CCLG: The Children & Young People’s Cancer Association

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CCLG: The Children & Young People’s Cancer Association A charity dedicated to creating a brighter future for children and young people with cancer. www.cclg.org.uk

We are CCLG: The Children & Young People’s Cancer Association, a charity dedicated to creating a brighter future for children and young people with cancer. Powered by expertise, we unite the children and young people’s cancer community, driving collective action and progress. Research is the key to better treatments, improved care, and potential cures. We fund and lead world-class research, fuelling groundbreaking work led by brilliant minds. Collaboration is at the heart of our approach—bringing together the right people and organisations to drive progress and deliver real impact. We provide trusted information and guidance for children and young people with cancer, their families, and everyone supporting them. Our expertise helps them navigate the challenges of cancer and its impact, offering reassurance and clarity when it’s needed most. Through our professional membership, we bring together the brightest minds in children and young people’s cancer, creating a national network that drives progress. Together, we shape better treatment and care - developing guidelines, sharing knowledge, offering expert advice, leading pioneering research, and creating essential resources and education for professionals. Our collective expertise sets the standard, advocating for excellence at every level—local, national, and global. CCLG and The Children & Young People's Cancer Association are trading names of The Children's Cancer and Leukaemia Group, registered charity in England and Wales (1182637) and Scotland (SC049948).

15/10/2026

You've lived through something no family should have to face. Now, your experience could help make things better for the next child or young person diagnosed with cancer.

Engage is the new lived experience platform from CCLG and Solving Kids' Cancer for parents, survivors and family members affected by childhood and young people's cancer 💛

By joining Engage, you can share your experience in ways that shape research, improve services and influence decisions at every level.

Your voice matters, and it has the power to create real change.

Sign up today at https://bit.ly/4hndm5Y

💬 What's one thing you wish people understood about cancer in children, teenagers or young adults? Share your thoughts in the comments below.

In 2016, the Worboys family helped fund one of CCLG's earliest Special Named Fund research projects ✨🔬Led by Dr Stefan M...
14/10/2026

In 2016, the Worboys family helped fund one of CCLG's earliest Special Named Fund research projects ✨🔬

Led by Dr Stefan Meyer, the study uncovered new insights into why some leukaemias are so difficult to treat and identified a potential way to make cancer cells more vulnerable to chemotherapy.

Now, 10 years later, the team has secured further funding to continue building on these findings.

In our latest blog, we look back at how fundraising from The Toti Worboys Fund has supported childhood leukaemia research over the past decade, and what comes next.

Read more at https://bit.ly/4hGs6hZ

In Memory of Thomas "Toti" Worboys

Soft tissue sarcomas account for around 7% of childhood cancers, yet children and young people with the disease often fa...
14/10/2026

Soft tissue sarcomas account for around 7% of childhood cancers, yet children and young people with the disease often face some of the longest waits for a diagnosis.

Liberty York was 18 when she was diagnosed with a type of soft tissue sarcoma, following months of symptoms including fatigue, nausea, and unexplained discomfort and swelling in her left breast.

At first, her symptoms were put down to Addison's disease, an autoimmune condition she had been diagnosed with the previous year. After multiple appointments and referrals, the swelling continued to worsen and eventually grew into a tumour weighing 10 pounds. A biopsy finally confirmed her sarcoma after a long and difficult journey to receive the correct diagnosis.

Sadly, Liberty passed away in the early hours of 1 June 2025, just days after her 19th birthday.

Today, backed by Liberty’s mum, Hannah, we're proud to launch new expert guidance for healthcare professionals, alongside symptom lists for families, as part of our Child Cancer Smart campaign to help spot the signs of soft tissue sarcoma sooner.

Hannah said: “Liberty’s type of sarcoma was a particularly aggressive sarcoma. If she’d been referred the first time there were worrying symptoms with the swollen breast which took two months then it may not have saved her, but she’d have had more of a chance and less time spent in hospital.

“Her cancer was rare, underfunded and under-researched, so the best chance of helping other people is by making sure they are diagnosed early.”

Early diagnosis can save lives - learn to spot the signs at https://bit.ly/4B4kxcr

“Families like ours cannot live a life under the dark cloud of childhood cancer without knowing our child’s experience w...
13/10/2026

“Families like ours cannot live a life under the dark cloud of childhood cancer without knowing our child’s experience was not in vain. We feel strongly that good has to come from our experiences. We want to be heard and seen, and to know that we can help make a difference. It gives us hope when, for some of us, hope was taken away by cancer.”- Lisa Radcliffe, mum to George, who was diagnosed with rhabdomyosarcoma aged 3

You’ve lived through something no family should have to face. By sharing your insights, you can help shape a brighter future for children and young people diagnosed with cancer.

Through Engage, you can share your experience in ways that shape research, improve services and influence decisions at every level.

Your voice can help change the future. Sign up today at https://bit.ly/4hndm5Y

Solving Kids' Cancer

Could it be cancer?We're so proud to see our Child Cancer Smart campaign featured on BBC News today, alongside CCLG memb...
12/10/2026

Could it be cancer?

We're so proud to see our Child Cancer Smart campaign featured on BBC News today, alongside CCLG member Professor Bob Phillips. The feature highlights Amelia and Jake's stories and the importance of recognising the signs and symptoms of cancer in children and young people.

