Team Ruby

Team Ruby Here to raise awareness for Pearson’s syndrome and mitochondrial diseases to try and find a cure.

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30/05/2026

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These are the approx timings for the day if anyone wants to drop in and say hello x
30/05/2026

These are the approx timings for the day if anyone wants to drop in and say hello x

30/05/2026
20 miles 20 pubs start line!
30/05/2026

20 miles 20 pubs start line!

Ruby met up with her Pearson’s brother Suli in Scotland on Monday. He’s 3 months younger than Ru and I’ve been in touch ...
27/05/2026

Ruby met up with her Pearson’s brother Suli in Scotland on Monday. He’s 3 months younger than Ru and I’ve been in touch with his mum regularly for the past 3 years. It was really lovely to meet up in person and it felt like we were old friends. I’m so grateful to the joys of Facebook for connecting us in the first place. Our friendship has been a lifeline at times, there are no words but the understanding we share is so rare. Sulis clinginess felt so familiar, he’s had a rollercoaster few years and spent a lot of time in hospital, his kidneys are affected and he has a feeding tube which his big brother helped to feed him with. I watched him and ruby and felt a moment of sadness at the magnitude of what their disease means for them and all of us. We could both agree how much better things were now than in the early terrifying days, we’ve really grown into it.

We stayed at a gem of a place in the middle of nowhere called Bamff estate. It’s a re-wilding project and we got to see some Beavers, wild ponies, birds, pigs, cows, peacocks and a red squirrel. I was apprehensive as it wasn’t the usual holiday park but it turns out kids love stones (throwing stones, showing me stones and losing precious stones), sticks, having houses under big trees and waiting at dusk for the beavers to surface. The weather was the icing on the cake of course. We drank lots of iron bru, ate lots of crisps and visited some stunning places.

Stunning, emotional, superhuman, wonderful day for the 40 miles of Keswick to Barrow. So much pure grit and determinatio...
09/05/2026

Stunning, emotional, superhuman, wonderful day for the 40 miles of Keswick to Barrow. So much pure grit and determination and blisters and fat hands shared by all. Such a massive privilege to share the route with 17 wonderful people. Lake District you never fail to make me feel alive. 🥹 🏔️ 🚶‍♀️

K2B and we’re off!
09/05/2026

K2B and we’re off!

Keswick to barrow on Saturday!! 40 miles of fun… Eeeek. Here’s my sponsor link but please sponsor any of the other 16 pe...
07/05/2026

Keswick to barrow on Saturday!! 40 miles of fun… Eeeek. Here’s my sponsor link but please sponsor any of the other 16 people doing it instead if you see their links! 🙏🥰

https://keswick2barrow.co.uk/donate/256335?cid2=256335&fbclid=IwZnRzaARpvJZleHRuA2FlbQIxMQBzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEejRh28VQ8mrLy58_ZSy8l2EC3qGXSZ0ZkMtnhfmkCDm649FhFUbKnnLWoHEQ_aem_OTmFsLyTUysbfdpqnRwmNA

All donations are made to the Keswick to Barrow Walk Charity. A percentage of this donation will be used to fund the cost of the walk and support local charities in South Cumbria/North Lancashire. The remainder of the donation will be donated to the Walker's (Team) nominated charity(ies) as listed b...

Link for William if anyone would like to put a few coins his way xx
31/01/2026

Link for William if anyone would like to put a few coins his way xx

Help Alexandra Mounsey raise money to support The Lily Foundation

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68 Foundry Close
Lancaster
LA26FE

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