Pulmonary Fibrosis Trust

Pulmonary Fibrosis Trust The aim of the Pulmonary Fibrosis Trust is to provide personal support to people affected by Pulmonary Fibrosis, a very debilitating and life-limiting illness.

We offer practical and emotional support where there is a need. We also raise awareness of the illness and in particular the challenges people face on a daily basis.

This September, ultra endurance runner Nick Ashill will set off from John O'Groats and run all the way to Land's End β€” m...
16/06/2026

This September, ultra endurance runner Nick Ashill will set off from John O'Groats and run all the way to Land's End β€” more than 900 miles across Britain.

While Nick takes on this extraordinary challenge, we're inviting you to be part of the journey.

The Every Breath Club is about community, support and raising awareness for everyone affected by pulmonary fibrosis.

For some, that might mean taking on a personal challenge. For others, it could be sharing a post, making a donation, cheering Nick on, or simply being part of the conversation.

Every act of support matters.
Because every breath is precious

Join the movement: https://pulmonaryfibrosistrust.enthuse.com/cf/pft-every-breath-club-900-miles-with-nick-2026

16/06/2026

Pulmonary rehabilitation awareness week is from June 15th to 19th.

See the helpful video below from NHS Dorset to find out more.

Pulmonary Rehab Week Events - Melissa Bus Tour 🚍As part of Pulmonary Rehab Week, South Tyneside and Sunderland NHS Found...
16/06/2026

Pulmonary Rehab Week Events - Melissa Bus Tour 🚍

As part of Pulmonary Rehab Week, South Tyneside and Sunderland NHS Foundation Trust are excited to host community awareness sessions to shine a light on the vital role of pulmonary rehabilitation in supporting lung health.

They're bringing the Melissa Bus - a mobile health information hub - for drop-in community awareness sessions:

πŸ“… Thursday 19th June πŸ“ Asda, South Shields ⏰ 10am – 2pm

These sessions will provide information on what pulmonary rehab is, how it helps, and why it matters.

They will also be joined by colleagues from Social Prescribing Services, Stop Smoking Services and The Local Breathe Well Support Group.

Pulmonary Rehab Week Events - Melissa Bus Tour 🚍

As part of Pulmonary Rehab Week, we’re excited to host two community awareness sessions to shine a light on the vital role of pulmonary rehabilitation in supporting lung health.

We’re bringing the Melissa Bus - a mobile health information hub - to two local venues for drop-in community awareness sessions:

πŸ“… Tuesday 17th June πŸ“ Morrisons, Jarrow ⏰ 10am – 2pm
πŸ“… Thursday 19th June πŸ“ Asda, South Shields ⏰ 10am – 2pm

These sessions will provide information on what pulmonary rehab is, how it helps, and why it matters. We’re also proud to be joined by colleagues from Social Prescribing Services, Stop Smoking Services and The Local Breathe Well Support Group.

Together, we’ll be raising awareness about the importance of managing and improving lung health.

Come along, ask questions, and help us spread the word!

A huge thanks to Tailwind Nutrition UK and Tailwind Nutrition NZ for supporting Nick Runs Britain as he prepares to run ...
10/06/2026

A huge thanks to Tailwind Nutrition UK and Tailwind Nutrition NZ for supporting Nick Runs Britain as he prepares to run the length of Britain to support Pulmonary Fibrosis Trust!


A Family Has Paid It Forward Due to unforeseen circumstances, a family who were due to enjoy a stay in the Pulmonary Fib...
10/06/2026

A Family Has Paid It Forward

Due to unforeseen circumstances, a family who were due to enjoy a stay in the Pulmonary Fibrosis Trust holiday caravan have gifted their holiday to another family affected by pulmonary fibrosis.

As a result, a free one-week stay is now available from 19–26 June 2026.

Located at Haven Seashore Holiday Park in Great Yarmouth, Norfolk, the caravan provides access to fantastic family facilities including a water park, entertainment, restaurants, shops, amusement arcade and more.

If you or a loved one could benefit from a break away, applications can be made via the PFT website. Medical evidence will be required if this has not already been provided to the Trust.

Please share with anyone affected by pulmonary fibrosis who may benefit from this opportunity.

To apply visit the PFT website, click on the Support tab and select Caravan.

08/06/2026
08/06/2026

On 5 September I will set off to run the length of Britain, one step at a time to support Pulmonary Fibrosis Trust

And I will not be doing it alone.

Thank you Hamish French, Shoe Clinic and HOKA for backing me once again. From running across America... to Australia, and now Britain, you were there with me from the start.

This time we'll be taking on the miles in the Hoka Clifton 10.

Shoe Clinic understands runners. Gait analysis, expert advice and the right fit for the right purpose.

And for anyone who knows Hoka, you know what they stand for - comfort without compromise.

Let’s go again. πŸ‡¬πŸ‡§πŸ”₯

Follow the journey: https://buff.ly/LMTQH5r

Get involved: https://buff.ly/8Zy1CI3


Help close the gap in UK respiratory health research 🫁The Priority Setting Partnership (PSP) is inviting people of Black...
08/06/2026

Help close the gap in UK respiratory health research 🫁

The Priority Setting Partnership (PSP) is inviting people of Black or mixed Black heritage with lived experience of lung conditions, and the healthcare workers who support them, to shape future research priorities.

Have your say by 15th June 2026:

β€’ Adult Survey: https://www.surveymonkey.com/r/BJWGVPD
β€’ Youth Survey: https://www.surveymonkey.com/r/GXY8LDK

Help close the gap in UK respiratory health research 🫁

The Priority Setting Partnership (PSP) is inviting people of Black or mixed Black heritage with lived experience of lung conditions, and the healthcare workers who support them, to shape future research priorities.

Have your say by 15th June 2026:

β€’ Adult Survey: https://www.surveymonkey.com/r/BJWGVPD
β€’ Youth Survey: https://www.surveymonkey.com/r/GXY8LDK

Research Participation OpportunityThe Pulmonary Fibrosis Trust has been asked to share this opportunity from researchers...
01/06/2026

Research Participation Opportunity

The Pulmonary Fibrosis Trust has been asked to share this opportunity from researchers at the London School of Hygiene & Tropical Medicine.

Researchers are looking for members of the public and healthcare professionals to join an advisory group for a new project exploring how effective vaccines are against respiratory viruses for different groups of people, including those living with long-term health conditions.

βœ” No previous research experience required
βœ” Attend online meetings (around four per year)
βœ” Support and payment for your time provided

If you are interested in finding out more, please see the information below and contact Heather directly at [email protected].

Please note: This opportunity is being shared on behalf of the research team. Any questions about the project should be directed to the researchers.

31/05/2026

This week alone, Nick has run:

πŸ“ 111.24 miles
⏱️ 20 hours
⛰️ 9,616 ft of elevation

That's the equivalent of running from Manchester to Birmingham in a single week.

And he's only just getting started.

These miles are all part of Nick's preparation for his incredible 900-mile run the length of Great Britain in support of the Pulmonary Fibrosis Trust.

Want to be part of the journey? Join the PFT Every Breath Club and set your own challenge alongside Nick. Whether you walk, run, cycle, swim or wheel, every mile helps raise awareness of pulmonary fibrosis and support the work of the Pulmonary Fibrosis Trust.

How many miles could you cover this week? πŸ‘‡

To find out more or to sign up visit the link in bio.





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C/o E. B. S. Ltd Stowe House, St Chad's Road
Lichfield
WS136TJ

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