When it comes to symptoms, look out for those that:
🔢 Appear in clusters (more than one symptom at the same time)
⌛ Don't go away
📈 Get worse over time

It's important not to panic if your child has one of these symptoms. Most childhood illnesses clear up within a couple of weeks. But if symptoms don’t go away after two weeks or something doesn’t feel right, trust your instincts and see a doctor.

Early diagnosis can save lives. Learn how to spot the signs at https://bit.ly/4yPoH6w

“Since his diagnosis, my son has become very anxious and increasingly attached to me.” – Mum to a young boy diagnosed wi...
10/10/2026

“Since his diagnosis, my son has become very anxious and increasingly attached to me.” – Mum to a young boy diagnosed with cancer.

When a child begins cancer treatment, families often find themselves navigating a world they never expected to enter.

Preparation is one of the most effective ways to reduce anxiety. Helping children understand what will happen during procedures can reduce fear of the unknown. When children know what to expect, they feel more in control and more able to cope.

In our latest issue of Contact magazine, we hear insights from dietitians, occupational therapists, play specialists and physiotherapists, offering a holistic guide to supporting your child’s wellbeing throughout treatment.

While every child’s journey is unique, small, compassionate steps can make a meaningful difference.

Read the full article at https://bit.ly/3VAELuk

10 years of collaboration and more than £30 million invested in childhood cancer research 💛🔬This month marks 10 years of...
09/10/2026

10 years of collaboration and more than £30 million invested in childhood cancer research 💛🔬

This month marks 10 years of partnership between CCLG and The Little Princess Trust (LPT).

Since our collaboration began in 2016, money raised by LPT's incredible supporters has funded research to improve the lives of children and young people with cancer.

CCLG's scientific expertise helps ensure that LPT funding reaches the most promising projects and that the brilliant researchers are supported throughout their work.

Together, we've supported everything from early-stage laboratory discoveries to clinical trials, funding 176 research projects across the UK.

As Wendy Tarplee-Morris, co-founder of LPT, explains: "When we launched our research programme, we wanted to make sure every donation could have the biggest possible impact for children and young people with cancer. Working alongside CCLG has enabled us to support outstanding science and brilliant researchers."

Read more about what we've achieved together over the past decade at https://bit.ly/4hK7fcg

"Cancer treatment is improving all the time, and with support, research can help increase survival rates and reduce the ...
06/10/2026

"Cancer treatment is improving all the time, and with support, research can help increase survival rates and reduce the side effects of treatment."

At just eight years old, Kit was diagnosed with Wilms tumour, a type of kidney cancer, in February 2025.

Kit had already been through chemotherapy and surgery when, at the start of 2026, his cancer returned and began to grow in his liver. Since then he has endured another round of treatment including stronger chemotherapy, longer stays in hospital, a stem cell transplant and radiotherapy.

Despite everything he has faced, Kit has remained full of life. He has shown incredible resilience throughout his treatment, staying positive, energetic and cheerful, and bringing smiles to everyone around him 💛

Showing the same determination as Kit, his dad, Johnny, recently took on the Scottish Half Marathon with a broken wrist, supported by a team of family and friends known as ‘Kit’s Super Runners’. Together, they have raised over an amazing £11,000 for Kit’s CCLG Special Named Fund, helping to fund vital research into kinder and more effective treatments for children and young people with cancer, like Kit.

Johnny said: “Being diagnosed with cancer as a child is inexplicable and life-changing. We wanted to take a positive action during a difficult time and use our life challenge as a force for good.”

A huge thank you to Johnny and ‘Kit’s Super Runners’ for their incredible fundraising efforts, dedication and support. Together, we can create a brighter future for children and young people with cancer and help make a difference through funding research.

For many teachers and school staff, supporting a pupil with cancer as they return to the classroom can feel daunting. Kn...
05/10/2026

For many teachers and school staff, supporting a pupil with cancer as they return to the classroom can feel daunting. Knowing what to expect and how best to help can be overwhelming, especially if it's something you've never experienced before. As primary school teacher Bob shared: "Having a child with cancer in your class is one situation that you don't think will ever happen to you as a teacher."

That's why we've created our free booklet, Supporting a pupil with cancer. Full of practical advice and guidance, it helps school staff understand some of the challenges children with cancer and their families may face and offers simple ways to support them throughout their treatment and when they are ready to return to school.

For children and young people with cancer, getting back to school can be an important step in regaining a sense of normality, rebuilding confidence and reconnecting with friends. With understanding, planning and the right support in place, schools can help make that return as positive and reassuring as possible 💛🎒

Order or download a free copy at https://bit.ly/4xWZ7f9

"Do what you can, when you can, and take advantage of every second that you have.”Amber was diagnosed with acute lymphob...
04/10/2026

"Do what you can, when you can, and take advantage of every second that you have.”

Amber was diagnosed with acute lymphoblastic leukaemia aged nine in June 2022.

In our latest issue of Contact magazine, now aged 14, she tells us about the biggest challenges of her treatment and what helped her and her family this time, and offers advice to others ✨

Read the full article at https://bit.ly/46S40ut

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3rd Floor, Office 5, 24 De Montfort Street
Leicester
LE17GB

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+443330507654

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