our youth support services could make a difference: https://ow.ly/J89I50Z52MJ

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