Fibromyalgia Awareness Northern Ireland

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Our Story

Fibromyalgia Awareness Northern Ireland (F M A N I) is a registered charity organisation dedicated to providing help and support to Fibromyalgia sufferers and those who care for them. Our mission is to provide an organisation where those with Fibromyalgia can find understanding, knowledge, support and practical help in coping with this disease. (((Description))) ON January 10th 2013 FMANI was set up to raise awareness of Fibromyalgia especially in Northern Ireland. Fibromyalgia is a chronic pain illness that can affect a person from head to toe. There is no cure, and they include a wide range of symptoms. They can affect everyone differently. Chronic means this illness is for life. Yes there are good days, but for a person living with Fibromyalgia even a good day equals pain. They require living hour by hour, and not knowing what the day ahead will bring, or when the next flare up could happen. We really want people to help us spread awareness of this debilitating illness, so that the people that are faced with this can live in a more supportive world. It is hard enough living with chronic pain and all the other nasty symptoms, without being judged because they are invisible. We want to give those affected by (FM) a voice. We want to make it VISIBLE! ***PLEASE NOTE*** (1) (FMANI) does not offer professional medical advice and all medical questions should be directed to a medical professional. (FMANI) only offers advice based on personal experiences and research, and is in NO way intended to replace those of any medical professional. We will not accept responsibility for others actions, nor any comments or posts made on our closed group page by anyone else. (2) Our support group page is awareness, support, & advocate page, and we DO NOT allow advertising, bullying, or disrespectful comments. Everyone has an opinion, respect others, if any of the above happens group members will be informed by FMANI and your post/comment will be removed. If a group member repeatedly does any of the above they will banned from the page. "NO EXCEPTIONS"! (3)We ask members to please bear in mind that our support group page is run by volunteers. Who may not be online 24/7 but as soon as a member’s comment or (PM) Private Message is seen FMANI volunteers will reply to you. All Volunteers suffer with Fibromyalgia, so they do have days where it is impossible to be online. (4) If you have any questions or concerns please (PM) any of our volunteers, and they will reply to you as soon as they can. Our volunteers are NOT medically trained and sometimes they cannot answer your question but they will do their best to help you with your concerns or worries and will ALWAYS support you as much as they can. Helpline: Mon-Fri 9am-5pm 0845 600 32 13 Thank you for taking the time & showing an interest in our charity and the work we do for Fibromyalgia patients across N. Ireland *** BECAUSE YOU MATTER! ***